2018
DOI: 10.1007/s13347-018-0319-1
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The Digital Phenotype: a Philosophical and Ethical Exploration

Abstract: The concept of the digital phenotype has been used to refer to digital data prognostic or diagnostic of disease conditions. Medical conditions may be inferred from the time pattern in an insomniac's tweets, the Facebook posts of a depressed individual, or the web searches of a hypochondriac. This paper conceptualizes digital data as an extended phenotype of humans, that is as digital information produced by humans and affecting human behavior and culture. It argues that there are ethical obligations to persons… Show more

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Cited by 36 publications
(44 citation statements)
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“…To analyze the issue of privacy and confidentiality in Big Data, we refer to the concept of the “extended digital phenotype” (Loi, 2019 ). This interpretation of Dawkins’s idea considers personal medical information part of an individual; therefore, data protection and ownership frameworks should have the same moral consideration as, for instance, biological tissues.…”
Section: Privacy and Confidentialitymentioning
confidence: 99%
“…To analyze the issue of privacy and confidentiality in Big Data, we refer to the concept of the “extended digital phenotype” (Loi, 2019 ). This interpretation of Dawkins’s idea considers personal medical information part of an individual; therefore, data protection and ownership frameworks should have the same moral consideration as, for instance, biological tissues.…”
Section: Privacy and Confidentialitymentioning
confidence: 99%
“…Just as we have unique protections for certain populations (particular ethnic groups, children, incarcerated persons, etc. ), we need to understand how these new digital phenotypes can introduce biases and harm onto a Facebook user (Loi 2019). The potential harms are furthered when we are expecting this data to become actionable and confer a type of protection or support to an individual or population.…”
Section: Referencesmentioning
confidence: 99%
“…1. (Perpetual) Control -the continued ownership and control of personal health data and digital phenotypes, the digital traces that have value towards specific health outcomes, in perpetuity (Loi, 2019). 2.…”
Section: Negotiabilitymentioning
confidence: 99%