The effects of the child with Down syndrome on maternal stress

Hodapp, Robert M.; Ricci, Leila A.; Ly, Tran M.; Fidler, Deborah J.

doi:10.1348/026151003321164672

Cited by 91 publications

(85 citation statements)

References 20 publications

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“…In turn, such sociable, positive personalities seem to influence parents. When children are perceived to have more sociable, positive personalities, mothers are more likely to consider as "normal" their child's negative, acting out behaviors (Ly & Hodapp, 2002), as well as to experience less child-related stress and to feel more rewarded by their children (Hodapp, Ricci, Ly, & Fidler, 2003).…”

Section: Behaviors Change With Age During the Childhood And Adult Yearsmentioning

confidence: 99%

Studying Interactions, Reactions, and Perceptions: Can Genetic Disorders Serve as Behavioral Proxies?

Hodapp

2004

J Autism Dev Disord

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Different genetic disorders predispose individuals to display specific, etiology-related profiles, personalities, and maladaptive behaviors. Using groups with genetic etiologies as stand-ins or proxies for a specific behavior or set of behaviors, one can then examine how others in the child's environment react and whether such reactions are limited to a particular disorder or occur generally to all individuals showing that behavior. Just as twins, adopted, and institutionalized children have all been used as natural experiments to tell us about typical development, so too can groups with specific genetic syndromes help us to understand the nature and mechanisms of the reactions and behaviors of others.

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Section: Behaviors Change With Age During the Childhood And Adult Yearsmentioning

confidence: 99%

Studying Interactions, Reactions, and Perceptions: Can Genetic Disorders Serve as Behavioral Proxies?

Hodapp

2004

J Autism Dev Disord

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“…The well-being of parents of children with disabilities is related to a complex interaction of many factors such as child and parent characteristics, family systems and socio-economic status (Brinker et al, 1994), particularly the severity of child problem behaviours (Baker et al, 2003;Hodapp et al, 1998Hodapp et al, , 2003Sharpley et al, 1997). The theoretical cognitive model of stress and coping (Lazarus and Folkman, 1984) has been used to explain this interaction (Beresford, 1994a;Quine and Pahl, 1991).…”

Section: Introductionmentioning

confidence: 99%

Caring for children with learning disabilities who present problem behaviours: a maternal perspective

Johnson¹,

O’Reilly²,

Vostanis³

2006

J Child Health Care

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The theoretical cognitive model of stress and coping provides a structure to obtain and analyse maternal perceptions of caring for children with learning disabilities who present severe problem behaviours. The Family Fund database identified 18 families who met the sample criteria of children aged five years to 15 years with severe to moderate learning disability presenting severe problem behaviour. Physical aggression was reported to be the primary behavioural problem for 13 of the children. Interviews undertaken with the main carer of the child at their home were taped and transcribed. The data were analysed using grounded theory techniques which identified 'secondary stressors' for the parent. These were social isolation, conflict, limitation of lifestyle and self-blame. It is proposed that the amalgamated impact of these can weaken parents' coping resources and, therefore, may prove to be as significant to the negative association with maternal wellbeing as the problem behaviour.

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“…Although developmental disabilities are diagnosed in early childhood, it is unlikely that the disabilities can be recovered and thus these disabilities do impose heavy burden on the caregivers and family (Lee & Park, 2013). The caregivers of CDD are, in particular, at risk for greater distress and are more vulnerable to negative outcomes such as depression, social isolation, and spousal relationship difficulties comparatively than the parents of children with other disabilities (Dunn, Burbine, Bowers, & Tantleff-Dunn, 2011;Hodapp, Ricci, Ly, & Fidler, 2003). Thus, it is very critical to investigate overall evaluation on life among the parents and family of CDD as LS reflects every positive and negative situation of life experienced by them.…”

Section: Current Trends In South Koreamentioning

confidence: 99%

Predictors of Life Satisfaction among Caregivers of Children with Developmental Disabilities in South Korea

Cho¹,

Kahng²

2014

ASS

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It is known that factors such as socio-demographic characteristics and care-related stressors among caregivers of children with developmental disabilities (CDD) predict their life satisfaction (LS). Due to a lack of data, however, very little is known about the predictors of LS in South Korea. This study aims to examine factors associated with LS among the caregivers of CDD using the recently collected data from the national survey on people with developmental disabilities in South Korea. Structural Equation Modeling (SEM) was performed including a total of 390 caregivers participated in the survey. Key findings are as follows. (1) Both child's age and caregiver's age were negatively associated with caregivers' LS, whereas the severity of child's disability and monthly family income were positively associated with the caregivers' LS. (2) While caregiving stress and perceived financial burden were negatively associated with LS, amount of time for caring was not significantly associated with LS. Based on the findings, discussion and implications for theory and practice are provided.

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The effects of the child with Down syndrome on maternal stress

Cited by 91 publications

References 20 publications

Studying Interactions, Reactions, and Perceptions: Can Genetic Disorders Serve as Behavioral Proxies?

Studying Interactions, Reactions, and Perceptions: Can Genetic Disorders Serve as Behavioral Proxies?

Caring for children with learning disabilities who present problem behaviours: a maternal perspective

Predictors of Life Satisfaction among Caregivers of Children with Developmental Disabilities in South Korea

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