The Effect of Fatigue and Pain Self- Efficacy on Health-Related Quality of Life Among Patients with Multiple Sclerosis

Adamopoulou, Fevronia; Alikari, Victoria; Zyga, Sofia; Tsironi, Maria; Tzavella, Fotini; Giannakopoulou, Natalia; Theofilou, Paraskevi

doi:10.5455/msm.2019.31.40-44

Cited by 4 publications

(5 citation statements)

References 26 publications

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“…There are four forms of MS, the most common of which are relapsing-remitting MS (RRMS, 85%) and primary progressive MS (PPMS, 10%). Symptoms in MS are unpredictable and variable and include fatigue (80% of patients), abnormal sensations (paresthesias, pain, Lhermitte's sign), motor symptoms (weakness, spasticity spasms), visual dysfunction, tremor, gait impairment, brainstem signs (diplopia, dysphagia, internuclear ophthalmoplegia), cognitive abnormalities, and depression symptoms [7,8]. Fatigue is associated with various health problems and is one of the most common signs of the disease.…”

Section: Introductionmentioning

confidence: 99%

“…If patients can satisfy their daily needs, managing the various symptoms of the disease and coping well with difficulties in everyday life, they will improve their QoL [13]. Studies have reported that fatigue reduces physical stamina, limits social duties, and interferes with performance of responsibilities at work and at home, substantially impacting the QoL of patients with MS [7]. Social relationships of patients with MS are limited as are their daily activities, because they have to take their medications (cortisone, interferon, or monoclonal antibody) [14].…”

Section: Introductionmentioning

confidence: 99%

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Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients

Pădureanu

Albu

Pirici

et al. 2020

JCM

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Multiple sclerosis (MS) is a chronic, severe disease, characterized by a progressive alteration in neuronal transmission, which decreases personal independence and quality of life (QoL). This study aimed to investigate the relationship between QoL and personal autonomy in patients with MS, as well as its correlation with age, educational level, and diseases severity. Twenty-six MS patients were followed-up for six months. All patients completed the 15D questionnaire two times: at T0, when they started a new treatment, and at T1 after six months of treatment. At the end point, all patients completed the Personal Autonomy Questionnaire. The average patient age was 43 years (SD = 10), and 89% of them were female. The mean severity and duration of MS were 3.5 (SD = 1.75) and 9.5 (SD = 5.1), respectively. The average QoL of MS patients at T0 was 0.66 (SD = 0.18), and that at T1 was 0.71 (SD = 0.16). The scores of patients with different types of MS, i.e., relapsing–remitting MS (RRMS) or secondary progressive MS (SPMS), were compared. SPMS patients were older than RRMS patients (mean age 47.5 vs. 39.7 years; p = 0.032), and more RRMS patients were working (0.014). SPMS patients described the same QoL and personal autonomy as RRMS patients. Results from bivariate correlation analyses showed a significant relationship between QoL and age, education, and severity of MS. Also, the analysis showed no significant correlation between QoL and personal autonomy.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients

Pădureanu

Albu

Pirici

et al. 2020

JCM

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“…The higher the score, the better the perceived QoL. The original version was constructed by Byock and Merriman (1998) and has been used in many hospital and health care settings (Adamopoulou et al, 2019;Dimova, Keskinova, Tzekov, & Ginova-Noncheva, 2019). The scale has been translated (Theofilou et al, 2012) and validated in the Greek population by Theofilou, Aroni, Ralli, Gouzou, and Zyga (2013) with Cronbach's α = .74.…”

Section: Methodsmentioning

confidence: 99%

Social support and quality of life in Greek women with breast cancer during chemotherapy and two years later

Goula¹,

Alikari²,

Charalampous³

et al. 2020

Health Psychology Report

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health psychology report • volume 8(2),  original article background Social support in women with breast cancer is associated with quality of life (QoL) and it appears to be vital for treating breast cancer and adaptation to disease. Social support seems to decrease quantitatively and over time while significant improvement in the patients' long-term emotional and physical function is observed. Therefore, the aim of this study was to investigate the differences in levels of social support and QoL in two independent groups of patients: women with breast cancer (i) during chemotherapy and (ii) two years after the chemotherapy. participants and procedure In this cross-sectional study 74 women with breast cancer "during chemotherapy" (n = 41) and "two years after chemotherapy" (n = 33) completed the Greek version of Multidimensional Scale of Perceived Social Support (MSPSS) and the Greek version of the Missoula-VITAS Quality of Life Index (MVQoLI-15) to measure social support and QoL respectively. All statistical analyses were performed with SPSS 25 with significance set at p < .05. results The group "two years after chemotherapy" reported better QoL than the "during chemotherapy" group. There was no difference in perceived social support between the two groups. The higher the patients' age, the lower the QoL for the "during chemotherapy" group and the higher the social support for the "two years after chemotherapy" group. conclusions QoL improves over time, emphasizing the ability of women to manage difficult situations. Social support remains important in both periods.

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“…MS is known as one of the most important lifechanging diseases because it damages the best periods of people's life and consequently leads to disability [4]. Symptoms and problems of MS, including fatigue, pain, spasm, weakness, visual impairment, imbalance, tremor, impotence, depression, and cognitive problems, are variable and unpredictable [5]. In addition, patients with MS mostly experience several physical and psychological problems affecting their daily activities, family and social life, independence, and individual planning for the future [6,7].…”

Section: Introductionmentioning

confidence: 99%

Development and validation of the disease - specific problems questionnaire for patients with multiple sclerosis

Dehghani

2021

BMC Neurol

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Background Patients with multiple sclerosis face numerous problems during their lifetime. A self-report measurement of disease - specific problems is required to be developed for patients with multiple sclerosis based on different cultural factors. Accordingly, this can advance our understanding on the disease-specific problems for care planning as well as improving coping ways and quality of life. This study aimed to develop and validate the scale of disease-specific problems of Multiple Sclerosis. Methods This was an exploratory sequential mixed method study conducted in three phases. Correspondingly, in the first phase, the concept of disease-specific problems was defined using the content analysis approach in patients with MS. In the second phase, the item pool was generated from the findings of the first phase, and in the third phase, psychometric properties of the scale, including face, content, and construct validity and reliability, were evaluated. Results After examining both validity and reliability, 28 items were developed in the final questionnaire. As well, by performing the factor analysis, five factors were revealed as follows: physical problems, psychological problems, emotional problems, family problems, and socio-economic problems. Internal consistency and stability of the questionnaire were calculated as 0.82 and 0.90, respectively, indicating an excellent reliability. Conclusion The 28-item questionnaire is valid and reliable for measurement of level of disease - specific problems in Iranian people with MS.

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The Effect of Fatigue and Pain Self- Efficacy on Health-Related Quality of Life Among Patients with Multiple Sclerosis

Cited by 4 publications

References 26 publications

Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients

Personal Autonomy as Quality of Life Predictor for Multiple Sclerosis Patients

Social support and quality of life in Greek women with breast cancer during chemotherapy and two years later

Development and validation of the disease - specific problems questionnaire for patients with multiple sclerosis

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