The Effect of Partnership Care Model on Mental Health of Patients with Thalassemia Major

Abstract

Background Thalassemia major has become a public health problem worldwide, particularly in developing and poor countries, while the role of educating the family and community has not been considered enough in patients' care. Objectives This study examines the impact of partnership care model on mental health of patients with beta-thalassemia major. Materials and Methods This experimental study, with pretest and posttest design, was performed on patients with beta-thalassemia major in Jiroft city. 82 patients with beta-thalassemia major were allocated randomly into two groups of intervention (41 patients) and control (n = 41) groups. Mental health of the participants was measured using the standard questionnaire GHQ-28 before and after intervention in both groups. The intervention was applied to the intervention group for 6 months, based on the partnership care model. Results There were significant differences between the scores of mental health and its subscales between two groups after the intervention (P < 0.05). Conclusions The findings of the study revealed the efficacy and usefulness of partnership care model on mental health of patients with beta-thalassemia major; thus, implementation of this model is suggested for the improvement of mental health of patients with beta-thalassemia major.

Psychological intervention in children with transfusion‐dependent β‐thalassaemia

“…Blood transfusion and standard ironchelation therapy are common alleviating treatments against β-thalassaemia, even though the treatment technology for improving the ineffective production of red blood cells and the technique for regulating globin imbalance are progressing [10,11]. However, the need for regular blood transfusions and developmental abnormalities in children with β-thalassaemia seriously affect their mental health [12].…”

“…Accumulating evidence has demonstrated the statistical correlation between β-thalassaemia and the incidence of psychological morbidity, especially in children and adolescents [12]. It has been reported that transfusion-dependent β-thalassaemia significantly impacts the life quality of paediatric and adolescent patients in upper Egypt, and the same disease also causes considerable psychological issues for patients in Sri Lanka [15,16].…”

The Effect of Happiness Training on Psychological Well-Being in Patients with Thalassaemia Major

“…Patients with TM, due to the nature of their disease, are exposed to several physical and psychological problems. 33 Because happiness training based on the Fordyce approach has a cognitive-behavioural aspect, it can help these patients to first identify their uncomfortable thoughts and behaviours and then employ cognitive-behavioural management programmes to change the situation. In addition, focusing on life’s negative aspects and persistent emotional unhappiness can have destructive effects on the body’s physiological system and disrupt the immune system functionality.…”

Impact of SCOPE Program on Health-Related Quality of Life and Health Status of Children With Thalassemia: A Quasi-Experimental Study

“…Dashtban et al (2021) reported that family-centered empowerment program intervention has considerably improved the HRQoL for children with thalassemia. Similar studies show that family empowerment programs and partnership care models improve HRQoL among these children and their families by increasing parental awareness and attitude about the disease (Allahyari et al, 2006;Shamsi et al, 2017;Wacharasin et al, 2015).…”