The dermlep study I: results of prospective nation-wide survey of the number &amp; Profile of leprosy patients seen by dermatologists in India

Rao, P Narasimha; Rathod, Santoshdev P; Suneetha, Sujai; Dogra, Sunil; Gupta, Sunil; Vora, Rita V; Kamoji, Shushruth; Tambe, Swagta

doi:10.4103/idoj.idoj_466_20

Cited by 6 publications

(3 citation statements)

References 22 publications

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“…This study was part of the DermLep study, a nationwide survey carried out to estimate the number and profile of leprosy patients presenting to dermatologists in India and the leprosy services provided to them, the results and observations of which are already published. [ 3 4 ] A predesigned questionnaire was provided to dermatologists from all over the country between August 2017 and September 2018. It had 14 questions and was administered to the 3701 leprosy patients seen in their clinics/institutes during the study period.…”

Section: Methodsmentioning

confidence: 99%

Dermlep Study Part 3

Rao

Suneetha

Rathod

et al. 2022

Indian Dermatology Online Journal

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Introduction: Presently the leprosy program has no defined surveillance protocols for patients who complete the fixed duration multidrug therapy and are released from treatment (RFT). Hence, the information about the post-RFT events in these patients is sparse and qualitative and quantitative data regarding their health care requirements is missing. During the DermLep survey carried out by the Indian Association of Dermatologists,Venereologists and Leprologists (IADVL), a number of patients presented to dermatologists during the post RFT period for a variety of symptoms. This paper analyses the events in these patients during the post RFT period. Results: Out of a total of 3701 leprosy patients who presented to 201 dermatologists across India during the DermLep survey, 708 (26.2%) were in the post RFT period (488 males; 220 females). Of these, 21% were PB and 79% MB patients as per their treatment records. Majority were in the age group of 31-59 years (55.5%); however, a significant proportion of them (20.7%) were elderly (>60 years). Majority of the patients (45.5%) presented within the first year of RFT with variable symptoms; 28% were between 1-5 years, 5.5% between 5-10 years; and 11.0% presented more than 10 years after RFT. Most common presenting complaint being persistent skin lesions as perceived by patients in 21.2%, followed by neuritis in 14.5%; trophic ulcers in 13.8%; deformities in 67 (11.8%); lepra reactions in 66 (11.6%); and recurrence of original symptoms in 6.7%. Conclusion: The DermLep Surve y highlights the importance of ‘post RFT’ patients as an important subset of leprosy patients who visit dermatologists for various health related issues. The most common complaints in this subset were active/persistent skin lesions, lepra reactions and neuritis. In these patients, who are a sub-group of ‘persons affected with leprosy’ the disease related issues can persist for many years post RFT. Hence, it is important to provide services in the programme to monitor and manage these complications for the prevention of impairments, disability and the related social issues.

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Section: Methodsmentioning

confidence: 99%

Dermlep Study Part 3

Rao

Suneetha

Rathod

et al. 2022

Indian Dermatology Online Journal

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“…Without registration, these patients go unreported, leading to a mismatch in the actual and reported number of cases in the country. [ 10 ] Finally, there is no facility for deletion of patients, either after completion of treatment or death, and no option to reopen a case treated in the past, thus making the numbers only cumulative and not representative of the actual active disease burden, affecting the quality and comparability of data collected.…”

Section: Challenges Of Nikusthmentioning

confidence: 99%

Recording of leprosy cases in India: Need for a user-friendly and effective app

Bahunuthula

Varala

Rao

et al. 2022

Indian Dermatol Online J

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“…Private practitioners in India are playing a major role in diagnosing and treating leprosy patients, seeing an extra estimated 40% of patients. 14 Mithal Jadav reported on his experience of seeing leprosy patients over many years. He used standard length regimens with good outcomes.…”

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confidence: 99%

Leprosy workers in the 21st century need to focus on “Better knowledge, Early diagnosis and Improved care”, the theme of the International Leprosy Congress in Hyderabad, 2022

Lockwood

Darlong²

2023

LEPROSY

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We report on the 21st International Leprosy Congress held in Hyderabad in November 2022, with the theme "Better Knowledge -Early diagnosis -Improved care". It was hosted by the International Leprosy Association, with support from the Indian Association of Leprologists; the Indian Association of Dermatologists, Venereologists and Leprologists; and the Indian National Elimination Programme, as well as the World Health Organisation and ILEP members.This hybrid Congress had both physical and virtual sessions with large number of symposia, lead talks, paper presentations, poster and short video presentations.There were 8 plenary sessions, 72 faculty abstracts, 423 oral papers, 20 papers given different awards and 457 e-posters. Topics covered were clinical aspects (234), diagnostics (6) disability and rehabilitation (96) epidemiology and control (198) laboratory aspects (140), miscellaneous (49), programmatic management (8), rehabilitation, both social and physical (6), social aspects (132), surgery (1) and therapeutics (57). There were 1050 physical delegates and 450 people attended electronically. Delegates came from 56 countries with an age range of 25-75 years.The abstracts are available at https://ilc.abstracts.mediknit.org/ (https://doi.org/10.57202/ ILC2022).

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The dermlep study I: results of prospective nation-wide survey of the number & Profile of leprosy patients seen by dermatologists in India

Cited by 6 publications

References 22 publications

Dermlep Study Part 3

Dermlep Study Part 3

Recording of leprosy cases in India: Need for a user-friendly and effective app

Leprosy workers in the 21st century need to focus on “Better knowledge, Early diagnosis and Improved care”, the theme of the International Leprosy Congress in Hyderabad, 2022

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