The Cultural Influence of Values, Norms, Meanings, and Perceptions in Understanding Dementia in Ethnic Minorities

Dilworth‐Anderson, Peggye; Gibson, Brent E.

doi:10.1097/00002093-200200002-00005

Cited by 196 publications

(139 citation statements)

References 18 publications

Supporting

Mentioning

133

Contrasting

Unclassified

Order By: Relevance

“…Normalization of dementia as age-related and stigmatization of dementia as insanity are well established among Asian Americans. Dementia is often considered as a part of the normal aging process rather than a disease, and this view is particularly prominent among Asian Americans (Ayalon & Areán, 2004;Braun, Takamura, Forman, Sasaki, & Meininger,1995;Braun, Takamura, & Mougeot, 1996;Dilworth-Anderson & Gibson, 2002;Lee, Lee, & Diwan, 2010;Yeo, Tran, Hikoyeda, & Hinton, 2001), even among younger and better educated Asian Americans (Jones, Chow, & Gatz, 2006). Stigma and shame attached to dementia are especially stronger among Asian American than African American, Latino, and/or White older adults (Ayalon & Areán, 2004;Hinton, Guo, Hillygus, & Levkoff, 2000;Jones et al 2006;Lee et al, 2010;Mahoney, Cloutterbuck, Neary, & Zhan, 2005;Yeo et al, 2001).…”

Section: Introductionmentioning

confidence: 99%

Causal Attributions of Dementia Among Korean American Immigrants

Lee

Diwan

Yeo

2010

Journal of Gerontological Social Work

View full text Add to dashboard Cite

To better understand conceptualizations of dementia, this study explored causal attributions of dementia among 209 Korean Americans, using a self-administered questionnaire in Korean. Findings show that Korean Americans endorsed various causal attributions. Factor analysis yielded 3 dimensions of their attributions including psychological, physical/environmental, and cognitive/social. Bivariate analyses showed that younger age and higher education were related to more physical/environmental attributions, and younger age was related to more cognitive/social attributions. The study provides an understanding of causal attributions of dementia that practitioners need to understand to provide culturally competent practice and highlights a need to customize public education messages by specific ethnic groups.

show abstract

Section: Introductionmentioning

confidence: 99%

Causal Attributions of Dementia Among Korean American Immigrants

Lee

Diwan

Yeo

2010

Journal of Gerontological Social Work

View full text Add to dashboard Cite

show abstract

“…However, it has been noticed that dementia may be more prevalent in certain ethnic groups compared to others (e.g., Adelman et al 2011;Demirovic et al 2003;Nielsen 2011), and the issue is further complicated by the fact that older people of a foreign descent are less frequent patients in memory clinics, than native Swedes. The reasons for this are multiple, ranging from language barriers, not knowing what services are available, to various conceptualizations of dementia conditions, e.g., that symptoms are a natural part of aging (e.g., Dilworth-Anderson and Gibson 2002).…”

mentioning

confidence: 99%

‘There’s a letter called ef’ on Challenges and Repair in Interpreter-Mediated Tests of Cognitive Functioning in Dementia Evaluations: A Case Study

Plejert

Antelius

Yazdanpanah

et al. 2015

J Cross Cult Gerontol

View full text Add to dashboard Cite

In the Scandinavian countries Sweden, Denmark, Norway, and Finland, the number of first generation migrants reaching an old age, who will be in need of age-related health-care, is rapidly increasing. This situation poses new demands on health-care facilities, such as memory clinics, where patients with memory problems and other dementia symptoms are referred for examination and evaluation. Very many elderly people with a foreign background require the assistance of an interpreter in their encounter with health-care facilities. The use of, and work by an interpreter is crucial in facilitating a smooth assessment. However, interpreters, clinicians, as well as patients and their companions, may be faced with many challenges during the evaluation procedure. The aim of this case-study is to highlight some of the challenges that occur in relation to a specific activity within the dementia evaluation, namely the test of cognitive functioning. Special attention will be paid to the phenomenon 'repair', i.e., participants' joint attempts to solve upcoming difficulties during the course of interaction. Results show that sources of trouble may be related to the lack of cultural, linguistic, and educational adaptation of the test to the patient, and to interpreter and clinician practises. Findings will be discussed in terms of test-validity, clinician and interpreter training, and the institutional goals and constraints of the dementia evaluation. The methodology Conversation Analysis has been used to conduct a highly detailed analysis of participants' practices and actions during the administration of the test.

show abstract

“…There is evidence that ethnicity and cross-cultural differences can influence people's understandings of dementia (e.g. Dilworth-Anderson & Gibson, 2002;Gray et al, 2009;Hinton & Levkoff, 1999). Future research could explore illness representations in a more ethnically diverse group of caregivers and consider cross-cultural differences.…”

Section: Discussionmentioning

confidence: 99%

Illness representations in caregivers of people with dementia

Quinn

Jones

Clare

2016

Aging & Mental Health

View full text Add to dashboard Cite

Objectives: Illness representations shape responses to illness experienced by the self or by others. The illness representations held by family members of those with long-term conditions such as dementia influence their understanding of what is happening to the person and how they respond and provide support. The aim of this study is to explore components of illness representations (label, cause, control and timeline) in caregivers of people with dementia. Method: This was an exploratory study; the data reported came from the Memory Impairment and Dementia Awareness Study (MIDAS). Data from semi-structured interviews with 50 caregivers of people with dementia were analysed using content analysis. Results: The majority of caregivers gave accounts that appeared to endorse a medical/diagnostic label, although many used different terms interchangeably. Caregivers differentiated between direct causes and contributory factors, but the predominant explanation was that dementia had a biological cause. Other perceived causes were hereditary factors, ageing, lifestyle, life events and environmental factors. A limited number of caregivers were able to identify things that people with dementia could do to help manage the condition, while others thought nothing could be done. There were varying views about the efficacy of medication. In terms of timeline, there was considerable uncertainty about how dementia would progress over time. Conclusion: The extent of uncertainty about the cause, timeline and controllability of dementia indicated that caregivers need information on these areas. Tailored information and support taking account of caregivers' existing representations may be most beneficial.

show abstract

The Cultural Influence of Values, Norms, Meanings, and Perceptions in Understanding Dementia in Ethnic Minorities

Cited by 196 publications

References 18 publications

Causal Attributions of Dementia Among Korean American Immigrants

Causal Attributions of Dementia Among Korean American Immigrants

‘There’s a letter called ef’ on Challenges and Repair in Interpreter-Mediated Tests of Cognitive Functioning in Dementia Evaluations: A Case Study

Illness representations in caregivers of people with dementia

Contact Info

Product

Resources

About