The Effectiveness of Biographical Approaches in Long-Term Care: A Systematic Review

Menn, Lara; Corsten, Sabine; Lauer, Norina; Wallace, Sarah

doi:10.1093/geront/gnz074

Cited by 19 publications

(10 citation statements)

References 52 publications

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“…QOL means a sense of satisfaction with life and overall or subjective wellbeing, as influenced by health status, relationship with others, self-concept, and environment [7][8][9]. In fact, QOL is reportedly an indicator of quality of care [8,10,11]. Several QOL indicators have been developed and used in medical research as health-related QOL [12,13].…”

Section: Introductionmentioning

confidence: 99%

Measuring the quality of life of long-term care service users in Japan: a cross-sectional questionnaire study

et al. 2022

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Background In Japan’s super-aging society, the number of long-term care service providers is increasing, and the quality of care is a matter of concern. One aspect of the quality of care is the user’s quality of life. The questionnaires EQ-5D and WHO-5 are representative indicators of quality of life. Herein, we aimed to measure the quality of life in long-term care service users in Japan and to clarify the relationship between quality of life and the level of care required. Methods A questionnaire study was conducted in 106 facilities of 22 corporations. In addition to the EQ-5D and WHO-5, sex, age, and the level of care required were assessed by descriptive statistics. Bonferroni’s multiple comparison test was used to analyze each quality of life score, and the differences by sex and age were analyzed multiple regression analyses, with each quality of life score as the objective variable. Results Of 4647 cases collected, 2830 were analyzed, with no missing data. Both indicators tended to be lower than the general older population. Those scores tended to be higher in females than males (EQ-5D: males, 0.58 ± 0.26; females, 0.60 ± 0.24; P = 0.06 and WHO-5: males, 13.8 ± 5.92; females 14.9 ± 5.70; P < 0.001). In terms of age, those under 65 years old with specific diseases had lower EQ-5D scores than those in other age groups (P < 0.001); however, WHO-5 scores did not differ by age. Multiple regression analysis showed a significant association between the EQ-5D score and level of care required, except for support-required level 1, which tended to worsen as the level of care required increased. Conversely, the WHO-5 score was significantly lower for care need levels 2, 4, and 5. Conclusions The quality of life of long-term care service users was worse than that of the general older population, it tended to be low among males and those under 65 years old with specific diseases. Furthermore, it gradually decreased as the level of care required increased. It is important to monitor users’ quality of life as a quality indicator of care, to improve and manage it.

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Section: Introductionmentioning

confidence: 99%

Measuring the quality of life of long-term care service users in Japan: a cross-sectional questionnaire study

et al. 2022

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“…Comparable approaches such as 'simple reminiscence', 'life-review', or 'life-review therapy' [21,22] have been used successfully in patients with dementia and older persons [21,[23][24][25]. While 'simple reminiscence' focuses on the recall and sharing of memories, 'life review' is more evaluative and aims to cover the whole life story chronologically.…”

Section: Introductionmentioning

confidence: 99%

Cope PPA - Adaptation of the Biographic-Narrative Approach for Persons with Primary Progressive Aphasia: Protocol for Clinical Trial Design

