The development of an epilepsy electronic patient portal: Facilitating both patient empowerment and remote clinician‐patient interaction in a post‐COVID‐19 world

Power, Kevin; McCrea, Zita; White, Máire; Breen, Annette; Dunleavy, Brendan; O’Donoghue, Seán I.; Jacquemard, Tim; Lambert, Veronica; El‐Naggar, Hany; Delanty, Norman; Doherty, Colin P.; Fitzsimons, Mary

doi:10.1111/epi.16627

Cited by 31 publications

(34 citation statements)

References 38 publications

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“…As an alternative, telemedicine was frequently discussed and was shown to be practical and effective [26] . Epilepsy Electronic Patient Portal was also proposed to improve seizure care [27] . Another suggestion would be to allocate staggered clinic hours to prevent overcrowding while remaining available to those in need.…”

Section: Discussionmentioning

confidence: 99%

Impact of COVID-19 on quality of life in people with epilepsy, and a multinational comparison of clinical and psychological impacts

Koh

Lim

Fong

et al. 2021

Epilepsy & Behavior

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This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.

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Section: Discussionmentioning

confidence: 99%

Impact of COVID-19 on quality of life in people with epilepsy, and a multinational comparison of clinical and psychological impacts

Koh

Lim

Fong

et al. 2021

Epilepsy & Behavior

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“…Power/Ireland [23] The development of an epilepsy electronic patient portal The system can promote improved patient-clinician partnerships and facilitate patient self-management.…”

Section: IVmentioning

confidence: 99%

COVID-19, de novo seizures, and epilepsy: a systematic review

et al. 2020

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Objective We discuss the evidence on the occurrence of de novo seizures in patients with COVID-19, the consequences of this catastrophic disease in people with epilepsy (PWE), and the electroencephalographic (EEG) findings in patients with COVID-19. Methods This systematic review was prepared according to the recommendations of the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement. MEDLINE, Scopus, and Embase from inception to August 15, 2020 were systematically searched. These key words were used: "COVID" AND "seizure" OR "epilepsy" OR "EEG" OR "status epilepticus" OR "electroencephalography". Results We could identify 62 related manuscripts. Many studies were case reports or case series of patients with COVID-19 and seizures. PWE showed more psychological distress than healthy controls. Many cases with new-onset focal seizures, serial seizures, and status epilepticus have been reported in the literature. EEG studies have been significantly ignored and underused globally. Conclusion Many PWE perceived significant disruption in the quality of care to them, and some people reported increase in their seizure frequency since the onset of the pandemic. Telemedicine is a helpful technology that may improve access to the needed care for PWE in these difficult times. De novo seizures may occur in people with COVID-19 and they may happen in a variety of forms. In addition to prolonged EEG monitoring, performing a through metabolic investigation, electrocardiogram, brain imaging, and a careful review of all medications are necessary steps. The susceptibility of PWE to contracting COVID-19 should be investigated further.

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“…The establishment of the Irish National Epilepsy Electronic Patient Record and the subsequent development of the electronic patient portal (ePortal) is a good example of innovation in digital healthcare in Ireland (Power et al, 2020). This ePortal, Providing Individualised Services and Care in Epilepsy (PiSCES), provides patients living with epilepsy and their clinicians with a means to engage in more personalised models of care.…”

Section: Case Study -Irish National Epilepsy Electronic Patient Recordmentioning

confidence: 99%

“…During the COVID-19 pandemic, the ePortal also facilitated changes in how care is provided (i.e. via telemedicine), improved patient-clinician care, and engendered greater patient self-management (Power et al, 2020). The design of PiSCES provides policymakers with a template in which to design ePortals for other patient populations, or the wider population.…”

Section: Case Study -Irish National Epilepsy Electronic Patient Recordmentioning

confidence: 99%

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Developments in healthcare information systems in Ireland and internationally

Walsh¹,

Domhnaill²,

Mohan³

2021

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The mission of the Economic and Social Research Institute is to advance evidencebased policymaking that supports economic sustainability and social progress in Ireland. ESRI researchers apply the highest standards of academic excellence to challenges facing policymakers, focusing on 12 areas of critical importance to 21st Century Ireland.The Institute was founded in 1960 by a group of senior civil servants led by Dr T.K. Whitaker, who identified the need for independent and in-depth research analysis to provide a robust evidence base for policymaking in Ireland.Since then, the Institute has remained committed to independent research and its work is free of any expressed ideology or political position. The Institute publishes all research reaching the appropriate academic standard, irrespective of its findings or who funds the research.The quality of its research output is guaranteed by a rigorous peer review process. ESRI researchers are experts in their fields and are committed to producing work that meets the highest academic standards and practices.The work of the Institute is disseminated widely in books, journal articles and reports. ESRI publications are available to download, free of charge, from its website. Additionally, ESRI staff communicate research findings at regular conferences and seminars.The ESRI is a company limited by guarantee, answerable to its members and governed by a Council, comprising 14 members who represent a cross-section of ESRI members from academia, civil services, state agencies, businesses and civil society. The Institute receives an annual grant-in-aid from the Department of Public Expenditure and Reform to support the scientific and public interest elements of the Institute's activities; the grant accounted for an average of 30 per cent of the Institute's income over the lifetime of the last Research Strategy. The remaining funding comes from research programmes supported by government departments and agencies, public bodies and competitive research programmes.

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The development of an epilepsy electronic patient portal: Facilitating both patient empowerment and remote clinician‐patient interaction in a post‐COVID‐19 world

Cited by 31 publications

References 38 publications

Impact of COVID-19 on quality of life in people with epilepsy, and a multinational comparison of clinical and psychological impacts

Impact of COVID-19 on quality of life in people with epilepsy, and a multinational comparison of clinical and psychological impacts

COVID-19, de novo seizures, and epilepsy: a systematic review

Developments in healthcare information systems in Ireland and internationally

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