The Experience of Living with a Chronic Illness: A Qualitative Study among End-Stage Renal Disease Patients

Powathil, Ginu George; Kr, Anish

doi:10.1080/15524256.2023.2229034

Cited by 3 publications

(2 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…11,12 Furthermore, the influence of social support in patients undergoing maintenance haemodialysis has been highlighted, with studies showing that social support, coping style, marital status and family income significantly influence patients' post-traumatic growth levels. 9,13 This emphasises the need for holistic support systems to address the multifaceted challenges faced by haemodialysis patients.…”

Section: Samplementioning

confidence: 99%

Correlation of the caring behaviour of nurses with the motivation of patients undergoing haemodialysis

Yosafianti,

Yanto,

Pranata

2024

Scripta Medica

View full text Add to dashboard Cite

Background/Aim: There is a need to establish a satisfactory level of performance for nurses working in haemodialysis units, which will provide qualified competent nurses who will take care of patients. Thus, the purpose of this study was to analyze the caring behaviour of haemodialysis nurses with the motivation of patients undergoing haemodialysis. Methods: The research design was a descriptive correlation approach. The subjects of this study were patients who were undergoing therapy in the haemodialysis room. Researchers collected data for 1 month in September 2023. The relationship between nurses' caring behaviour and haemodialysis patient motivation was determined by conducting a Spearman rank correlation analysis. Results: Out of 118 patients, 48.7 % of patients thought nurses had poor caring behaviour. The research results also showed that patient motivation in undergoing haemodialysis was in the low motivation category (47.8 %). There was a significant relationship between nurses' caring behaviour and patient motivation in undergoing haemodialysis therapy (p = 0.0001). Based on the correlation coefficient value (r = 0.632), the two variables had a strong relationship. Conclusion: Nurses' caring behaviour can increase patient motivation in undergoing haemodialysis therapy. Nurses' caring behaviour still needs to be optimised because the interaction between nurses and patients in the treatment process provides support to patients.

show abstract

Section: Samplementioning

confidence: 99%

Correlation of the caring behaviour of nurses with the motivation of patients undergoing haemodialysis

Yosafianti,

Yanto,

Pranata

2024

Scripta Medica

View full text Add to dashboard Cite

show abstract

“…Freedom and independence loss is the most difficult part of their existence. Their sickness leads them to have a feelings of powerlessness, despair and being a burden to others, asking for help in order to endure their routine [ 8 ]. Thus, they frequently have depressive disorders and experience feelings of fear, anxiety, and hopelessness [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

Investigation of Social Constraints, Psychosocial Adjustment and Optimism among Dialysis Patients

Zorba,

Fasoi,

Grapsa

et al. 2024

Clinics and Practice

View full text Add to dashboard Cite

Background: Social constraints are perceived as unsupportive behaviors, leading to inadequate psychosocial adjustment, while optimism can help people recover from distress and reduce any negative effects of chronic disease. The aim of this study was to investigate social constraints, psychosocial adjustment and optimism among patients on dialysis. Methods: In this study, 402 patients undergoing dialysis in Greece completed the following questionnaires: (i) the Social Constraints Scale (SCS) for the assessment of social constrains, (ii) the Psychosocial adjustment to illness scale (PAIS-SR) for the assessment of psychosocial adjustment, and (iii) the LOT-R scale for the assessment of optimism. A Mann–Whitney test was used for the comparison of continuous variables between two groups. Spearman correlation coefficients (rho) were used to explore the association of two continuous variables. Multiple linear regression analysis was used with the SCS scale. Results: Greater difficulty in psychosocial adjustment in the domestic, vocational, extended family and social environments, sexual relationships, and health care as well as greater psychological distress were significantly associated with a greater occurrence of social constraints (p < 0.001). Additionally, greater optimism was significantly associated with fewer social constraints and lower difficulty in adjusting to their disease (p < 0.001). Conclusions: Greater difficulty in all dimensions of psychosocial adjustment is associated with more social constraints, while optimism is associated with fewer social constraints and better disease adjustment.

show abstract

Social support, family resilience and psychological resilience among maintenance hemodialysis patients: a longitudinal study

Wang,

Qiu,

Ren

et al. 2024

BMC Psychiatry

View full text Add to dashboard Cite

Background Psychological distress is common in maintenance hemodialysis patients, and high psychological resilience can promote psychological well-being. The current research focuses on psychological resilience protective factors such as family resilience and social support. However, the trajectories of psychological resilience, family resilience, and social support over time and their longitudinal relationships in maintenance hemodialysis patients have not been fully explored yet. Therefore, this study aims to explore the longitudinal relationship between these factors. Methods Patients who received regular hemodialysis treatment for more than three months at dialysis centers of three tertiary hospitals in Zhejiang, China, were recruited from September to December 2020. A total of 252 patients who met the inclusion and exclusion criteria completed three follow-up surveys, including social support, family resilience, and psychological resilience assessments. A repeated measures ANOVA was used to explore differences in their respective scores at different time points. The cross-lagged analysis was performed in AMOS using the maximum likelihood method to examine the the reciprocal predictive relationships between these factors. Results Social support and psychological resilience remained relatively stable over time, whereas family resilience indicated a little increasing trend. According to the cross-lagged analysis, higher T1 social support predicted higher family resilience at T2 [β = 0.123, 95% CI (0.026–0.244)]. Further, the effects of T2 social support to T3 family resilience [β = 0.194, 95%CI (0.039–0.335)] and psychological resilience [β = 0.205, 95%CI (0.049–0.354)] were significant. Finally, the effects of T2 family resilience to T3 social support [β = 0.122, 95%CI (0.010–0.225)] and psychological resilience [β = 0.244, 95%CI (0.119–0.359)] were also significant. Conclusions The study showed that the directionality of the relationship appears to be from social support or family resilience to patients’ psychological resilience but not vice versa. This finding reminds healthcare professionals to emphasize the vital role of social and family resources in providing appropriate support and interventions for maintenance hemodialysis patients to promote psychological resilience and mental health development.

show abstract

The Experience of Living with a Chronic Illness: A Qualitative Study among End-Stage Renal Disease Patients

Cited by 3 publications

References 29 publications

Correlation of the caring behaviour of nurses with the motivation of patients undergoing haemodialysis

Correlation of the caring behaviour of nurses with the motivation of patients undergoing haemodialysis

Investigation of Social Constraints, Psychosocial Adjustment and Optimism among Dialysis Patients

Social support, family resilience and psychological resilience among maintenance hemodialysis patients: a longitudinal study

Contact Info

Product

Resources

About