The experiences of Hispanic families of children with autism spectrum disorder regarding physical activity

Columna, Luis; Felizola, Genesis; Prieto, Laura; Myers, Beth; Streete, Denzil A.; Lightburn, Anita

doi:10.1016/j.ridd.2020.103785

Cited by 11 publications

(7 citation statements)

References 25 publications

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“…Twenty-three papers were identified for synthesis from this search and are listed here alphabetically (Burkett et al, 2021 ; Burrows et al, 2008 ; Columna et al, 2020 ; DeGrace, 2004 ; DeGrace et al, 2014 ; Dickie et al, 2009 ; Epstein et al, 2019 ; Galbraith and Lancaster, 2020 ; Harwood et al, 2019 ; Keller et al, 2014 ; Kim et al, 2018 ; Kirkpatrick et al, 2019 ; Larson, 2006 , 2010 ; Marquenie et al, 2011 ; Naik and Vajaratkar, 2019 ; Potter, 2017 ; Redquest et al, 2020 ; Rios and Scharoun Benson, 2020 ; Schaaf et al, 2011 ; Shannon et al, 2021 ; Suarez et al, 2014 ; Tokatly Latzer et al, 2021 ) (see text footnote 2).…”

Section: Resultsmentioning

confidence: 99%

“…The majority of identified articles were from USA ( N = 11), with other represented countries including Canada ( N = 4) Australia ( N = 4), UK ( N = 1), India ( N = 1), Israel ( N = 1) and Ireland ( N = 1). Most studies used interviews to collect data (DeGrace, 2004 ; Larson, 2006 , 2010 ; Dickie et al, 2009 ; Marquenie et al, 2011 ; Schaaf et al, 2011 ; DeGrace et al, 2014 ; Keller et al, 2014 ; Suarez et al, 2014 ; Potter, 2017 ; Kim et al, 2018 ; Epstein et al, 2019 ; Harwood et al, 2019 ; Naik and Vajaratkar, 2019 ; Columna et al, 2020 ; Redquest et al, 2020 ; Rios and Scharoun Benson, 2020 ; Shannon et al, 2021 ; Tokatly Latzer et al, 2021 ). The remaining studies used focus groups (Kirkpatrick et al, 2019 ; Burkett et al, 2021 ); Qualitative ethology (Burrows et al, 2008 ); and photovoice (Galbraith and Lancaster, 2020 ).…”

Section: Resultsmentioning

confidence: 99%

“… 2 Note the following numbers are used to represent the 23 articles included as eligible for this meta-ethnographic synthesis: 1, Burkett et al, 2021 , 2, Burrows et al, 2008 , 3, Columna et al, 2020 , 4, DeGrace, 2004 , 5, DeGrace et al, 2014 , 6, Dickie et al, 2009 , 7, Epstein et al, 2019 , 8, Galbraith and Lancaster, 2020 , 9, Harwood et al, 2019 , 10, Keller et al, 2014 , 11, Kim et al, 2018 , 12, Kirkpatrick et al, 2019 , 13, Larson, 2006 , 14, Larson, 2010 , 15, Marquenie et al, 2011 , 16, Naik and Vajaratkar, 2019 , 17, Potter, 2017 , 18, Redquest et al, 2020 , 19, Rios and Scharoun Benson, 2020 , 20, Schaaf et al, 2011 , 21, Shannon et al, 2021 , 22, Suarez et al, 2014 , 23, Tokatly Latzer et al, 2021 . …”

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confidence: 99%

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Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation

Daly

Jackson²,

Lynch³

2022

Front. Psychol.

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Autistic children with sensory processing differences successfully navigate and engage in meaningful family daily occupations within home and community environments through the support of their family. To date however, much of the research on autistic children with sensory processing differences, has primarily been deficit focused, while much of the caregiver research has focused on issues of distress, burden, effort, and emotional trauma in coping with their child's diagnosis. This study aimed to conduct a qualitative evidence synthesis, using a meta-ethnographic approach to explore the gap identified in understanding successful occupational experiences of family participation and daily family routines when supporting an autistic child with sensory processing differences and to offer an alternative strengths-based perspective. Inclusion criteria were studies which were peer-reviewed qualitative design, published from 2000 to 2021, and that concerned parents/caregivers' perspectives of family occupations of children diagnosed with autism spectrum disorder. Studies were electronically searched in eight databases from October to December 2021 and 23 studies were identified which met the inclusion criteria. Noblit and Hare's seven step approach for conducting analysis in meta-ethnography was used, and three themes identified: (1) sensory processing differences in daily life, (2) what is hard about hard, and (3) orchestrating family life. Results identified the centrality of sensory experiences in understanding family life. Living with unpredictability while orchestrating certainty through routines was core to successful participation. This review provides insights into how parents negotiate the complexities of constructing family life when living with an autistic child. The results can inform the design of future interventions that specifically address the relationship between meaningful participation in family occupations and daily routines and sensory processing in autistic children.Systematic review registrationhttps://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42022298938, identifier CRD42022298938.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

mentioning

confidence: 99%

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Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation

