The experience of diabetic retinopathy: A qualitative study

Devenney, Roisin; O’Neill, Siobhan

doi:10.1111/j.2044-8287.2010.02008.x

Cited by 29 publications

(34 citation statements)

References 28 publications

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“…Studies exploring psychological adjustment in individuals with diabetes and visual impairment (20) showed that even people with mild DR express feelings of uncertainty and vulnerability at the prospect of vision loss. Similarly to other industrialized countries, the social security system in Italy provides free access to eye care services, such as screening, assessment and treatment for diabetic 8 retinopathy, although in many instances visits are carried out on a fee-for-service basis.…”

Section: Discussionmentioning

confidence: 99%

Quality of life, impaired vision and social role in people with diabetes: a multicenter observational study

et al. 2013

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Section: Discussionmentioning

confidence: 99%

Quality of life, impaired vision and social role in people with diabetes: a multicenter observational study

et al. 2013

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“…For example, focus group participants have described increased social isolation as a result of no longer being able to drive due to DR 26,31 . Recently Devenney et al 27 . found that practical difficulties associated with patients participating in social activities led them to withdraw from social situations and consequently become more socially isolated.…”

Section: Impact Of Dr On Social Well‐beingmentioning

confidence: 99%

“…Similarly, patients undergoing group therapy for DR reported that negative public reactions to vision loss and perceived social stigma fostered feelings of isolation 30 . Patients have also described anxiety over maintaining friendships or acquaintances, or meeting new people because of difficulty recognizing faces, 31 or because of becoming more dependent and feeling burdensome 27 . Younger participants with DR described visual impairment as a major deterrent to finding potential partners and forming romantic relationships 30 .…”

Section: Impact Of Dr On Social Well‐beingmentioning

confidence: 99%

Social and emotional impact of diabetic retinopathy: a review

Fenwick

Rees

Pesudovs

et al. 2012

Clinical Exper Ophthalmology

124

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People with vision-threatening diabetic retinopathy are likely to experience enhanced social and emotional strain. Critically, those with both vision-threatening diabetic retinopathy and psychosocial problems may have significantly reduced levels of functioning compared with psychologically healthy counterparts. This can cause inadequate compliance, increased strain on family functioning, worse diabetes control, increased progression of diabetic retinopathy and, consequently, further psychosocial stress resulting in a number of concerning implications for disease management, clinical outcomes and healthcare costs. However, the emotional and social health consequences of diabetic retinopathy have not yet been systematically explored. This information is crucial as it allows for a targeted approach to treatment and prevention and avoidance of the potentially detrimental implications described above. Therefore, this paper reviews the current qualitative and quantitative evidence regarding the social and emotional impact of diabetic retinopathy and identifies directions for future research. Key search terms were applied to the electronic databases Pubmed, ISI Web of Science and Embase and the bibliographies of relevant papers were systematically reviewed for additional references. Overall, the evidence suggests that diabetic retinopathy and associated vision loss have several debilitating effects, including disruption of family functioning, relationships and roles; increased social isolation and dependence; and deterioration of work prospects resulting in increased financial strain. Adverse emotional responses include fear, anxiety, vulnerability, guilt, loss of confidence, anger, stress and self-perception issues. However, the research to date is largely qualitative in nature, with most quantitative studies being small, cross-sectional and somewhat outdated. Similarly, the outcome measures used in many studies to date are suboptimal in terms of content and validity. Therefore, this review identifies the need for improved outcome measures to provide valid, meaningful measurement of the social and emotional impact of diabetic retinopathy and discusses potential directions for future research such as item banking and computer adaptive testing.

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“…These studies found that patients with a diabetes complication or comorbid condition frequently experienced a sense of dependence, social isolation, and the loss of social and occupational roles [56,65]. Further, patients expressed difficulty interpreting severe symptoms of their condition and knowing when to seek medical attention [57], understanding risks of developing complications associated with diabetes [58,61], maintaining self-care regimens [57,60], communicating with health professionals [59,64], and taking prescribed medications for other health conditions [62].…”

Section: Complications and Comorbiditiesmentioning

confidence: 95%

“…Several qualitative studies have explored diabetes patients' experiences of living with and treating of a single diabetes complication or comorbid condition, including diabetic retinopathy, myocardial infarction, diabetic foot infections, and depression [56][57][58][59][60][61][62][63][64][65]. These studies found that patients with a diabetes complication or comorbid condition frequently experienced a sense of dependence, social isolation, and the loss of social and occupational roles [56,65].…”

Section: Complications and Comorbiditiesmentioning

confidence: 97%

Digging Deeper: The Role of Qualitative Research in Behavioral Diabetes

2011

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Qualitative research methodology is more recognized and valued in diabetes behavioral research in recent years. Qualitative methods help clinicians answer questions that quantitative research may not be able to answer, such as exploring patients' motivations, perceptions, and expectations. This paper reviews recent (2005-present) rigorous qualitative studies of children, adolescents, and adult patients with type 1 and type 2 diabetes with the aim of answering the following research question: How has qualitative research contributed to our understanding of behavioral diabetes care? We focus on studies exploring patients', health care providers', and families' interpersonal experiences of diabetes as well as patients' psychosocial experiences of diagnosis and treatment, self-care, complications, and cultural factors. After reviewing the research in each area, we conclude by discussing how qualitative research contributes to our increased understanding of behavioral diabetes.

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The experience of diabetic retinopathy: A qualitative study

Abstract: The findings highlight the importance of providing these individuals with appropriate professional support to facilitate the management of both conditions.

Cited by 29 publications

References 28 publications

Quality of life, impaired vision and social role in people with diabetes: a multicenter observational study

Quality of life, impaired vision and social role in people with diabetes: a multicenter observational study

Social and emotional impact of diabetic retinopathy: a review

Digging Deeper: The Role of Qualitative Research in Behavioral Diabetes

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