The emotional experience of caregivers to relatives who are chronically confused—Implications for community mental health nursing

Adams, Trevor

doi:10.1016/0020-7489(94)90064-7

Cited by 12 publications

(10 citation statements)

References 91 publications

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“…They concur with the findings of other studies that have sought carers’ views on this issue (Kenny 1990, Ashworth et al . 1992, Biley 1992, Nolan & Grant 1992, Adams 1994, 1996, Chadderton 1995, Keady 1996, Davies et al . 1997, Mistiaen et al .…”

Section: Findings and Discussionmentioning

confidence: 99%

How do we facilitate carers’ involvement in decision making?

Walker¹,

Dewar

2001

Journal of Advanced Nursing

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The reported experiences of carers in this study highlighted four markers of satisfactory involvement: feeling that information is shared; feeling included in decision making; feeling that there is someone you can contact when you need to; and feeling that the service is responsive to your needs. The majority of carers felt dissatisfied with the level of involvement. The situation we found echoed that found in other studies, i.e. the majority of informal carers (henceforth 'carers') interviewed were dissatisfied with the level of their involvement. However, our investigation, in which the views of health care professionals as well as those of carers were sought, provided invaluable insight into why this might be the case. Two main sources of difficulty were found: hospital systems and processes, and the relationship between nursing staff and carers. The argument made is that practitioners themselves must notice and challenge these barriers if carer involvement is to be facilitated.

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Section: Findings and Discussionmentioning

confidence: 99%

How do we facilitate carers’ involvement in decision making?

Walker¹,

Dewar

2001

Journal of Advanced Nursing

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“…There are, however, several problems in comparing studies on interventions for family caregivers. According to this present study, as well as to Adams 3 and Sällström, 7 the family situation becomes very complex and exhausting because of the very nature of dementia. Published interventions are generally focused on one, or a few, single outcome variables such as burden, depression, anxiety, burnout or stress, 8–10 which provide the readers with a fragmented picture of the caregivers’ situation.…”

Section: Introductionmentioning

confidence: 53%

“…Adams found that the healthy spouse became exhausted by the unwanted and embarrassing behaviour of the sick spouse. 3 The healthy spouse felt anxiety, frustration and guilt when the progression of the disease had made institutional care necessary.…”

Section: Introductionmentioning

confidence: 99%

“…Adams also described how healthy spouses became terrified when dementia was diagnosed. 3 The awareness of the diagnosis contributed to the spouses’ feelings of guilt when they lost their patience and, for example, shouted at the sick spouse. However, there were also spouses who never became angry or annoyed, but were just sad.…”

Section: Introductionmentioning

confidence: 99%

“…Many spouse caregivers were anxious and worried and finally wanted someone else to make decisions for them. 3 …”

Section: Introductionmentioning

confidence: 99%

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Counselling groups for spouses of elderly demented patients: A qualitative evaluation study

Brännström

Tibblin

Löwenborg

2000

Int J of Nursing Practice

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Ten women and eight men who were caring for their demented husbands or wives participated in a closed-group counselling programme, developed and carried out by two district nurses at a local health centre. There were seven or eight participants in each group, which met 13-14 times over a period of 8 months. This study is based on semistructured interviews about the participants' situation just before entering the counselling group, the counselling programme itself, and their situation after the end of the programme. Their situations before the programmes were described as an exhausting, chaotic prison but after the programme they could cope with their situation and plan and manage their daily life. None of the participants needed further organised counselling; engagement in the local dementia association was sufficient for them. The counselling nurses' experience in and about caring for demented patients, their tactful authority, the closed groups and the long duration of the programme were judged to be crucial for the successful outcome of the programme.

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Informal family caregiving to older people with dementia: research priorities for community psychiatric nursing

Adams

1996

Journal of Advanced Nursing

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The paper reviews the literature relating to the provision of community psychiatric nursing to demented elderly people and their informal family caregivers, and develops priorities for research in that particular area of nursing. Initially, the development of community psychiatric nursing with elderly demented people is examined. Various theoretical models articulating the family's experience of dementia are examined as a basis for identifying various priorities for research in the area. Empirical evidence relating to the efficacy of various interventions is briefly discussed. Various priorities are made regarding the development of research relating to the development of community psychiatric nursing with elderly demented people and their informal caregivers. Finally the paper is placed in the context of the present policy of refocusing psychiatric nursing on to people with serious and enduring mental disorders. It is argued that this policy should include elderly demented people not just younger people with functional mental disorders.

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The emotional experience of caregivers to relatives who are chronically confused—Implications for community mental health nursing

Cited by 12 publications

References 91 publications

How do we facilitate carers’ involvement in decision making?

How do we facilitate carers’ involvement in decision making?

Counselling groups for spouses of elderly demented patients: A qualitative evaluation study

Informal family caregiving to older people with dementia: research priorities for community psychiatric nursing

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