The ethnographer, the research participants, and the meaningful others: Gray zones of relationality and the ethics of dementia care research

The Political Life of Research Ethics Committees And What It Means for Ethnographic Research

“…Current debates on ethics in ethnographic (and, more broadly, qualitative) research have been discussed in two main directions: either in regards to researcher-participants relations (e.g., Ludwin and Capstick 2017;Hillman 2017;Eilat 2023;Pieta and Diodati 2023;Groot et al 2023); or in relation to researchers' critical reflections on the inadequacies of research ethics review performed by RECs or other nation correspondents arising after approval and fieldwork completion (Crabtree 2013;Tauzer, Cowdell and Nässén 2023;Balkin et al 2023; for more theoretical discussions on the legal and regulatory frameworks, see Fletcher 2021Fletcher , 2023. Some scholars specifically argue that ethnographic research regarding people living with dementia is not only a method of collecting and analysing data, but also a form of practising ethics (e.g., Ludwin and Capstick 2017;Glavind and Morgensen 2022).…”