The Effect of Person-Centred Dementia Care to Prevent Agitation and Other Neuropsychiatric Symptoms and Enhance Quality of Life in Nursing Home Patients: A 10-Month Randomized Controlled Trial

Rokstad, Anne Marie Mork; Røsvik, Janne; Kirkevold, Øyvind; Selbæk, Geir; Benth, Jūratė Šaltytė; Engedal, Knut

doi:10.1159/000354366

Cited by 104 publications

(155 citation statements)

References 86 publications

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“…The participants were recruited from the research project Effects and costs of a day care centre program designed for people with dementia -a 24 month controlled study (ECOD) (Rokstad et al, 2013). The sample from the ECOD study, which this PhD study has recruited participants from, was a strategic sample that consisted of 175 participants who represented the intervention group, i.e.…”

Section: Samplementioning

confidence: 99%

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Tretteteig

Vatne

Rokstad

2015

Aging & Mental Health

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104

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Section: Samplementioning

confidence: 99%

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Tretteteig

Vatne

Rokstad

2015

Aging & Mental Health

Self Cite

104

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“…Dementia Care Mapping (DCM) is a widely used method to support staff working in dementia care in psychogeriatric nursing homes (Barbosa, Lord, Blighe, & Mountain, 2017;Chenoweth et al, 2009;Jeon et al, 2012;Kuiper, Dijkstra, Tuinstra, & Groothoff, 2009;Rokstad et al, 2013;Van de Ven, 2014). It is promising for staff working with older people with intellectual disability and has a number of characteristics that are innovative for this field: it is a relatively structured psychosocial method, it is based on principles of person-centred care, and it is specifically aiming at people with dementia (Finnamore & Lord, 2007;Jaycock, Persaud, & Johnson, 2006;Persaud & Jaycock, 2001;Schaap, Dijkstra, Finnema, & Reijneveld, 2017).…”

mentioning

confidence: 99%

Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

Schaap

Fokkens

Reijneveld

et al. 2018

Research Intellect Disabil

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Background The number of people with intellectual disability and dementia increases; this combination causes behavioural changes. Dementia Care Mapping (DCM) supports staff in dementia care in nursing homes and may be useful in intellectual disability‐care. This qualitative study examines the feasibility of DCM for older people with intellectual disability and dementia. Methods The present authors obtained data in focus groups and interviews with professional users and analysed using a framework for feasibility studies. With experts in dementia and intellectual disability researches, the present authors determined the overall feasibility. Results DCM was found to be feasible in intellectual disability‐care, regarding five domains of feasibility. Staff reported DCM to be useful and valuable and addresses to their demand for skills and knowledge. All professional users found DCM feasible in intellectual disability‐care, which was confirmed by experts. Conclusions DCM is feasible in intellectual disability‐care. When fully tailored to intellectual disability‐care, DCM is useful and provides opportunities to assess its effectiveness.

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“…There is a wide range of approaches to person-centred care, the minority of which have an evidence base. Dementia care mapping 216,217,237 is a particular approach that is reported to be time-consuming and expensive compared with other forms of PCC but achieves equivalent or improved outcomes for residents in care homes. 216 The majority of person-centred care research among PLWD in care homes focuses on outcomes, such as quality of life, activities of daily living and behavioural symptoms such as agitation.…”

Section: Summary Of Scoping Findingsmentioning

confidence: 99%

“…Rokstad et al 237 reported that professional leadership facilitated staff engagement with PCC awareness and practice, whereas market approach and traditional approach did not give a clear vision or commitment to professional development. This was a small study (only three care homes participated), but it addresses how leadership style influences uptake of PCC and also draws a link with outcomes and funding and care home organisation.…”

Section: Implementation In Care Homesmentioning

confidence: 99%

Managing Faecal INcontinence in people with advanced dementia resident in Care Homes (FINCH) study: a realist synthesis of the evidence

Goodman

Norton

Buswell

et al. 2017

Health Technol Assess

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BackgroundEighty per cent of care home residents in the UK are living with dementia. The prevalence of faecal incontinence (FI) in care homes is estimated to range from 30% to 50%. There is limited evidence of what is effective in the reduction and management of FI in care homes.ObjectiveTo provide a theory-driven explanation of the effectiveness of programmes that aim to improve FI in people with advanced dementia in care homes.DesignA realist synthesis. This was an iterative approach that involved scoping of the literature and consultation with five stakeholder groups, a systematic search and analysis of published and unpublished evidence, and a validation of programme theories with relevant stakeholders.Data sourcesThe databases searched included PubMed, Cumulative Index to Nursing and Allied Health Literature, The Cochrane Library, Scopus, SocAbs, Applied Social Sciences Index and Abstracts, BiblioMap, Sirius, OpenGrey, Social Care Online and the National Research Register.ResultsThe scoping identified six programme theories with related context–mechanism–outcome configurations for testing. These addressed (1) clinician-led support, assessment and review, (2) the contribution of teaching and support for care home staff on how to reduce and manage FI, (3) the causes and prevention of constipation, (4) how the cognitive and physical capacity of the resident affect outcomes, (5) how the potential for recovery, reduction and management of FI is understood by those involved and (6) how the care of people living with dementia and FI is integral to the work patterns of the care home and its staff. Data extraction was completed on 62 core papers with iterative searches of linked literature. Dementia was a known risk factor for FI, but its affect on the uptake of different interventions and the dementia-specific continence and toileting skills staff required was not addressed. Most care home residents with FI will be doubly incontinent and, therefore, there is limited value in focusing solely on FI or on single causes of FI such as constipation. Clinical assessment, knowledge of the causes of FI and strategies that recognise the individuals’ preferences are necessary contextual factors. Valuing the intimate and personal care work that care home staff provide to people living with dementia and addressing the dementia-related challenges when providing continence care within the daily work routines are key to helping to reduce and manage FI in this population.LimitationsThe synthesis was constrained by limited evidence specific to FI and people with dementia in care homes and by the lack of dementia-specific evidence on continence aids.ConclusionsThis realist synthesis provides a theory-driven understanding of the conditions under which improvement in care for care home residents living with dementia and FI is likely to be successful.Future workFuture multicomponent interventions need to take account of how the presence of dementia affects the behaviours and choices of those delivering and receiving continence care within a care home environment.Study registrationThis study is registered as PROSPERO CRD42014009902.FundingThe National Institute for Health Research Health Technology Assessment programme.

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The Effect of Person-Centred Dementia Care to Prevent Agitation and Other Neuropsychiatric Symptoms and Enhance Quality of Life in Nursing Home Patients: A 10-Month Randomized Controlled Trial

Cited by 104 publications

References 86 publications

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Dementia care mapping to support staff in the care of people with intellectual disability and dementia: a feasibility study

Managing Faecal INcontinence in people with advanced dementia resident in Care Homes (FINCH) study: a realist synthesis of the evidence

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