The experiences and perceptions of users of an electronic patient record system in a pediatric hospital setting: a systematic review

Sipanoun, Pippa; Oulton, Kate; Wray, Jo

doi:10.1016/j.ijmedinf.2022.104691

Cited by 22 publications

(15 citation statements)

References 43 publications

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“…The project group engaged with the wider children's community services, with feedback from paediatricians with expertise in Cardiology, Community Children's Nurses, Health Visitors, and nursing assistants. The introduction of electronic records and wider electronic documentation 35 at a national level will be beneficial to communication across all care domains. However, there remains a lack of electronic connections between tertiary and primary care, which makes real-time working a continuous challenge, especially if an infant is sick or deteriorating.…”

Section: Mothermentioning

confidence: 99%

Evaluating the congenital heart assessment tool: a quality improvement project

2022

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Background: An early warning tool, the Congenital Heart Assessment Tool (CHAT), was designed in 2012 to support parental preparation before discharge, enhancing understanding of their infant’s complex CHD, the signs of deterioration to look out for and to support decision-making at home. Acceptability and feasibility of the tool were tested during 2013–2015 in a single centre. Aim of this project: To evaluate the wider implementation across four children’s cardiac centres of the CHAT for infants with complex CHD in the community setting. Design: A four-centre collaborative mixed-methods quality improvement project funded by The Health Foundation, during 2016–2018. A plan, do, study, act cycle of improvement was employed. This article reports on the planning phases, creation of a modified tool (CHATm); and the implementation phases, including retrospective case note review using CHATm; tabletop simulation exercise using CHATm and clinical implementation of CHATm. Results: Key findings included the benefit of using CHATm simulation for practitioners; the effectiveness of CHATm in predicting amber and red triggers, indicating parental actions and escalation of concerns to professionals. Parents using CHATm found it enhanced knowledge in preparation for going home, supported decision-making, and discussions with health care professionals. Conclusion: Using the CHATm clinically identified the need to develop a structured model of assessment of parental suitability for home-monitoring programmes. A robust and nationally agreed training programme for all staff using CHATm was recommended to ensure successful and complete implementation in practice.

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Section: Mothermentioning

confidence: 99%

Evaluating the congenital heart assessment tool: a quality improvement project

2022

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“…This is warranted in a time with an increasing demand for health care and where shortages in healthcare workforce have been forecasted [ 1 ]. Patient portals have the potential to support adolescents in mental health care and enhance their treatment [ 2 , 3 ]. Yet, an article from 2017 searched for literature reporting on patient portals in child and adolescent psychiatry or mental health care and found no publications in this area [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

“…Although there is no research on the use of patient portals for adolescents in mental health care [ 4 ], there are some studies on patient portal use for adolescent patients outside mental health care [ 2 , 6 – 11 ] and on adults in mental health care [ 12 – 20 ] that can provide valuable insight to the field.…”

Section: Introductionmentioning

confidence: 99%

“…Studies concerning patient portals for adolescent patients outside mental health care reports benefits such as improved patient-provider communication [ 2 , 6 , 7 ] and ease of transition into adult care [ 7 ]. In addition, parents’ access to their child’s patient portal can enhance the parents´ understanding of [ 8 ] and involvement in the treatment [ 7 , 9 ].…”

Section: Introductionmentioning

confidence: 99%

“…In addition, parents’ access to their child’s patient portal can enhance the parents´ understanding of [ 8 ] and involvement in the treatment [ 7 , 9 ]. Both adolescents [ 7 , 10 ] and parents [ 2 , 7 , 8 ] have reported interest in using patient portals. However, numerous concerns have been raised, such as healthcare providers unintentionally breaking the confidentiality of their younger patients in cases where parents have access to the patient portal [ 6 , 10 , 11 ].…”

Section: Introductionmentioning

confidence: 99%

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Views on patient portal use for adolescents in mental health care - a qualitative study

