The Effect of Perceived Parental Rearing Behaviors on Health-Related Quality of Life in Adolescents with Leukemia

Kim, Dong Hee; Chung, Nack‐Gyun; Lee, Sunhee

doi:10.1177/1043454214563412

Cited by 14 publications

(19 citation statements)

References 29 publications

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“…The use of threats as an intensified form of attempted behavioral influence (Hepburn & Potter, 2011) became a scare tactic to normalize the situation and ensure that children took their medication, ate healthfully, wore their masks, and endured the treatment. Indeed, mothers’ rejection or punishment was correlated with control and overprotection among South Korean adolescents with cancer (Kim et al, 2015). Despite the perceived need for such a parenting style to increase the child’s compliance, this can be seen as verbal aggression that might affect the child adversely, resulting in feelings of self-blame and emotional insecurity (Moore & Pepler, 2006).…”

Section: Discussionmentioning

confidence: 99%

“…Kim, Kang, Cho, Song, and Ji (2008) found that mothers with a hemophilic child reported higher levels of parenting stress and guilt, more negative parenting attitudes, and lower levels of parenting satisfaction than those with a healthy child. A few studies examined parental rearing behaviors on health-related quality of life (Kim, Chung, & Lee, 2015) and school adjustment (Lee & Kim, 2017) among South Korean adolescents with leukemia. However, parenting practices of South Korean parents with a child diagnosed with cancer have not been investigated.…”

Section: Rationalementioning

confidence: 99%

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Parenting Changes of Mothers of a Child with Cancer

Kim

Wilford

et al. 2019

Journal of Family Issues

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Having a child with cancer affects the dyadic relationship between caregivers and the child. This study focused on changes in parenting and discipline among mothers after their child was diagnosed with cancer. We used semistructured interviews to explore 20 mothers’ experiences of parenting a child who had been diagnosed with cancer during the prior 5 years and before the age of 19 years in South Korea. Thematic analysis yielded five themes related to parenting changes: parental overprotection, increased parental permissiveness, use of threats to ensure compliance, concern for the child’s stress levels, and mothers’ confusion about optimal parenting. All mothers reported uncertainty and concern regarding how best to parent their sick child to ensure optimal health outcomes. The findings inform best practices for integrating medical and mental health care to support optimal maternal parenting and encourage optimal health outcomes for children with cancer.

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Section: Discussionmentioning

confidence: 99%

Section: Rationalementioning

confidence: 99%

Parenting Changes of Mothers of a Child with Cancer

Kim

Wilford

et al. 2019

Journal of Family Issues

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“…16,17 Using this questionnaire, a recent Korean study found relations of recalled emotional warmth and quality of life in adolescents affected by leukemia. 18 Further, compared with age-matched controls, young adult long-term cancer survivors were found to remember both their parents as emotionally warmer and their mothers as less rejecting. 19 Surprisingly, this investigation reported no differences between cancer survivors and controls concerning the control/overprotection scale, contrasting reports of the predominantly qualitative studies which had investigated these aspects separately and attested to higher levels of overprotective parental behavior.…”

Section: Introductionmentioning

confidence: 91%

“…To date, only few research endeavors have investigated different facets of parenting in the context of cancer in a systematic way by questioning survivors with an established questionnaire: The Recalled Parental Rearing Behavior Questionnaire reliably assesses the (former) child's mental representations of paternal and maternal emotional warmth, rejection/punishment, and control/overprotection . Using this questionnaire, a recent Korean study found relations of recalled emotional warmth and quality of life in adolescents affected by leukemia . Further, compared with age‐matched controls, young adult long‐term cancer survivors were found to remember both their parents as emotionally warmer and their mothers as less rejecting .…”

