The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy

Barton, Catherine; Buckley, John; Samia, Pauline; Taylor, Suzan R.; Lindoewood, Rachel

doi:10.1080/17483107.2020.1830442

Cited by 13 publications

(46 citation statements)

References 47 publications

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“…According to our caregivers, the inefficiency of political, social and structural support and ableism harmed the participation and recognition of children with CZS in society. These aspects are also observed in children with disabilities from low‐to‐middle income countries 36 …”

Section: Discussionmentioning

confidence: 78%

“…These aspects are also observed in children with disabilities from low-tomiddle income countries. 36 Another finding highlighted the difficulty in accessing specialized rehabilitation intervention for children with CZS, such as the Padovan ® , Bobath ® and Pediasuit ® methods. Caregivers who had access to intensive intervention with the use of therapeutic suits reported improvements in their children.…”

Section: Discussionmentioning

confidence: 99%

“…These aspects are also observed in children with disabilities from low‐to‐middle income countries. 36 …”

Section: Discussionmentioning

confidence: 99%

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My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions

Coelho

Campos

Magalhães³

et al. 2022

Health Expectations

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Introduction Promoting social inclusion of children with congenital Zika virus syndrome (CZS) is challenging, mostly, when there is a transport problem, low access to information and a long distance between the house and health services. Participation can be understood as involvement in a life situation and is strongly influenced by physical, social and attitudinal environmental factors; however, was still little explored in the case of children with CZS. In this sense, this study aimed to explore the perception of caregivers about the environmental needs of children with CZS, differentiating barriers and facilitators. Methods This is qualitative research. Thematic analysis was used to identify the environmental needs perceived by caregivers of children with CZS. The patient public involvement (PPI) approach was incorporated with the purpose of validating the data analysis performed by the researchers. After this step, the data were categorized in terms of barriers and facilitators and validated by the group of researchers. Results A relevant environmental need reported by caregivers as a barrier was social support for children with CZS. Ableism was also evidenced as an important attitudinal barrier. Health services were essential for the lives of children with CZS and the availability of auxiliary devices as facilitators of participation. Environmental factors related to medication and food routines were, for the most part, facilitators. Conclusion This study contributes to critical approaches to the impacts linked to environmental factors of children with CZS, recognition of these children is an evolving process and fundamental to basic rights for adequate living in society. The data point to the need to implement public policies aimed at children with CZS, as well as the availability of qualified professionals to apply family‐centred care and skills‐focused management. Building friendly environments that promote broad social participation will contribute to the healthy growth of children with CZS. Patient or Public Contribution Six caregivers (20% of the caregivers) as part of the PPI approach were contacted and participated in individual virtual meetings to discuss the results of the thematic analysis regarding the environmental needs of children with CZS.

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Section: Discussionmentioning

confidence: 78%

Section: Discussionmentioning

confidence: 99%

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My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions

Coelho

Campos

Magalhães³

et al. 2022

Health Expectations

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“…Assisted technologies such as hearing aids, cochlear implants, communication boards, eye tracking devices, and simple aids to daily living such as wheelchairs and grab bars are not readily available in many LMICs ( 117 , 118 ). Early intervention with physical and occupational therapies, as early as infancy, have the potential to improve developmental opportunities for at-risk patients ( 117 , 119 ). Developmental clinics with multidisciplinary care teams should be in place to follow these children over time in an organized fashion.…”

Section: Opportunities For Future Stepsmentioning

confidence: 99%

Management challenges in the treatment of severe hyperbilirubinemia in low- and middle-income countries: Encouraging advancements, remaining gaps, and future opportunities

Satrom

Farouk²,

Slusher³

2023

Front. Pediatr.

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Neonatal jaundice (NJ) is common in newborn infants. Severe NJ (SNJ) has potentially negative neurological sequelae that are largely preventable in high resource settings if timely diagnosis and treatment are provided. Advancements in NJ care in low- and middle-income countries (LMIC) have been made over recent years, especially with respect to an emphasis on parental education about the disease and technological advancements for improved diagnosis and treatment. Challenges remain, however, due to lack of routine screening for SNJ risk factors, fragmented medical infrastructure, and lack of culturally appropriate and regionally specific treatment guidelines. This article highlights both encouraging advancements in NJ care as well as remaining gaps. Opportunities are identified for future work in eliminating the gaps in NJ care and preventing death and disability related to SNJ around the globe.

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“…47 School therapists also reported increased self-esteem, social interaction, and access to activities. 72 A study evaluating the use of paper-based technologies in Kenya 117 did not separate sitting and standing devices in the quantitative analysis, but noted, regarding stander use, improvement in hand use, ability to reach and change position, and improved independent feeding abilities. Caregivers also reported that the stander reduced burden of care and allowed the child to play safely and independently or with other children while the parent was engaged in household or other chores.…”

Section: Supported Standing Provides An Important Position Change And...mentioning

confidence: 99%

Supported‐standing interventions for children and young adults with non‐ambulant cerebral palsy: A scoping review

McLean

Paleg²,

Livingstone

2022

Develop Med Child Neuro

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Aim To describe the evidence, outcomes, and lived experience of supported standing for children and young adults with cerebral palsy aged 25 years or younger, classified in Gross Motor Function Classification System levels IV and V. Method This scoping review included searches in eight electronic databases and manual searching from database inception to May 2020 and updated on 21st February 2022. Two of three reviewers independently screened titles and abstracts and extracted and appraised data. Methodological quality and risk of bias were appraised using tools appropriate to study type. Content analysis and frequency effect sizes were calculated for qualitative and descriptive evidence. Results From 126 full‐text references, 59 citations (one study was reported over two citations) were included: 16 systematic reviews, 17 intervention studies reporting over 18 citations, eight analytical cross‐sectional studies, five descriptive cross‐sectional/survey studies, five qualitative studies, and one mixed‐methods study were identified, along with six clinical guidelines. Maintenance of bone mineral density and contracture prevention outcomes were supported by the most experimental studies and evidence syntheses, while evidence supporting other outcomes was primarily quasi‐experimental or descriptive. Qualitative evidence suggests that programmes are influenced by attitudes, device, child, and environmental factors. Interpretation Individualized assessment and prescription are essential to match personal and environmental needs. Although experimental evidence is limited due to many factors, lived‐experience and cohort data suggest that successful integration of standing programmes into age‐appropriate and meaningful activities may enhance function, participation, and overall health. What this paper adds Supported‐standing interventions may provide an important psychosocial and physical change of position. Supported standing is not passive for those classified in Gross Motor Function Classification System level IV or V. Supported standing may enhance social participation, functional abilities, and fitness. Children need choice in where and when to stand.

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The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy

Abstract: This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https:// creativecommons.org/licenses/by/ 4.0/).

Cited by 13 publications

References 47 publications

My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions

My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions

Management challenges in the treatment of severe hyperbilirubinemia in low- and middle-income countries: Encouraging advancements, remaining gaps, and future opportunities

Supported‐standing interventions for children and young adults with non‐ambulant cerebral palsy: A scoping review

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