The Cost of Youth Voices: Comparing the Feasibility of Youth GO Against Focus Groups

Stacy, Sara T.; Castro, Krys; Acevedo-Polakovich, Ignacio D.

doi:10.35844/001c.13312

Cited by 4 publications

(2 citation statements)

References 39 publications

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“…Despite growing awareness of the barriers and promising research around facilitators, we are unaware of studies that have explored newly linked-to-care AYLHIV perspectives on their experiences while being linked to care and throughout the first few months following their diagnosis. AYLHIV perspectives are crucial and promote shared decision-making and capacity building, which generates evidence to improve healthcare and support services [13][14][15]. During the years 2016-2021, with support from ViiV Healthcare, the Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) implemented the Red Carpet Program (RCP), designed to improve the long-term health outcomes of AYLHIV in Homa Bay County, Kenya.…”

Section: Introductionmentioning

confidence: 99%

Experiences of adolescents and youth with HIV testing and linkage to care through the Red Carpet Program (RCP) in Kenya

Kose,

Howard,

Lenz

et al. 2024

PLoS ONE

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Adolescents and youth living with HIV (AYLHIV) experience worse health outcomes compared to adults. We aimed to understand the experiences of AYLHIV in care in the youth-focused Red-Carpet program in Kenya to assess the quality of service provision and identify programmatic areas for optimization. We conducted focus group discussions among 39 AYLHIV (15–24 years) and structured analysis into four thematic areas. Within the HIV testing theme, participants cited fear of positive results, confidentiality and stigma concerns, and suggested engaging the community and youth in HIV testing opportunities. Within the HIV treatment adherence theme, participants cited forgetfulness, stigma, adverse side effects, lack of family support, and treatment illiteracy as barriers to adherence. Most participants reported positive experiences with healthcare providers and peer support. In terms of the HIV status disclosure theme, AYLHIV cited concerns about their future capacity to conceive children and start families and discussed challenges with understanding HIV health implications and sharing their status with friends and partners. Youth voices informing service implementation are essential in strengthening our capacity to optimize the support for AYLHIV within the community, at schools and healthcare facilities.

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Section: Introductionmentioning

confidence: 99%

Experiences of adolescents and youth with HIV testing and linkage to care through the Red Carpet Program (RCP) in Kenya

Kose,

Howard,

Lenz

et al. 2024

PLoS ONE

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“…Similarly, with examples from eight nations and four continents, a recent study [20] shows that given adequate scientific means (such as statistical data analysis tools, and access to population and land data) and proper adult supervision, the youth can greatly improve policy planning at multiple levels of urban planning ranging from relatively small settings such as a schoolyard to larger settings such as neighborhood networks. Furthermore, some studies [21,22] suggest that, in certain scenarios, the youth and the general public can be more efficient in carrying out policy-related tasks than those typically considered to be policy experts.…”

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confidence: 99%

On the landscape of youth participation in science policy

Agarwal

Sung

2021

MIT Science Policy Review

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Despite being important policy stakeholders, the youth remain largely absent from policy building and implementation. However, the growing literature has vividly illustrated the capacity of the youth from diverse age groups to make meaningful contributions to policy. In particular, university students are emerging as significant actors in science policy owing to their unique perspectives and knowledge. By drawing from the literature, we emphasize that the youth are capable of directly contributing to diverse policy matters while also indirectly benefiting from their participation. Consequently, there is a crucial need for initiating programs for promoting youth participation. Furthermore, to ensure the fruitfulness of such programs, more systematic research ought to be done with regards to the accomplishments and challenges of youth participation.

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Using Participatory Methods to Assess PrEP Interest and Uptake Among Young People Living in the Southeastern US: A Mixed Methods Assessment

et al. 2021

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The Cost of Youth Voices: Comparing the Feasibility of Youth GO Against Focus Groups

Abstract: resource challenges to youth engagement in participatory research Many existing methods developed to facilitate meaningful youth engagement within research face pragmatic and resource challenges (

Cited by 4 publications

References 39 publications

Experiences of adolescents and youth with HIV testing and linkage to care through the Red Carpet Program (RCP) in Kenya

Experiences of adolescents and youth with HIV testing and linkage to care through the Red Carpet Program (RCP) in Kenya

On the landscape of youth participation in science policy

Using Participatory Methods to Assess PrEP Interest and Uptake Among Young People Living in the Southeastern US: A Mixed Methods Assessment

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