Section: Introductionmentioning

confidence: 99%

Parenting in the face of serious illness: Childhood cancer survivors remember different rearing behavior than the general population

et al. 2019

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Objective A child's cancer diagnosis and treatment affect the whole family. While it has been recognized that parents are an important resource for their children, little is known about the specifics of parenting in the face of serious illness. Methods We used the Recalled Parental Rearing Behavior Questionnaire in a register‐based cohort of adult childhood cancer survivors (CCS) (N = 951) and a representative population sample of the same age range (N = 2042). The questionnaire assesses behavior of mothers and fathers with three scales (emotional warmth, rejection/punishment, and control/overprotection) by querying the (former) child. We compared the two groups using general linear models. With a hierarchical linear regression analysis, we tested associations of recalled rearing behavior with disease‐ and treatment‐related factors. Results Compared with the general population, CCS remembered both parents as emotionally warmer, more overprotective, and less punishing/rejecting and less ambitious. The regression analysis showed that having received radiotherapy (β = 0.092; P = .009) and chemotherapy (β = 0.077; P = .027) was positively related to memories of maternal emotional warmth. Conclusions CCS remembered parenting styles which are generally deemed more positive. The extent of recalled control and overprotection deviated from the population in different directions, suggesting that parenting in childhood cancer entails more complex adaptations than being affectionate and giving comfort. The results suggest an adaptation of parental behavior to particularly challenging treatments. They highlight potential vulnerability and resilience factors, some of which were sex‐dependent.

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“…Quality of life is considered as one of the main concerns of policymakers and experts of public health team, and is used as an index in public health surveys (16); it also comprises a significant part of criteria of cancer treatment assessments that require QOL evaluation of patients in various regions (1). Gaining the information about QOL and discovering the level of patients' sense of well-being and recognizing the fields they do not have this sense, can be helpful for more effective treatments and future improvements of QOL (17). Assessment of QOL provides us with useful information about predicting consequences of the disease and evaluating the treatments for the clinical team, which as a result will improve quality of the health services.…”

Section: Introductionmentioning

confidence: 99%

Relationship Between Chronic Pain and Quality of Life in Patients With Acute Leukemia Undergoing Chemotherapy

Miladinia

Baraz

Shariati

et al. 2015

Jundishapur J Chronic Dis Care

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Background: Chronic pain is one of the most prevalent symptoms in patients with acute leukemia and can affect patients' Quality of Life (QOL) that is a significant factor in assessment of cancer treatments. Also, the goal of curing hematological malignancies is to reach to increased survival and improvement of patients; and this goal will be fulfilled when QOL in patients is promoted. Objectives: The present study aimed to investigate the correlation between chronic pain and Health-Related QOL (HR-QOL) in patients with acute leukemia under chemotherapy in Ahvaz City, Iran. Patients and Methods: This descriptive-analytical study was performed on 90 patients (age range, 18-50 years) with acute leukemia under chemotherapy referred to Shafa Hospital in Ahvaz, Iran. The participants were selected through convenient sampling. The outcome measures included the Iranian version of the Short-Form 36 (SF-36) health survey, Numeric Rating Scale (NRS) for assessing the pain, and demographic questionnaire. Data analysis was performed using ANOVA, t-test, chi-square, with the significance level of 95%. Results: The average of pain severity was 6.03 ± 2.06, and the total average of HR-QOL was 46.83 ± 3.62, and the lowest average belonged to physical function (42.17 ± 25.75). No significant difference was found in the average pain between the two genders (P = 0.487); however, there was a statistically significant difference between HR-QOL and gender (P = 0.005). Moreover, no significant difference was detected between the average pain severity and acute leukemia type (P = 0.152). The findings also revealed a significant relationship between pain severity and aspects of HR-QOL, So that, all aspects of QOL were decreased with increased pain severity. Conclusions: The results of the study indicate that chronic pain and HR-QOL in patients with acute leukemia in Ahvaz are in a very adverse condition and require serious reform. The findings of the study can be helpful in the clinical decisions and health care programs to the therapeutic team.

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The Effect of Perceived Parental Rearing Behaviors on Health-Related Quality of Life in Adolescents with Leukemia

Cited by 14 publications

References 29 publications

Parenting Changes of Mothers of a Child with Cancer

Parenting Changes of Mothers of a Child with Cancer

Parenting in the face of serious illness: Childhood cancer survivors remember different rearing behavior than the general population

Relationship Between Chronic Pain and Quality of Life in Patients With Acute Leukemia Undergoing Chemotherapy

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