The Ethics of Research and Indigenous Peoples

George, Lily

doi:10.1007/978-3-319-76040-7_31-1

Cited by 5 publications

(10 citation statements)

References 14 publications

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“…There is a need for research by and for Indigenous Peoples on the cultural perspectives that the present study only touched on, including how these factors fit into the broader social and political framework. In future research, Indigenous researchers and researchers representing the FWLW could come together in an ‘ethical space’ as described by Ermine et al (2004). Ethical space acts as “a meeting place of worldviews where excess baggage of interests and hidden agendas are left behind” (Ermine et al, 2004).…”

Section: Discussionmentioning

confidence: 99%

“…In future research, Indigenous researchers and researchers representing the FWLW could come together in an ‘ethical space’ as described by Ermine et al (2004). Ethical space acts as “a meeting place of worldviews where excess baggage of interests and hidden agendas are left behind” (Ermine et al, 2004). Beaudin (2011, pp 179–180) described a three‐phase approach to creating culturally appropriate programs: 1) engage with community members; 2) identify ethical spaces where Indigenous and Western values meet; and 3) “the application of the necessary changes to form a culturally integrated and truly comprehensive approach to providing healthcare that meets the cultural needs of the community” (Beaudin, 2011).…”

Section: Discussionmentioning

confidence: 99%

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Reflexive thematic analysis of a coaching‐based, holistic approach to child development

Sehajpal,

McCrostie,

Charles

et al. 2023

Child

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BackgroundThe F‐words Life Wheel (FWLW) approaches child development by hybridizing a holistic model in the F‐words for Child Development, and a coaching model in Occupational Performance Coaching, along with a life‐flow approach in the Kawa model. We report the impact of the FWLW as experienced by families.MethodsThis was a qualitative interview study of parents of children with developmental needs and experts in child development using reflexive thematic analysis.ResultsFrom 13 interviews, we developed three themes: 1) overwhelming, 2) power rebalance and 3) connectedness. The overwhelming theme addresses how life with developmental needs is challenging, engaging with the health and disability system is difficult and the focus on deficits can lead to a sense of being overwhelmed. The power rebalance theme addresses the transition from professionals calling the shots to giving agency to the child and family. Holistic goal setting empowers parents and children to direct and prioritize therapy, and helps shift from a deficit‐focused to a ‘can‐do’ attitude. The connectedness theme addresses the linkages between psychological health, physical health, the extended family and the planet as a whole.ConclusionsThe FWLW approach appears to be empowering and motivating for children and families.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Reflexive thematic analysis of a coaching‐based, holistic approach to child development

Sehajpal,

McCrostie,

Charles

et al. 2023

Child

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“…Indigenous research is explicit about the need for research to be conducted in ways that are respectful of local cultural worldviews and mores (George, 2020). Furthermore, the research should be of use to the community or group with which it is conducted, and the processes should be collaborative and involve the sharing of power.…”

Section: Indigenous and Decolonising Methodologiesmentioning

confidence: 99%

“…Arguments have similarly been mounted for research ethics which are informed by world views, values and cultural traditions of indigenous peoples rather than the western values enshrined in institutional ethics policies and codes which were initially proposed in response to medical atrocities and research abuse (West-McGruer, 2020;George, 2020). For example, in relation to indigenous research in Aotearoa New Zealand, Brannelly and Boulton (2017) argue that M aori approaches to research should be grounded in Te Ao M aori 2 and that research relations should be lived in a way that is commensurate with the way that relationships are conducted in M aori life.…”

Section: Indigenous and Decolonising Methodologiesmentioning

confidence: 99%

Ethical challenges in participatory research with children and youth

Loveridge

Wood

Davis-Rae

et al. 2023

Qualitative Research

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The growth of relational, participatory, collaborative and emergent research approaches in recent years has brought new ethical challenges for research with children and youth. These approaches require greater consideration of the specific social and cultural contexts of the research, along with the greater emphasis on researcher–participant relationships that often occur over sustained periods of time. Very few tools are available to help researchers think through the everyday ethical dilemmas such research can raise. In this article, we review the theoretical underpinnings of feminist and indigenous research methodologies that have encouraged these emerging approaches. Through examining an 18-month Youth Participatory Action Research (YPAR) project case study, we critically review ethical moments relating to negotiating consent over a sustained period of time, enhancing co-design and navigating power issues between adult and youth researchers. We conclude with a number of questions to ‘think with’ when reflecting on ethical research with children and youth.

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“…Both documents seek to establish an "ethical space", which exists, once affirmed by both parties, and serves as a meeting place for different worldviews, needs and expecta- er and the sets of values resulting from this use of power (Hirvonen 2008). Veli-Pekka Lehtola (1997Lehtola ( , 2006Lehtola ( , 2012b, Rauna Kuokkanen (2007Kuokkanen ( , 2008aKuokkanen ( , 2008bKuokkanen ( , 2009, Pekka Isaksson (2001) and Jukka Nyyssönen (2008Nyyssönen ( , 2013 (Keskitalo 1976, Kuokkanen 2007, Kuokkanen 2009, Porsanger 2004, Porsanger 2008, Minde et al 2008, Lehtola, 2005.…”

Section: Guidelines To Be Used With Policymentioning

confidence: 99%

Moving forward with Sámi research ethics how the dialogical process to policy development in Canada supports the course of action for the Nordic countries

Juutilainen,

Heikkilä

2024

Preprint

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<p>Indigenous critiques of academic knowledge production emerged around the same timeframe in Canada and the Nordic countries, however, the discourse has led to different outcomes in each country. This paper addresses Indigenous research ethics as a form of self-determination; and, reflects the development and implementation of ethical guidelines and policy for Indigenous research in Canada comparing it to the situation in the Nordic countries. Across Canada there were a series of parallel, multi-level processes involving numerous actors: Indigenous organizations and political organizations, communities, Indigenous and non-Indigenous research Institutions, national research agencies, national research ethics committees, and the creating of an Aboriginal Ethics Working Group to advise on the process. Through a coordinated and consultative practice these numerous actors developed the main contents and enhanced commitment to the implementation of ethical guidelines and policy. Concerning the Nordic countries, while multiple activities have occurred to move this project forward, collaboration between the academic and political spheres on ethical issues occurs less frequently, and Sámi community level involvement has been absent in the interactive dialogue. What appears to be missing in today’s situation is a tangible collaborative agent or platform that would have the authority and capacities to take over the responsibility for coordinating the fragmented and nationally divergent efforts and to promote the political negotiation process both on the Nordic and on the national levels.</p>

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The Ethics of Research and Indigenous Peoples

Cited by 5 publications

References 14 publications

Reflexive thematic analysis of a coaching‐based, holistic approach to child development

Reflexive thematic analysis of a coaching‐based, holistic approach to child development

Ethical challenges in participatory research with children and youth

Moving forward with Sámi research ethics how the dialogical process to policy development in Canada supports the course of action for the Nordic countries

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