The Dying and Those Who Care for Them

Rokach, Ami

doi:10.4172/2573-4598.1000101

Cited by 2 publications

(2 citation statements)

References 17 publications

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“…Positive, sometimes transformative (Mota Vargas et al, 2016), experiences are reported by palliative care staff such as compassion satisfaction, an enhanced sense of spirituality, opportunity to live at present and be able to deeply reflect on the meaning and continuity of life (Sinclair, 2011). However, frequent exposure to suffering, death and dying, the complexity of caregiving activities at the end of life (Lindqvist et al, 2012), and the high levels of emotional labour involved in working with the dying (Funk et al, 2017; Rokach, 2015) constitute significant challenges.…”

Section: Work-related Stress and Coping In Palliative Care Staffmentioning

confidence: 99%

Experiences of work-related stress and coping among palliative care staff in South Africa: a qualitative study

Smith¹,

Vasileiou

Kagee

2020

South African Journal of Psychology

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Palliative care staff are exposed to a plethora of work-related stressors that negatively affect their psychological well-being and work engagement. Using qualitative interviews, this study sought to explore the experiences of work-related stress and coping among a multidisciplinary group of 12 palliative care staff employed by a non-governmental hospice in South Africa. Data were analysed using the principles of thematic analysis. Four domains of stressors were implicated in the experience of work-related stress: stressors accruing from the nature of work and were specific to palliative care; stressors relating to working in the community; those deriving from certain encounters with patients and families; and organisational stressors. Broader structural factors pertinent to the socio-political and economic context in South Africa and the perception of palliative care were interwoven with the experience of work-related stress. Receiving social support from co-workers, professionals, and family and friends; accepting limits; setting work–life boundaries; relying on personal resources and reconstructing the hospice in positive ways were coping strategies deployed by staff to manage stress. Arguably much of the experience of work-related stress and coping among palliative care staff in South Africa is similar to that reported in resource-rich contexts. However, the particularities of the broader socio-political and economic environment and its subsequent impact on palliative care organisations appear to augment and expand work-related stress for these practitioners. Deployment of intra-individual and interpersonal coping resources could be supplemented with efforts to address structural factors contributing to the subjective experience of stress.

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Section: Work-related Stress and Coping In Palliative Care Staffmentioning

confidence: 99%

Experiences of work-related stress and coping among palliative care staff in South Africa: a qualitative study

Smith¹,

Vasileiou

Kagee

2020

South African Journal of Psychology

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“…Although estimates of prevalence vary, a notable number of hospice patients experience depression and anxiety, and there are grounds to think such conditions are underreported (Hayes et al, 2017; Irwin et al, 2008; Kozlov et al, 2019). In addition, loneliness and lack of relational connectedness impact hospice patients’ quality of life (Bale et al, 2016; Rokach, 2016; Sawyer et al, 2019; Untas et al, 2011).…”

Section: Introductionmentioning

confidence: 99%

Understanding Experiences in Hospice: Exploring Temporal, Occupational, and Relational Dimensions Using Pictor Technique

et al. 2020

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Temporality, occupation, and relationships are identified as discrete factors that impact quality of life for individuals at the end of life and those around them. However, scholars, practitioners, and educators require insights regarding whether and how interactions between these factors shape this quality of life. This study is framed by an understanding that meaning is negotiated between people through social interaction and occupational engagement in temporal contexts. We conducted in-depth interviews with 9 patients and 10 family members, incorporating the Pictor visual elicitation technique. Analysis was conducted through an iterative process involving open and selective coding. Findings are described as three main processes: (a) experiences of temporal rupture, (b) diminished significance of clock time, and (c) shifts in occupational priorities. Participants’ perspectives may help carers understand how to foster positive temporal experiences and quality of life for patients and those who love them.

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The Dying and Those Who Care for Them

Cited by 2 publications

References 17 publications

Experiences of work-related stress and coping among palliative care staff in South Africa: a qualitative study

Experiences of work-related stress and coping among palliative care staff in South Africa: a qualitative study

Understanding Experiences in Hospice: Exploring Temporal, Occupational, and Relational Dimensions Using Pictor Technique

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