The development and implementation of a volunteer lay navigation competency framework at an outpatient cancer center

Lorhan, Shaun; Wright, Michelle L.; Hodgson, Sally; Westhuizen, Michael van der

doi:10.1007/s00520-014-2238-8

Cited by 16 publications

(10 citation statements)

References 21 publications

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“…10 What is known is that there are nearly half a million hospice and palliative care volunteers in the United States 11 and 125,000 in the United Kingdom. 12 Palliative care volunteers have traditionally been associated with specialist palliative care provision, providing support in administrative and patient-related roles 13,14 across a variety of settings, including at home, in stand-alone hospices and specialist palliative care units. What is less common is the support volunteers may provide to those who receive care in inpatient hospital settings.…”

Section: Introductionmentioning

confidence: 99%

‘It’s not what they were expecting’: A systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

Bloomer

Walshe

2020

Palliat Med

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Background: Volunteers make a major contribution to palliative care but little is known specifically about hospital palliative care volunteers. Aim: The aim of this study was to understand the role and experience of hospital palliative care volunteers. Design: Systematic review and narrative synthesis. Data sources: CINAHL, Embase, Medline, PsycINFO, PubMed and three dissertation databases were searched from inception to June 2019. A forward and backward search of included papers in key journals was also undertaken. Records were independently assessed against inclusion criteria by authors. Included papers were assessed for quality, but none were excluded. Results: In total, 14 papers were included. Hospital palliative care volunteers were mostly female, aged above 40 years, and training varied considerably. Volunteers faced unique challenges in supporting dying patients due to the nature of hospital care, rapid patient turnover and the once-off nature of support. Volunteer roles were diverse, with some providing hands-on care, but most focused on 'being with' the dying patient. Volunteers were appreciated for providing psychosocial support, seen as complementary to, rather than replacing the work of health professionals. Given volunteers were often required to work across multiple wards, establishing positive work relationships with health professionals was challenging. Divergent views about whether the volunteer was part of or external to the team impacted volunteers' experience and perceptions of the value of their contribution. Conclusion: Hospital palliative care volunteers face unique challenges in supporting terminally ill patients. Volunteer support in hospital settings is possible and appropriate, if sufficient support is available to mitigate the challenges associated with complex, high-acuity care. What is already known about the topic?• • The demand for palliative care and hospice services worldwide is increasing, as a result of an ageing population and rising rates of chronic illness. • • Volunteers are known for their positive contribution to hospice and palliative care services worldwide.• • Volunteers have traditionally provided support in administrative and patient-related roles across a variety of settings, including at home, in stand-alone hospices and specialist palliative care units, and through palliative care services and organisations.Palliative Medicine 34 (5)

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Section: Introductionmentioning

confidence: 99%

‘It’s not what they were expecting’: A systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

Bloomer

Walshe

2020

Palliat Med

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“…Whilst such support was traditionally in non-patient facing roles in many countries, care for those with cancer and at the end of life is an area where volunteers are increasingly being used in patient facing roles [2, 5–7], especially providing psychosocial care [8–11]. …”

Section: Introductionmentioning

confidence: 99%

“…Volunteers are distinctively different from paid providers, with definitions emphasising the free choice to give unpaid time to benefit others [ 3 , 4 ]. Whilst such support was traditionally in non-patient facing roles in many countries, care for those with cancer and at the end of life is an area where volunteers are increasingly being used in patient facing roles [ 2 , 5 – 7 ], especially providing psychosocial care [ 8 – 11 ].…”

Section: Introductionmentioning

confidence: 99%

‘Being with’ or ‘doing for’? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

