The Epidemiology of Pediatric Chronic Pain

Vetter, Thomas R.

doi:10.1007/978-1-4419-0350-1_1

Cited by 6 publications

(6 citation statements)

References 103 publications

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“…19 We assumed acute pain lasts for up to one month, after which the pain either becomes chronic or the individual heals and returns to the pain-free state. We estimated chronic pain prevalence using published data 20–22 , adjusted to account only for moderate to severe pain 23 and tuned our estimated rates of chronic pain incidence and resolution to achieve constant prevalence over the time horizon.…”

Section: Methodsmentioning

confidence: 99%

Modeling Health Benefits and Harms of Public Policy Responses to the US Opioid Epidemic

2018

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Section: Methodsmentioning

confidence: 99%

Modeling Health Benefits and Harms of Public Policy Responses to the US Opioid Epidemic

2018

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“…Despite the high incidence of chronic pain in children, it is often underrecognized and undertreated by clinicians [ 5 ], and there are very few specialized pediatric pain clinics, resulting in complex and lengthy referral processes. Headache is the most common chronic pain complaint expressed by children, followed by abdominal and musculoskeletal pain [ 6 ]. Children with chronic pain may experience increased vulnerability to pain, depression, and anxiety, as well as decreased confidence in the ability to function [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study

et al. 2017

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BackgroundChronic pain in childhood is increasingly being recognized as a significant clinical problem for children and their families. Previous research has identified that families want information about the causes of their child’s chronic pain, treatment options, and effective strategies to help their child cope with the pain. Unfortunately, parents have reported that finding this information can be challenging.ObjectiveThe aim of this study was to actively work together with children attending a pediatric chronic pain clinic and their parents to develop, refine, and evaluate the usability of an art and narrative-based electronic book (e-book) for pediatric chronic pain.MethodsA multiphase, multi-method research design employing patient engagement techniques was used to develop, refine, and evaluate the usability of an art and narrative based e-book for pediatric chronic pain management to facilitate knowledge translation for parents with a child with chronic pain. The multiple phases included the following: (1) qualitative interviews to compile parents’ narratives using qualitative interviews; (2) qualitative data analysis; (3) development of an e-book prototype; (4) expert clinician feedback; (5) parent usability evaluation, knowledge change, and confidence in knowledge responses using an electronic survey; (6) e-book refinement; and (7) dissemination of the e-book.ResultsA 48-page e-book was developed to characterize the experiences of a family living with a child with chronic pain. The e-book was a composite narrative of the parent interviews and encompassed descriptions of the effects the condition has on each member of the family. This was merged with the best available research evidence on the day-to-day management of pediatric chronic pain. The e-book was vetted for clinical accuracy by expert pediatric pain clinicians. All parents that participated in the usability evaluation (N=14) agreed or strongly agreed the content of the e-book was easy to understand and stated that they would recommend the e-book to other families who have children with chronic pain. Our research identified up to a 21.4% increase in knowledge after using the e-book, and paired t tests demonstrated a statistically significant difference in confidence in answering two of the five knowledge questions (chronic pain is a disease involving changes in the nervous system; the use of ibuprofen is usually effective at controlling chronic pain); t13=0.165, P=.001 and t13=0.336, P=.002, respectively, after being exposed to the e-book.ConclusionsOur results demonstrate that parents positively rated an e-book developed for parents with a child with chronic pain. Our results also identify that overall, parents’ knowledge increased after using the e-book, and confidence in their knowledge about chronic pain and its management increased in two aspects after e-book exposure. These results suggest that art and narrative-based knowledge translation interventions may be useful in transferring complex health information to parents.

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“…2-7 Quality of life (QoL) has been defined as an individual's perspective on satisfaction across many realms of one's life 8 , and health-related QoL includes aspects of overall quality of life that are directly related to health—either physical or mental. 9-11 …”

Section: Introductionmentioning

confidence: 99%

“…11-14 Recently, more attention has been given to the measurement of health-related QoL in children and adolescents. 15-19 For example, a study with children with moderate-to-severe plaque psoriasis found that health-related QoL is an important indicator of the burden of illness, and that these children had significantly lower QoL compared to their healthy peers.…”

Section: Introductionmentioning

confidence: 99%

Symptoms and quality of life indicators among children with chronic medical conditions

Kim

Chung

Amtmann

et al. 2014

Disability and Health Journal

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Background Children with chronic conditions often experience numerous symptoms, but few research studies examine patterns of symptoms and quality of life (QoL) indicators. Objective To examine if reliable latent classes of children with chronic medical conditions can be identified based on the clustering of symptoms and QoL indicators. Methods Structured interviews were conducted with children ages 9 to 21 living with chronic medical conditions (N = 90). Multiple symptoms (e.g., pain, sleep, fatigue, and depression) and QoL indicators (e.g., life satisfaction and social support) were measured. Physical health and emotional, social, and school functioning were measured using the Pediatric Quality of Life Inventory (PedsQL). Latent class analysis was used to classify each child into a latent class whose members report similar patterns of responses. Results A three-class solution had the best model fit. Class 1 (high-symptom group; n = 15, 16.7%) reported the most problems with symptoms and the lowest scores on the QoL indicators. Class 2 (moderate-symptom group; n = 39, 43.3%) reported moderate levels of both symptoms and QoL indicators. Class 3 (low-symptom group; n = 36, 40.0%) reported the lowest levels of symptoms and the highest scores on the QoL indicators. Conclusions The three latent classes identified in this study were distributed along the severity continuum. All symptoms and QoL indicators appeared to move in the same direction (e.g. worse symptoms with lower QoL). The PedsQL psychosocial health summary score (combining emotional, social, and school functioning scores) discriminated well between children with different levels of disease burden.

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The Epidemiology of Pediatric Chronic Pain

Cited by 6 publications

References 103 publications

Modeling Health Benefits and Harms of Public Policy Responses to the US Opioid Epidemic

Modeling Health Benefits and Harms of Public Policy Responses to the US Opioid Epidemic

Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study

Symptoms and quality of life indicators among children with chronic medical conditions

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