Daly

Jackson²,

Lynch³

2022

Front. Psychol.

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“…According to the TpB, in order to increase perceived behavioral control, which may lead to PA participation, barriers must be eliminated (Ajzen & Driver, 1991). Two of the most common barriers to PA and practicing FMS are financial barriers and parental lack of knowledge on what activities are beneficial to play with their children (Columna, Felizola, et al, 2020). Furthermore, in previous studies, parents of autistic children have voiced their preferences to do PA with their children, but lack the skills on how to do it (Chaapel et al, 2013; Columna, Felizola, et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Recently, researchers have found that parents have generally positive attitudes toward PA for their autistic child and make efforts to encourage their participation (Columna, Prieto, et al, 2020; Gregor et al, 2018), yet parents encounter several challenges when seeking to facilitate their child's participation. One such barrier is parents lacking the skills to create and maximize these opportunities (Columna, Felizola, et al, 2020; Columna, Prieto, et al, 2020). Therefore, parental education is imperative for the sustainability and promotion of PA interventions (Schultz et al, 2011).…”

Section: Introductionmentioning

confidence: 99%

A randomized parent‐mediated physical activity intervention for autistic children

Prieto,

Meera,

Barry

et al. 2023

Autism Research

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The purpose of this study was to examine the immediate and post effects of a parentmediated physical activity intervention on the fundamental motor skills of autistic children. We randomly assigned parent-child dyads (n = 31) of autistic children aged 4-11 years into three groups (workshop, an online, or control group). Each dyad participated in a 12-week intervention and was given adapted physical activity equipment and over 200 activities via a mobile application. Children were tested at the start and end of the intervention. The effect size (Cohen's d) of the control group for pre-post locomotor and ball skill scores were 0.12 and 0.06, respectively, indicating small effect size. The effect size of the online group for pre-post locomotor and ball skill scores were 49 and 0.26, respectively, indicating medium and small effect sizes. The effect size of the in-person group for pre-post locomotor and ball skill scores were 1.18 and 0.82, respectively, indicating large effect sizes. The outcomes of this physical activity intervention suggest that parents may facilitate the acquisition of fundamental motor skills of their autistic children. Although these results are positive, there is a need to further identify effective interventions for fundamental motor skill development in autistic children. Clinical Trials ID: NCT05159102. Lay SummaryAutistic children can benefit a lot from regular physical activity. Some of these benefits include being healthy and meeting new friends. Regular physical activity can also lead to being on sports teams. But most people agree that you need to be good at activities, like throwing, kicking, Parents can help their autistic children learn activities like throwing, kicking, and running, which are also known as fundamental motor skills. In this study, 31 families were randomly assigned to one group. Each family participated in either the workshop, the online, or the control group. Families in the workshop and online groups completed a 12-week physical activity program. Each participant received adapted physical activity equipment. They also received a mobile application with over 200 activities. The workshop group also attended four in-person workshops. The workshops focused on the needs of autistic children and their parents. The online group attended the workshops via Zoom. We tested children on their fundamental motor skills before and after the program. Parents of autistic children are their children's first teachers. Yet, they may not have the skills to teach their children how to do physical activity. So, our purpose was to focus on teaching parents of autistic children. As a result, children in this study improved their fundamental motor skills. This finding can help inform future programs for parents of autistic children.

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The perceived influence of a physical activity intervention on the intentions of parents of autistic children towards physical activities

Columna,

Meera,

Prieto

et al. 2024

Disability and Health Journal

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The experiences of Hispanic families of children with autism spectrum disorder regarding physical activity

Cited by 11 publications

References 25 publications

Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation

Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation

A randomized parent‐mediated physical activity intervention for autistic children

The perceived influence of a physical activity intervention on the intentions of parents of autistic children towards physical activities

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