Gauch,

Corsten,

Köb

et al. 2024

Preprint

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Background: Persons with Primary Progressive Aphasia (PPA) face numerous challenges due to their speech impairment. Approximately 40% of these patients develop depression during the course of the disease. Speech and language therapy is perceived as valuable by persons with PPA and has a positive impact on their quality of life. Nevertheless, there is still a lack of evidence on disorder-specific approaches aiming at this important therapeutic goal. The biographic-narrative approach (narraktiv) has been shown to significantly improve quality of life and mood in a sample of 27 persons with post-stroke aphasia. In the planned study, the biographic-narrative approach will be adapted for persons with PPA (Cope PPA) and its effectiveness will be investigated. Methods: First, a focus group interview will be conducted to determine which adaptation of narraktiv persons with PPA require. For this purpose five patients with PPA from the outpatient memory clinic will be recruited. Semistructured interview guidelines will be used, and the analysis will be carried out using qualitative content analysis. Based on the results of the focus group interviews, the narraktiv manual according to Corsten et al. (2015) will be revised resulting in the Cope PPA manual. Subsequently, an efficacy study will be conducted according to the Cope PPA manual, aiming for a total of 24 participants. Each participant will attend five individual and seven group therapy sessions over a period of ten weeks. The individual therapy sessions will be based on the methodology of narrative and episodic interviews. The group therapy sessions will follow a fixed structure addressing topics such as hobbies, friends and family, health and illness. The primary outcome of the efficacy study will be quality of life (Stroke and Aphasia Quality of Life Scale-39), secondary outcomes will be depressive symptoms (Montgomery-Åsberg Depression Rating Scale) and satisfaction with life (Satisfaction With Life Scale). Semistructured interviews will be used to measure effects qualitatively. Furthermore, cognitive and communicative abilities (Mini-Mental-Status-Examination, Scenario Test) will be assessed during the efficacy study. Discussion: This is the first study to investigate the effects of the biographic-narrative approach on the quality of life of persons with PPA. If the innovative approach proves successful, it will improve the treatment of persons with PPA. Protocol version: 18 January 2024 (Version 2) Trial registration: Prospectively registered 26/01/2024 - Deutsches Register Klinischer Studien (DRKS00031782); Studiendatenbank der Universitätsmedizin Mainz (FoR.UM Nummer 23-00696)

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“…Storytelling may enable older adults to feel recognized, affirmed, empowered, and accomplished and may assist in building resilience [ 8 - 10 ]. Reviews of studies have suggested that activities that include reminiscence about one’s life story may improve subjective psychological well-being, quality of life, mood, and cognition [ 11 - 14 ]. In addition, reviews have found that activities that involve reminiscence have the potential to improve quality of life, cognition, communication, and activities of daily living in older adults living with Alzheimer disease and dementia [ 15 , 16 ].…”

Section: Introductionmentioning

confidence: 99%

Digital Storytelling for Health-Related Outcomes in Older Adults: Systematic Review

Stargatt¹,

Bhar²,

Bhowmik³

et al. 2022

J Med Internet Res

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Background Older adults face a unique set of challenges and may experience a range of psychological comorbidities. Digital storytelling is an emerging tool for sharing and recording lived experiences and may have the potential to support well-being but is yet to be systematically reviewed for use among older adults. Objective The aim of this review is to examine the methods for creating digital stories, the health-related outcomes associated with creating digital stories, and the potential for implementing digital storytelling with older adults. Methods We systematically searched electronic databases to identify articles published in English that reported on at least one health-related outcome of digital storytelling for participants aged ≥60 years. Data were extracted and synthesized using qualitative content analysis and summarized in tables. The methodological quality of the studies was assessed using the Mixed Methods Appraisal Tool. Results A total of 8 studies were included in the review. Participants were primarily community-dwelling older adults living with dementia, involving family caregivers and professional care staff. Studies have taken various approaches to digital storytelling and reported diverse benefits associated with digital storytelling, including improvements in mood, memory, social engagement, and quality of relationships. Although the potential for implementation was not widely examined, some studies have presented evidence for acceptability and feasibility. Generally, studies were of high quality, despite the absence of comparator groups and confounder analyses. Conclusions The evidence reviewed suggests that despite the various approaches taken, digital storytelling shows promise as an effective approach for supporting well-being in older adults. Trial Registration PROSPERO International Prospective Register of Systematic Reviews CRD42019145922; https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019145922 International Registered Report Identifier (IRRID) RR2-10.2196/15512

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The Effectiveness of Biographical Approaches in Long-Term Care: A Systematic Review

Cited by 19 publications

References 52 publications

Measuring the quality of life of long-term care service users in Japan: a cross-sectional questionnaire study

Measuring the quality of life of long-term care service users in Japan: a cross-sectional questionnaire study

Cope PPA - Adaptation of the Biographic-Narrative Approach for Persons with Primary Progressive Aphasia: Protocol for Clinical Trial Design

Digital Storytelling for Health-Related Outcomes in Older Adults: Systematic Review

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