The Experiences and Concerns of Young Adults (18–40 Years) Living with an Implanted Cardioverter Defibrillator (ICD)

McDonough, Annette

doi:10.1016/j.ejcnurse.2009.03.002

Cited by 36 publications

(62 citation statements)

References 34 publications

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“…This is because phantom shocks were predominantly encountered during sleep or sleep-wake transitions with rarer instances while awake [37]. By comparison, although some participants recalled experiencing physical symptoms of nausea, warmth, dizziness, and altered heart rhythm preceding objective shocks [20, 38], the majority were unable to foresee the impending shocks [38]. …”

Section: Resultsmentioning

confidence: 99%

“…Common terms consisting of ‘explosion’, ‘blow’, ‘bomb’, ‘shot by gun’ [20, 23, 30], or terms with close associations like ‘thunder’ [23], ‘lightning’ [30, 38], and even phrases of similar meanings like ‘electric shock’ [38] and ‘sticking your finger in the light socket’ [23] illustrated the suddenness, striking, and high impact nature of objective shocks. Partners in close body contact with the participants also reported feeling a sudden repulsive force of being ‘kicked’ or ‘thrown’ which corroborated with the participants’ account of experiencing objective shocks [23].…”

Section: Resultsmentioning

confidence: 99%

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Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Ooi

Dong

et al. 2016

Health Qual Life Outcomes

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BackgroundSudden cardiac deaths have become a growing major public health concern that affects the world. Despite the various etiologies, life-threatening cardiac arrhythmias attribute the main cause of sudden cardiac deaths. Therefore in certain groups of high-risk patients, the Implantable Cardioverter Defibrillator (ICD) has been recommended as either a secondary or primary prophylactic method of prevention.ObjectiveTo summarise the perceptions of ICD recipients and provide an overview of their experiences with regards to the quality of life, coping strategies, and learning needs.MethodsA systematic search was conducted using CINAHL, MEDLINE, PsycINFO, Scopus, Cochrane Library, and Web of Science. Primary research articles published from January 2005 to January 2016 that met the inclusion criteria were selected and assessed for methodological quality.ResultsThirty-nine articles consisting of 16 qualitative studies, 22 quantitative studies, and 1 mixed methods study were included for the meta-synthesis. Findings extracted from these studies were grouped into eight subthemes with ‘living the ICD experience: a constant process of redefining oneself’ emerging as an over-arching theme.ConclusionThis review provides insight into the perspectives and experiences of ICD recipients. Current evidence highlights the need for healthcare professionals to improve future care standards and develop a patient-centric holistic program that meets the specific needs of ICD recipients. Moreover, future studies are required to address the research gaps identified and also explore the perceptions of patients living with ICD in the Asian context.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Ooi

Dong

et al. 2016

Health Qual Life Outcomes

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“…McDonough 44 examined a sample of young (18-to 40-year-old) patients and found that some individuals experienced anxiety during exercise because of the potential for an ICD shock. 44 Interestingly, some individuals chose to reduce their level of exercise, despite physician advice permitting participation, because of fear of an ICD shock. Other studies have reported similar results, reporting that a fear of exercise is common among ICD patients and that this fear negatively influences quality of life.…”

Section: Exercise Recommendations For Patients With Implantable Cardimentioning

confidence: 99%

“…46,47 These studies highlight the importance of how we negotiate the most effective ways to communicate the risks and benefits of exercise to this patient group, so that they can safely gain quality of life improvements. 44,45 The effect of functional capacity and general fitness on adjustment and anxiety levels of ICD patients has also been examined. In a sample of ARVC patients with an ICD, a reasonably good level of functional capacity (ie, ability to participate in activities, such as daily living, sports, recreational activities) was observed overall.…”

Section: Exercise Recommendations For Patients With Implantable Cardimentioning

confidence: 99%

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Challenges of Exercise Recommendations and Sports Participation in Genetic Heart Disease Patients

