The Effect of a Holistic Care Program on the Reduction of Iron Overload in Patients with Beta-Thalassemia Major: A Randomized Clinical Trial

Arian, Mahdieh; Memarian, Robabeh; Oghazian, Mohammad Bagher; Vakilian, Farveh; Badiee, Zahra

doi:10.5812/ircmj.60820

Cited by 3 publications

(11 citation statements)

References 22 publications

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“…The majority of the studies (n=42) stated the method of randomisation, although this was not clearly stated in n=13 studies 34–37 40 42 45 54 58 64 65 67 83. Twenty-eight studies achieved allocation concealment, however n=19 did not clearly state allocation concealment 27 33 34 36 38 40 42 45 47 54 58 64 65 70 82 83 86 88 91. Blinding of participants was reported in only three studies 35 59 72.…”

Section: Resultsmentioning

confidence: 96%

“…The interventions addressed the following diagnostic groups: n=12 heart failure,24 45–55 n=9 type 2 diabetes (T2D),34 37 38 41 56–59 n=8 chronic obstructive pulmonary disease (COPD),43 48 60–65 n=5 cancer,29 66–69 n=6 multimorbidity,27 39 70–73 n=3 fibromyalgia,42 74 75 n=3 rheumatoid arthritis,76–78 n=2 HIV,79 80 n=1 back pain,81 n=1 inflammatory bowel disease (IBD),40 n=1 osteoarthritis,82 n=1 stroke,83 n=1 chronic pain,35 n=1 dementia,84 n=1 Parkinson’s disease85 and n=1 beta-thalassaemia major 86…”

Section: Resultsmentioning

confidence: 99%

“…Interventions delivered to patients and/or caregivers consisted of information provision, education and training 29–31 35 36 54 57–59 61–64 78 81 82 86 88. The interventions were either individualised and delivered face-to-face56 62 63 or delivered in groups 56 61 81.…”

Section: Resultsmentioning

confidence: 99%

“…62 91 96 Seven studies reported data on unplanned readmissions, emergency room attendance 27 34 64 69 87 93 96 and four studies reported healthcare utilisation, 27 39 72 93 and medications count (change in number of medications taken by the patient). 39 Data on clinical outcomes Clinical outcomes assessed were systolic and diastolic blood pressure, 41 56 57 fasting blood sugar, haemoglobin A1c (HbA1c), 37 56-59 body mass index, haemoglobin, 41 56 lung function forced expiratory volume in 1 s/forced vital capacity ratio, exercise capacity, 63 total cholesterol to high-density lipoprotein cholesterol ratio, 37 serum ferritin, iron level, total iron binding capacity 86 and mortality. 61 63 87 93 Synthesis of the findings We synthesised the findings using methods of narrative synthesis in systematic reviews.…”

Section: Outcomes Assessedmentioning

confidence: 99%

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A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs

et al. 2022

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BackgroundPerson-centred care (PCC) is being internationally recognised as a critical attribute of high-quality healthcare. The International Alliance of Patients Organisations defines PCC as care that is focused and organised around people, rather than disease. Focusing on delivery, we aimed to review and evaluate the evidence from interventions that aimed to deliver PCC for people with serious physical illness and identify models of PCC interventions.MethodsSystematic review of literature using Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. We searched AMED, CINAHL, Cochrane Library, Embase, Medline, PsycINFO, using the following key concepts: patient/person-centred care, family centred care, family based care, individualised care, holistic care, serious illness, chronic illness, long-term conditions from inception to April 2022. Due to heterogeneity of interventions and populations studied, narrative synthesis was conducted. Study quality was appraised using the Joanna Briggs checklist.ResultsWe screened n=6156 papers. Seventy-two papers (reporting n=55 different studies) were retained in the review. Most of these studies (n=47) were randomised controlled trials. Our search yielded two main types of interventions: (1) studies with self-management components and (2) technology-based interventions. We synthesised findings across these two models:Self-management component: the interventions consisted of training of patients and/or caregivers or staff. Some studies reported that interventions had effect in reduction hospital admissions, improving quality of life and reducing costs of care.Technology-based interventions: consisted of mobile phone, mobile app, tablet/computer and video. Although some interventions showed improvements for self-efficacy, hospitalisations and length of stay, quality of life did not improve across most studies.DiscussionPCC interventions using self-management have some effects in reducing costs of care and improving quality of life. Technology-based interventions improves self-efficacy but has no effect on quality of life. However, very few studies used self-management and technology approaches. Further work is needed to identify how self-management and technology approaches can be used to manage serious illness.PROSPERO registration numberCRD42018108302.

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Section: Resultsmentioning

confidence: 96%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Outcomes Assessedmentioning

confidence: 99%

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A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs

et al. 2022

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“…A corneal transplant is recommended for elderly people who have vision problems caused by thinning of the cornea, most often due to keratoconus. A transplant may be considered when less invasive treatments are not an option (Arian, 2018).…”

Section: Introductionmentioning

confidence: 99%

Effect of a Multidisciplinary Educational Course on Health Literacy and Satisfaction of Patients Undergoing Keratoplasty

Ahmed

Omar

Aziz

2021

Egyptian Journal of Health Care

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Background: Keratoplasty is a surgical procedure in which part or all of a damaged or diseased cornea is replaced by healthy corneal tissue from a donor. The study aimed to evaluate the effect of a multidisciplinary education course on the health literacy and satisfaction of patients undergoing keratoplasty. This study was carried out at the Ophthalmology department and outpatient clinics at Assiut University hospital. The sample of the study was a purposive sample of 60 adult and elderly patients (30 study group and 30 for the control group) undergoing corneal transplantation surgery. Tools of data collection included four tools, (1) patient's interview questionnaire sheet, (2) patient's knowledge assessment & observation checklist, (3) health literacy questionnaire, (4) patient satisfaction with nursing care quality questionnaire. The main results of this study revealed the majority of patients in the two groups were diagnosed with keratoconus, performed Full-thickness (penetrating) keratoplasty for optical reasons. There was a highly statistically significant difference between both the study and control of patients regarding health literacy score. Half of the patients in the control group have poor satisfaction level while the majority of the study group patients (83.3%) have a very good satisfaction level post educational course application. There was a positive correlation between patients' knowledge & health literacy and patient satisfaction (P. <0.001). The main recommendation is to establish a patient education center in the ophthalmology department to provide patients with the needed information before performing the keratoplasty.

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Interventions for improving adherence to iron chelation therapy in people with sickle cell disease or thalassaemia

Geneen

Dorée

Estcourt

2023

Cochrane Database of Systematic Reviews

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The Effect of a Holistic Care Program on the Reduction of Iron Overload in Patients with Beta-Thalassemia Major: A Randomized Clinical Trial

Cited by 3 publications

References 22 publications

A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs

A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs

Effect of a Multidisciplinary Educational Course on Health Literacy and Satisfaction of Patients Undergoing Keratoplasty

Interventions for improving adherence to iron chelation therapy in people with sickle cell disease or thalassaemia

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