The Development of Practical Guidelines for the Care of Deceased Children Is Perhaps a Utopia?

Benini, Franca; Ferrante, Anna; Po, Chiara; Jankovic, Momcilo

doi:10.1001/archpediatrics.2011.889

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“…Specific training for caregivers (7, 8), communication about the clinical situation (9, 10), cultural and social factors (4, 11) as well as ethical and legal issues (4, 12-13-14) are all important in modulating the approach and management of end-of-life situations in children, since they influence the decisional and active roles of the child, family and caregivers, and have a profound impact on the quality of life and death of the child, on personal memories, and on the long-term outcome of survivors. Many documents of an ethical nature concerning the child's rights and his or her legal and social roles are also available (15-40).…”

Section: Introductionmentioning

confidence: 99%