Sweeting

Ingles

Ball

et al. 2015

Circ Cardiovasc Genet

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16Low intensity, <4 METS. Moderate intensity, 4-6 METS. High intensity, >6 METS. HCM indicates hypertrophic cardiomyopathy; ICD, implantable cardioverterdefibrillator; LQTS, long QT syndrome; and METS, metabolic equivalent value.*Involves potential for traumatic injury, especially during times of impaired consciousness, for example, because of ICD shock. by guest on May 9, 2018 http://circgenetics.ahajournals.org/ Downloaded from Circ Cardiovasc GenetFebruary 2015 advising restrictions on certain physical activities depending on the underlying genetic heart disease. Both the American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) and the European Society of Cardiology (ESC) have sought to address this issue and have released various recommendation documents, a summary of which is provided in Figure 1. 14,15,29 Although there is a paucity of strong evidence to guide these recommendations, there is a consensus view that maintaining low to moderate intensity activity is important to avoid health burdens associated with physical inactivity.The ACC/AHA recommendations seek to address the conflict between the risk of high-intensity exercise and the risk of a sedentary lifestyle, although also acknowledging the desire of patients to participate in exercise. 15 They specifically focus on patients involved in recreational sports (ie, noncompetitive athletes) and reinforce that patients with a genetic heart disease can still gain some benefit from exercise and sports participation, highlighting the importance of maintaining physical and psychological well-being in this young patient group. Furthermore, an additional recommendations document has focused specifically around competitive athletes engaged in systematic training and competition, where there is emphasis on achievement. 30 An underlying difference is assumed between competitive athletes and recreational participants that necessitates separate recommendations, namely, that nonathletes have greater opportunity to exert reasonable control over their level of exercise and therefore are more likely to reliably detect cardiac symptoms and wilfully terminate physical activity. 15 The ACC/AHA recommendations for those involved in noncompetitive activities categorize a selection of common sports based on the degree of physiological exertion, measured in METS. Recommendations are made for HCM, LQTS, ARVC, and Brugada syndrome patients for each sport, taking into account the characteristics of each condition. Table 1 illustrates a selection of sports and activities, their corresponding intensity measured in METS (categorized according to low, moderate, and high MET values) and the recommendation regarding participation for individuals with HCM and LQTS. The core principle underlying this document is that patients with genetic cardiovascular disease can safely participate in most forms of recreational exercise judged to be of moderate or low intensity. 15 Avoidance of several activities and environmental factors that may increase the lik...

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“Hosting” an implantable cardioverter defibrillator: A phenomenological inquiry

Garrino¹,

Borraccino²,

Peraudo³

et al. 2017

Research in Nursing & Health

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Implantable cardioverter defibrillators (ICDs) can reduce unexpected cardiac mortality, but they also have a dramatic impact on a patient's quality of life. We aimed to explore ICD recipients' experiences in order to foster improvements in the quality of care.Analyses were done using a descriptive phenomenological method, based on qualitative interview data from a purposive sample of 20 ICD recipients. Four main themes emerged: living with fear; relying on technology; knowing about the ICD and how to live with it; and coping with the effects of the ICD on daily life. ICD recipients lived in a constant state of fear due to the presence of the device and the uncertainty related to the potential electrical shocks it could deliver. This fear was compounded by changes that severely affected the quality of their daily life. ICD recipients felt they were always on the brink of death, and that although they received sufficient technical information they did not feel they received meaningful information to help them accept, live with, and cope with the device. Emotional information and support, rather than technical information, must be provided to ICD recipients to give them the ability to cope with the everyday threats they perceive because of the device. Qualitative evidence may help professionals tackle known threats to patients' quality of life and increase the quality of care. K E Y W O R D Simplantable cardioverter defibrillator, patients' lived experience, phenomenological approach, qualitative methodology

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The Experiences and Concerns of Young Adults (18–40 Years) Living with an Implanted Cardioverter Defibrillator (ICD)

Cited by 36 publications

References 34 publications

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Perceptions and experiences of patients living with implantable cardioverter defibrillators: a systematic review and meta-synthesis

Challenges of Exercise Recommendations and Sports Participation in Genetic Heart Disease Patients

“Hosting” an implantable cardioverter defibrillator: A phenomenological inquiry

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