The development and feasibility of an online aphasia group intervention and networking program – TeleGAIN

Pitt, Rachelle; Theodoros, Deborah; Hill, Anne J.; Russell, Trevor

doi:10.1080/17549507.2017.1369567

Cited by 42 publications

(22 citation statements)

References 42 publications

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“…A recent study in aphasia has demonstrated the feasibility of delivering online group therapy to people with aphasia living in their own homes (Pitt et al . ). In this study, multi‐point videoconferencing was used to connect to participants in their homes.…”

Section: Discussionmentioning

confidence: 97%

Technology‐enabled management of communication and swallowing disorders in Parkinson's disease: a systematic scoping review

Theodoros

Aldridge

Hill

et al. 2018

Intl J Lang & Comm Disor

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Research evidence supporting technology-enabled management of the communication and swallowing disorders in PD is limited and predominantly low in quality. The treatment of the speech disorder online is the most developed aspect of the technology-enabled management pathway. Future research needs to address technology-enabled management of cognitive-communication and swallowing disorders and the use of a more diverse range of technologies and management approaches to optimize SLT service delivery to people with PD.

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Section: Discussionmentioning

confidence: 97%

Technology‐enabled management of communication and swallowing disorders in Parkinson's disease: a systematic scoping review

Theodoros

Aldridge

Hill

et al. 2018

Intl J Lang & Comm Disor

Self Cite

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“…The therapy was delivered to groups of four participants using an Adobe Connect video conferencing platform. A pilot study and mixed methods phase 2 trial showed that TeleGAIN was feasible [35] and positively perceived by those who delivered the intervention [37]. Those who received TeleGAIN made significant improvements on a range of measures, including the Assessment of Living with Aphasia and the Comprehensive Aphasia Test [36].…”

Section: Introductionmentioning

confidence: 99%

A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality

et al. 2020

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About a third of strokes cause aphasia, or language loss, with profound consequences for the person's social participation and quality of life. These problems may be mitigated by group social support. But this intervention is not available to all individuals. This study investigated whether it is feasible to deliver group social support to people with aphasia via a multiuser , virtual reality platform. It also explored the indicative effects of intervention and the costs. Intervention aimed to promote wellbeing and communicative success. It enabled participants to form new social connections and share experiences of living with aphasia. It comprised 14 sessions delivered over 6 months and was led by community based coordinators and volunteers. Feasibility measures comprised: recruitment and retention rates, compliance with intervention and assessment of treatment fidelity. Effects of intervention were explored using a waitlist randomised controlled design, with outcome measures of wellbeing, communication, social connectedness and quality of life. Two intervention groups were randomised to an immediate condition and two were randomised to a delayed condition. The main analysis explored scores on the measures between two time points, between which those in the immediate condition had received intervention, but those in the delayed group had not (yet). A comprehensive approach to economic data collection ensured that all costs of treatment delivery were recorded. Feasibility findings showed that the recruitment target was met (N = 34) and 85.3% (29/34) of participants completed intervention. All groups ran the 14 sessions as planned, and participants attended a mean of 11.4 sessions (s.d. 2.8), which was 81.6% of the intended dose. Fidelity checking showed minimal drift from the manualised intervention. No significant change was observed on any of the outcome measures, although the study was not powered to detect these. Costs varied across the four groups, from £7,483-£12,562 British Pounds Sterling ($10,972-$18,419 US dollars), depending on travel costs, the relative contributions of volunteers and the number of hardware loans that were needed. The results suggest that a larger trial of remote group support,

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“…Growing evidence supports the feasibility of delivering traditional face-to-face therapy interventions via a telehealth platform (e.g., Hall et al, 2013;Pitt et al, 2018Pitt et al, , 2019). In the current study, a storytelling therapy delivered via the online platform, EVA Park, appeared to be feasible and resulted in improvements of direct measures of therapy including story content, story grammar, and argument structure.…”

Section: Discussionmentioning

confidence: 99%

Adapting therapy for a new world: storytelling therapy in EVA Park

et al. 2020

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Background: Storytelling is fundamental to human communication yet is under-represented in aphasia therapy research and clinical practice. Access to care may be one obstacle; in the broader healthcare context, remote modes of treatment delivery can increase individuals' access to care. EVA Park is a highly novel, online platform designed with people with aphasia that has shown capacity to improve aspects of language and communication. Aims: This study explored whether it is feasible to deliver a storytelling intervention in EVA Park and whether therapy brought about improvements in the content and organisation of their narratives. Changes in functional communication and technology use were also examined. Methods and procedures: In a pilot feasibility study, three individuals with aphasia were recruited in the UK and Australia. Over five weeks, participants received 20 hours of therapy in EVA Park, consisting of three weekly sessions with a speech therapist and one weekly session in which the participant told the story to a volunteer who was blinded to the content of their story. A repeated-measures, case series design was used to evaluate therapy. The primary measure assessed the content of narratives elicited by novel video stimuli twice before and twice after therapy. Secondary measures investigated structural features of the video narratives and of personal narratives. Functional communication was assessed with the Communication Activities of Daily Living assessment, and technology use was probed via a Technology Screen. Outcomes and results: Delivery of storytelling therapy via EVA Park was feasible; technology challenges arose and were resolved using multiple strategies. Following therapy, participants' storytelling improved in content, with a large effect size for the group, and in structure. Generalisation to personal narratives was not observed. Some improvements were seen in functional communication. Conclusions: Storytelling therapy delivered via an online platform is feasible and may improve the content and organisation of participants' storytelling, with some evidence of generalisation to functional communication.

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The development and feasibility of an online aphasia group intervention and networking program – TeleGAIN

Abstract: TeleGAIN appeared to be feasible and acceptable, however the study highlighted issues related to technology, clinical implementation and participant-specific factors that should be addressed prior to a larger trial.

Cited by 42 publications

References 42 publications

Technology‐enabled management of communication and swallowing disorders in Parkinson's disease: a systematic scoping review

Technology‐enabled management of communication and swallowing disorders in Parkinson's disease: a systematic scoping review

A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality

Adapting therapy for a new world: storytelling therapy in EVA Park

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