Nielsen

Steinsbekk

Nøst

2023

BMC Health Serv Res

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Background Digitalization of health care has opened up for new ways to involve and engage patients. With this, increased attention has been put on digital patient portals. There exists some research on patient portals for adolescent patients in general and for adults in mental health care. However, no studies on patient portals for adolescents in mental health care have been identified in a recent review. The aim was therefore to explore the views on using patient portals for adolescents in mental health care among persons involved in and/or being affected by the introduction of a patient portal. Methods A qualitative study was conducted using individual semi-structured interviews with 14 persons who were healthcare providers in child and adolescent mental health care, young representatives from the user panel, or persons affiliated with an EHR-project introducing a patient portal. The main questions addressed their views on introducing patient portals for adolescents in mental health care and how patient portals and access to clinical notes can affect them and their treatment. Results The findings were categorised into four main themes; “Does access to a patient portal help or harm adolescents?”, “Who decides access?”, “Mostly a political goal” and “Need for support and competency”. Informants mentioned situations in which both adolescents’ and parents’ access to a patient portal could help adolescents in mental health care, but also where it could potentially harm their treatment and threaten confidentiality. Most informants thought that healthcare providers should have the autonomy to determine which information should be shared with whom, but also requested guidelines to ensure equal practice and support in difficult situations. Some perceived patient portals as the result of a political decision, rather than healthcare providers´ wishes, while others described it as a necessary development towards democratization. Conclusion The informants’ views varied from thinking that a patient portal could support adolescents in mental health care, to worrying that it could be detrimental to the treatment. Informants emphasized that the management should facilitate training and support for healthcare providers in using patient portals and telehealth.

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Improving implementation and team communication by integrating a cystic fibrosis transition readiness (CF R.I.S.E.) program into electronic health records

Enochs,

Filbrun,

Hjelm

et al. 2024

Pediatric Pulmonology

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BackgroundThe cystic fibrosis (CF) Responsibility. Independence. Self‐care. Education. (R.I.S.E.) program was developed to provide assessment and education, supporting transition readiness for people with cystic fibrosis (pwCF). Lack of integration within electronic health records (EHR) was a barrier to implementation of CF R.I.S.E. University of Michigan was able to integrate CF R.I.S.E. into EHR.AimTo improve implementation and EHR documentation of CF R.I.S.E. module completion by pwCF across two (CF) programs from baseline (10.5%) to 75% per month in 6 months (January through June 2023).MethodsTwo CF programs utilized quality improvement (QI) methods and tools and ad hoc support by a CF Learning Network (QI) specialist. Eligibility included pwCF ≥16 years old seen in CF clinics who accepted CF R.I.S.E. participation. Beginning January 2, 2023, programs met in biweekly, virtual meetings to discuss implementation. Deidentified data were collected monthly tracking modules completed by pwCF and number of team members engaging with CF R.I.S.E. and documenting in EHR. Data timelines were baseline (November–December 2022), project period (January–June 2023), and post‐project (July–December 2023).ResultsCompletion rates increased from baseline (10.5%) to 48% (range 33% to 81%) through December 2023. During the project, an average 7.7 team members completed an average 19.2 modules per month. Post‐project, an average 8 team members completed an average 16.5 modules per month.ConclusionsThis collaboration demonstrated how utilization of EHR allowed for successful CF R.I.S.E. improvement at both programs. Shared software utilization and QI initiatives may be a way to facilitate timely dissemination of best practices through learning health systems.

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The experiences and perceptions of users of an electronic patient record system in a pediatric hospital setting: a systematic review

Cited by 22 publications

References 43 publications

Evaluating the congenital heart assessment tool: a quality improvement project

Evaluating the congenital heart assessment tool: a quality improvement project

Views on patient portal use for adolescents in mental health care - a qualitative study

Improving implementation and team communication by integrating a cystic fibrosis transition readiness (CF R.I.S.E.) program into electronic health records

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