The Effects of Introducing Peer Support to Young People with a Chronic Illness

Lewis, Peter; Klineberg, Emily; Towns, Susan; Moore, K. M.; Steinbeck, Kate

doi:10.1007/s10826-016-0427-4

Cited by 29 publications

(69 citation statements)

References 40 publications

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“…To make interventions available to those who need them, service providers should ensure they have adequate funding for equipment (e.g., Nicholas et al, ), staff expertise in intervention design and delivery (Whittemore, Grey, Lindemann, Ambrosino, & Jaser, ), and space to stage an intervention ( et al, ). Health and social care staff play a key role in recognizing the mental health needs of CYP and supporting them and their families to access an intervention that is appropriate for their needs (e.g., Desai, Sutton, Staley, & Hannon, ;Fair, Connor, Albright, Wise, & Jones, ;Lewis et al, ). As discussed within A Therapeutic Foundation below, CYP find it validating when their emotions and experiences are recognized by others.…”

Section: Resultsmentioning

confidence: 99%

“…Parents highlighted the importance of flexibility in the delivery of interventions, such as considering the time of day (e.g., Brodeur, ) and setting (e.g., Muskat et al, ). Providing opportunities for CYP to maintain the peer relationships formed during an intervention via social media (e.g., Kirk & Milnes, ) or organized events (e.g., Desai et al, ; Lewis et al, ) may help maintain the beneficial effects of the social support received through an intervention (as discussed within the construct Social Support) beyond its scheduled endpoint.…”

Section: Resultsmentioning

confidence: 99%

“…"They said they only had one social worker for the outpatient department and it was all very difficult for them to see him" [Parent, ] (Lewis, Klineberg, Towns, Moore, & Steinbeck, 2016, p. 2546). The habitat of fun consisted of abundance and opportunities for transgressions, which were grounded in an unceasing focus on campers' enjoyment and engagement (, Witt, & Watts, 2011).…”

Section: Line Of Argumentmentioning

confidence: 99%

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Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Shaw

Moore

Nunns

et al. 2019

Child

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BackgroundChildren and young people with long‐term physical health conditions are at increased risk of experiencing mental health and well‐being difficulties. However, there is a lack of research that explores the experiences of and attitudes towards interventions aiming to improve their mental health and well‐being. This systematic review seeks to address this gap in the literature by exploring what children and young people with long‐term conditions, their caregivers, and health practitioners perceive to be important aspects of interventions aiming to improve their mental health and well‐being.MethodsAn information specialist searched five academic databases using predefined criteria for qualitative evaluations of interventions aiming to improve the mental health or well‐being of children with long‐term physical conditions. Reviewers also performed supplementary citation and grey literature searches. Two reviewers independently screened titles, abstracts, and full texts that met the inclusion criteria and conducted data extraction and quality assessment. Meta‐ethnography was used to synthesize the findings.ResultsScreening identified 60 relevant articles. We identified five overarching constructs through the synthesis: (a) Getting In and Staying In, (b) Therapeutic Foundation, (c) Social Support, (d) A Hopeful Alternative, and (e) Empowerment. The line of argument that links these constructs together indicates that when interventions can provide an environment that allows young people to share their experiences and build empathetic relationships, it can enable participants to access social support and increase feelings of hope and empowerment.ConclusionThese findings may provide a framework to inform the development of mental health interventions for this population and evaluate existing interventions that already include some of the components or processes identified by this research. Further research is needed to establish which of the constructs identified by the line of argument are most effective in improving the mental well‐being of young people living with long‐term conditions.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Line Of Argumentmentioning

confidence: 99%

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Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Shaw

Moore

Nunns

et al. 2019

Child

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“…In the study by Lewis, no critique was found due to a lack of communication between professionals and the parents, and this intervention was not combined with consultations (Lewis et al . ). A logistic critique was found in this study regarding finding time for weekly trips to the hospital for the program and because the program was an additional activity to consultations and conflicted with other scheduled activities.…”

Section: Discussionmentioning

confidence: 97%

“…Internationally, various efforts have been made to adapt healthcare services to the needs and expectations of young people (Kohut et al 2014;Tong et al 2015;Lewis et al 2016).…”

Section: Literature Reviewmentioning

confidence: 99%

A triangulated evaluation of a youth clinic for patients with kidney disease

Finderup

Kristensen

Christensen

et al. 2018

Journal of Renal Care

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The impact of clean intermittent catheterization on students and families in the school environment

Bauer,

Choung,

Sable

et al. 2023

Neurourology and Urodynamics

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IntroductionClean intermittent catheterization (CIC) is often used for bladder emptying in children with lower urinary tract dysfunction. Until recently, the emphasis in assessing the effects of CIC has been on preserving kidney function, reducing urinary tract infection, and achieving urinary continence. Few studies have investigated the impact of CIC on students and families in a school setting. This study sought to examine what students and caregivers experienced when CIC was required during the school day and how schools adjusted to a student needing to perform it.Materials and MethodsA phenomenological approach utilizing semistructured interviews was performed to understand the impact of CIC on students. Purposeful sampling identified eligible families. A guide was developed from expert opinion validated by a pilot sample with feedback collated into a family/provider codesigned questionnaire. Interviews emphasized the impact and challenges students faced at school. Transcripts were coded using Dedoose software with emerging themes identified and a code book was created for closed coding that led to thematic analysis.ResultsA total of 40 families (52 caregivers and children > 12 years) were interviewed. Emergent themes included: Caregivers and students felt (1) school personnel were not always aware of nor prepared regarding the implications of CIC; (2) school bathrooms were often less than ideal (e.g., location, size, cleanliness, privacy, and availability); and (3) student participation in extracurricular activities was challenging.ConclusionsThis study identifies potential areas of intervention in meeting the needs of students who require CIC and the importance of having collaborative efforts of caregivers, health care providers, and school personnel in addressing and meeting CIC needs. Care coordination that involves consistent communication and careful planning between health care teams, school personnel, students, and caregivers can optimize a student's educational experience.

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The Effects of Introducing Peer Support to Young People with a Chronic Illness

Cited by 29 publications

References 40 publications

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

A triangulated evaluation of a youth clinic for patients with kidney disease

The impact of clean intermittent catheterization on students and families in the school environment

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