The development and validation of instruments to measure dignity‐protective continence care for care‐dependent older people in residential aged care facilities: A study protocol

Abstract

Aims To develop and validate two instruments to measure dignity‐protective continence care for care‐dependent older people in residential aged care facilities: one instrument to be completed by care recipients and another for healthcare professionals. Methods The first phase of the project will involve a review of literature to identify the attributes of “dignity‐protective continence care” for older people, which will be used to design the initial drafts of the instruments. Thereafter the Delphi survey technique will be used to establish the face and content validity of the draft instruments with three purposive samples; (a) care recipients (care‐dependent older people with decisional capacity), (b) formal carers (nurses and personal care workers from residential aged care facilities, and (c) healthcare professionals with gerontological expertize in the management of incontinence. After instrument development, a large cross‐sectional survey of care recipients and formal carers will be conducted to establish the internal consistency and construct validity of the instruments. This will be followed by a series of tests to establish their test‐retest reliability. Conclusion The completed research will result in two reliable and valid instruments that will support broader efforts to ensure that care practices in residential aged care facilities do not violate the dignity of care‐dependent older people with continence care needs, and allow care partners and providers to act upon the results.

Patient dignity and dignified care: A qualitative description of hospitalised older adults perspectives

“…The unique factors identified in the Ghanaian context were family members’ involvement in physical care influenced by cultural and religious beliefs, environmental barriers to privacy and dignity and inadequate involvement in decision making. These factors can inform concept elicitation for the development of a culturally specific PROM for measuring dignified nursing care during acute hospitalisation in Ghana since the majority of dignity‐related PROMs in the literature have been validated for patients in long‐term care (Jacelon & Choi, 2014; Oosterveld‐Vlug et al, 2014; Ostaszkiewicz et al, 2020; Periyakoil et al, 2009; Vlug et al, 2011) settings, and no dignity‐specific PROM has been identified that has been developed and validated in low‐ and middle‐income countries such as Ghana.…”

Methodological quality of dignity‐related patient reported outcome measures used in acute hospital settings: A systematic review using the COSMIN methodology

“…Nearly all the existing dignity‐related PROMs are self‐rated scales that can be used to elicit patients' views about their dignity and/or satisfaction with dignified care during an episode of hospital admission. In contrast, dignity‐related PROMs have been validated for patients in long‐term care (Oosterveld‐Vlug et al, 2014; Ostaszkiewicz et al, 2020; Vlug et al, 2011), end‐of‐life care (Chochinov et al, 2008; Periyakoil et al, 2009; Vlug et al, 2011) and community settings (Jacelon & Choi, 2014). PROMs designed for long‐term care, or community settings may not be valid for use in acute hospital settings due to differences in geodemographic characteristics between these settings.…”

Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

“…A recent systematic review on patient‐reported dignity during acute hospitalization demonstrates few quantitative studies on hospitalized older adults' dignity and paucity of suitable validated dignity‐related PROMs for hospitalized older adults (Fuseini, Ley, et al, 2022), particularly for the Ghanian population. The few existing dignity‐related PROMs were developed and validated for patients in long‐term care (Dong et al, 2021; Oosterveld‐Vlug et al, 2014; Ostaszkiewicz et al, 2020), end‐of‐life care (Chochinov et al, 2008; Periyakoil et al, 2009; Vlug et al, 2011) or for community‐dwelling older adults (Jacelon & Choi, 2014).…”