The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review

Torossian, Maral

doi:10.1177/14713012211021722

Cited by 13 publications

(6 citation statements)

References 42 publications

(77 reference statements)

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“…When nursing care is provided routinely, under time pressure and staff shortages (Dierckx de Casterlé et al, 2020 ) and less compassionate care (Nathoo et al, 2021 ), the dignity of older people confined to bed is severely impaired. Routine care and unmet needs can result in depersonalized care experiences (Torossian, 2021 ). Furthermore, nursing management must prevent paternalistic nursing practices that foster a sense of dependence, lack of decision‐making control and involvement in daily activities.…”

Section: Discussionmentioning

confidence: 99%

“…Some research has been conducted exploring the dignity of older people in nursing homes (Oosterveld‐Vlug et al, 2014 ). However, this focus has been disease related (Torossian, 2021 ) or end of life oriented (Caspari et al, 2014 ). In Slovenia, nursing care for older people is organized as a community nursing care, home care, home care assistance, personal assistant care, day‐care in nursing homes, long‐term care and nursing care in nursing homes (Črnak Meglič et al, 2014 ).…”

Section: Introductionmentioning

confidence: 99%

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Experiences with dignity among older people confined to beds living in a nursing home: A qualitative descriptive study

Fekonja

Kmetec

Lorber

et al. 2022

J Nursing Management

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Aim: The aim of this study is to explore the concept of dignity from the experience of older people with limited mobility and confined to beds while living in a nursing home.Background: Nursing staff have an important impact on the dignity of those older people confined to beds in nursing homes. Individuals' uniqueness with respecting dignity should be ensured.Methods: A qualitative descriptive study was conducted. The study was carried out with 19 older people who were immobile and confined to bed and living in nursing homes. The individual in-depth interviews were conducted between July and October 2021. Inductive thematic analysis was used to synthesize data. Results:The main theme 'Dignity of older people confined to bed' emerged from subthemes 'Emotions', 'Lived experience' and 'Failure to maintain care'. The participants expressed their dissatisfaction towards the nursing staff's disrespectful care, which evoked feelings of insignificance and inferiority. Conclusion:Undignified and disrespectful nursing care can cause feelings of suffering, sadness and anger in older people confined to their beds. Nurses must listen to this group of older people and learn from their experiences. Compassionate, personcentred care with kindness and empathy should be provided by all those providing and receiving care in nursing homes.Implications for Nursing Management: To provide dignified care, nursing staff must understand the importance of person-centred, individually oriented nursing care for older people living with immobility in nursing homes.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Experiences with dignity among older people confined to beds living in a nursing home: A qualitative descriptive study

Fekonja

Kmetec

Lorber

et al. 2022

J Nursing Management

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“…People with more severe dementia who are unable to give informed consent for treatments are vulnerable to infantilizing or depersonalizing care, especially in high-task-load, time-pressured environments (e.g., other people conversing as if the person with dementia were not in the room, performing care tasks without efforts to explain what is happening or seek assent). 108,109 Clinicians must take care to ensure that communication and interactions with PLWD uphold their dignity and demonstrate respect for their personhood (e.g., warm eye contact, active listening, sharing information). To enable maximum opportunity for PLWD to be included and involved in decision making and to access cancer care, personalized adjustments are required to information provision, decision-making processes, and treatment and care delivery.…”

Section: Ethical Challenges Of Providing Cancer Care To People Living...mentioning

confidence: 99%

“…Dementia threatens patient autonomy and equality of access to health care, inherently and potentially through intensified concern to protect PLWD from harm. People with more severe dementia who are unable to give informed consent for treatments are vulnerable to infantilizing or depersonalizing care, especially in high–task‐load, time‐pressured environments (e.g., other people conversing as if the person with dementia were not in the room, performing care tasks without efforts to explain what is happening or seek assent) 108,109 . Clinicians must take care to ensure that communication and interactions with PLWD uphold their dignity and demonstrate respect for their personhood (e.g., warm eye contact, active listening, sharing information).…”

Section: Cancer Treatment Decision Making and Delivery For People Liv...mentioning

confidence: 99%

Cancer care for people with dementia: Literature overview and recommendations for practice and research

Ashley

Surr

Kelley

et al. 2022

CA A Cancer J Clinicians

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As many countries experience population aging, patients with cancer are becoming older and have more preexisting comorbidities, which include prevalent, age-related, chronic conditions such as dementia. People living with dementia (PLWD) are vulnerable to health disparities, and dementia has high potential to complicate and adversely affect care and outcomes across the cancer trajectory. This report offers an overview of dementia and its prevalence among patients with cancer and a summary of the research literature examining cancer care for PLWD. The reviewed research indicates that PLWD are more likely to have cancer diagnosed at an advanced stage, receive no or less extensive cancer treatment, and have poorer survival after a cancer diagnosis. These cancer disparities do not necessarily signify inappropriately later diagnosis or lower treatment of people with dementia as aThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

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“… 23–25 Understanding the mechanisms is particularly relevant because there is a risk of undermining the dignity in a person living with dementia through poor quality interactions by care providers. 26 …”

Section: Introductionmentioning

confidence: 99%

Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies

James¹,

Reichelt²,

Shirley³

et al. 2023

CIA

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Objective NICE guidelines recommend non-pharmacological interventions as the first-line approach for the management of behaviours that challenge. Recent work, however, highlights dissatisfaction with the lack of detailed guidance in the national guidelines regarding non-drug interventions. This study examines the views of practitioners regarding non-pharmacological treatments. It further explores perspectives on non-pharmacological strategies used in the management of agitation occurring within episodes of behaviours that challenge. Methods Forty-two experienced practitioners attended a workshop where behaviours that challenge were described as occurring in three phases of agitation, using a framework adapted from the Positive Behaviour Support framework (pre-agitation, triggering and escalating, high level). The participants were asked to populate a template derived from the adapted framework. The completed templates recorded the clinical strategies the participants found useful to (i) prevent the occurrence of agitation, (ii) de-escalate distress and (iii) deal with perceived high levels of agitation. Results The Positive Behaviour Support conceptual framework was perceived by participants as helpful in organising their clinical work. A number of interventions were suggested as preventative strategies: music therapy, doll therapy, physical activity and generic person-centred communication skills to enhance wellbeing. In contrast, de-escalation strategies identified by the participants focused on reducing emotional distress. The approaches for dealing with continued high levels of agitation involved a number of “control and restraint” techniques as well as medication. Conclusion The template allowed specialist multidisciplinary professionals to identify skills for the management of distress and agitated behaviour linked to the respective phase of arousal. The template has scope to guide practitioners to identify the detail needed for the management of behaviours that challenge. The findings have the potential to influence the contents of forthcoming guidelines on alternatives to psychotropics in dementia care.

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The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review

Cited by 13 publications

References 42 publications

Experiences with dignity among older people confined to beds living in a nursing home: A qualitative descriptive study

Experiences with dignity among older people confined to beds living in a nursing home: A qualitative descriptive study

Cancer care for people with dementia: Literature overview and recommendations for practice and research

Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies

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