The Development and Validation of the Islamic Knowledge of Living Organ Donation Knowledge Scale for Measuring Organ Donation Knowledge Among Muslim Communities

Abstract

Introduction: Studies around the world demonstrate that Muslim attitudes toward organ donation are closely tied to religion, but also that Muslim publics suffer from a lack of detailed knowledge about the Islamic perspectives on organ donation. Consequently, organ donation professionals and stakeholders are increasingly addressing knowledge gaps in the Muslim community through educational interventions. Yet, a measurement of Islamic knowledge of organ donation, and thereby the efficacy of such education, is not available. Research Question: To present the development and psychometric evaluation of the Islamic Knowledge of Living Organ Donation scale, designed to measure knowledge of the Islamic ethicolegal stances, and their underlying rationale, regarding living organ donation. Methods: Items were developed based on a review of Islamic juridical perspectives on organ donation, addressed knowledge gaps pervading Muslim communities, and pilot tested. The scale was statistically validated and psychometrically analyzed with a sample of 158 mosque-going Muslims in the United States. Results: The 9-item Islamic Knowledge of Living Organ Donation scale was found to be reliable (Cronbach α: 0.86), unidimensional, independent of religiosity, and predictive of social attitudes toward organ donation. Discussion: The survey can be used to validly assess Islamic knowledge of living organ donation among Muslim communities in research, educational, and clinical settings.

The double gender bias in parental kidney donation among Muslim Arab patients

“…Despite the positive attitude of Islamic thought toward organ donation (Bokek‐Cohen et al, In press), many Muslim Arabs are not aware of the importance of organ donation and also are not sure what are the Islamic stances regarding this issue (Padela et al, 2019, 2020; Tarabeih et al, 2020); hence, it is highly important to educate this public about the positive attitude of Islam toward live organ donation (Bokek‐Cohen et al, In press. We therefore believe that it is important for the nursing staff to enlist the help of Muslim clerics to increase the willingness of fathers to donate a kidney, for sons as well as for daughters.…”

The impact of religiously tailored and ethically balanced education on intention for living organ donation among Muslim Americans

“…A short version of the Everyday Discrimination Scale (5 items) and a healthcare‐oriented adaptation of the original Everyday Discrimination Scale (7 items) were also included 46,59 . Lastly, we assessed biomedical (living donation subscale of the Rotterdam Renal Replacement Knowledge Test; R3KT) 60 and religious (Islamic Knowledge of Living Organ Donation; IK‐LOD) knowledge of organ donation, 61 using pre‐post change in these measures as independent variables.…”