Dodd

Hill²,

Ockenden³

et al. 2018

Support Care Cancer

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PurposeTo explore the perspectives of people anticipated to be in their last year of life, family carers, volunteers and staff on the impacts of receiving a volunteer-provided befriending service. Patient participants received up to 12 weeks of a volunteer-provided befriending intervention. Typically, this involved one visit per week from a trained volunteer. Such services complement usual care and are hoped to enhance quality of life.MethodsMultiple case study design (n = 8). Cases were end-of-life befriending services in home and community settings including UK-based hospices (n = 6), an acute hospital (n = 1) and a charity providing support to those with substance abuse issues (n = 1). Data collection incorporated qualitative thematic interviews, observation and documentary analysis. Framework analysis facilitated within and across case pattern matching.ResultsEighty-four people participated across eight sites (cases), including patients (n = 23), carers (n = 3), volunteers (n = 24) and staff (n = 34). Interview data are reported here. Two main forms of input were described—‘being there’ and ‘doing for’. ‘Being there’ encapsulated the importance of companionship and the relational dynamic between volunteer and patient. ‘Doing for’ described the process of meeting social needs such as being able to leave the house with the volunteer. These had impacts on wellbeing with people describing feeling less lonely, isolated, depressed and/or anxious.ConclusionImpacts from volunteer befriending or neighbour services may be achieved through volunteers taking a more practical/goal-based orientation to their role and/or taking a more relational and emotional orientation. Training of volunteers must equip them to be aware of these differing elements of the role and sensitive to when they may create most impact.Trial RegistrationISRCTN12929812

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“…The activities described in the literature are various; from patient monitoring [ 5 ]; overcoming barriers to accessing the healthcare (e.g., financial, legal, administrative) [10; 13–14]; to patient education and emotional support (e.g., information, advice) [ 18 , 19 ]. Furthermore, navigator profiles differ depending on the activities performed [ 17 , 20 , 21 ]. Wells et al [ 16 ] show in their literature review that while navigators could be nurses or nurse practitioners, they could also be lay navigators, social workers, health educators or cancer survivors.…”

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confidence: 99%

Analysis of nurse navigators’ activities for hospital discharge coordination: a mixed method study for the case of cancer patients

Yatim

Cristofalo

Ferrua

et al. 2016

Support Care Cancer

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BackgroundModern cancer care requires the development of clinical pathways to enhance coordination, but there are few descriptive studies about the content of coordination activities. More specifically, little is known about hospital discharge coordination, although this is seen as a sensitive phase of clinical pathway.PurposeThe purpose of this study was to identify and quantify the categories of activities performed by nurse navigators for hospital discharge coordination.MethodsPatients supported within the Coordinating Outpatient Care department (COC) at Gustave Roussy (Villejuif, France). Study conducted over two consecutive phases (Feb-September 2014): (1) a qualitative phase to identify the categories of coordination activities (interviews with patients plus, focus groups with nurse navigators—NNs); (2) a quantitative phase to quantify the relative share of each category. The calls received through the telephone platform of COC (made by both patients and primary care providers) were systematically reported (caller; reason for the call; procedure performed) and then analyzed.ResultsQualitative phase: 17 interviews with patients, plus 2 focus groups with NNs. Quantitative phase: 543 calls analyzed. The callers were patients or their relatives (38 %), private nurses (35 %), medical device providers (20 %), and other primary care providers (e.g., pharmacists, family physicians) (7 %). Five categories of coordination activities identified: (F1) Patient monitoring (29 %); (F2) Helping to navigate (24 %); (F3) Managing technical problems (17 %); (F4) Explaining care protocols (16 %); (F5) Collecting and transmitting the patient medical record information (14 %).ConclusionsThe majority of requirements are related to organizational issues (e.g., navigation, lack of information, appointments). Nurse navigators’ training and qualification must therefore combine both clinical and managerial skills.

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The development and implementation of a volunteer lay navigation competency framework at an outpatient cancer center

Abstract: By incorporating the lessons we have learned from this study, we believe that the lay navigation competency framework serves as a useful model for selecting, training, and supporting competent navigators.

Cited by 16 publications

References 21 publications

‘It’s not what they were expecting’: A systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

‘It’s not what they were expecting’: A systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

‘Being with’ or ‘doing for’? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

Analysis of nurse navigators’ activities for hospital discharge coordination: a mixed method study for the case of cancer patients

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