The expression of ‘policy’ in palliative care: A critical review

Whitelaw, Sandy; Bell, A. R.; Clark, David

doi:10.1016/j.healthpol.2022.06.010

Cited by 5 publications

(1 citation statement)

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“…The past thirty years have seen increasing prioritisation of policy as a key component of PEOLC development [ 32 – 36 ], even where national policy exists [ 37 , 38 ], progress in PEOLC provision has been shown to be limited [ 39 – 41 ], calling into question the role of policy in driving development [ 37 , 42 ]. A key issue is the extent to which policy is implemented as intended, with a small body of evidence demonstrating the complexities and challenges involved; Whitelaw et al critically discuss a range of issues that challenge the role of policy in palliative care development [ 42 ]. May et al [ 43 ] show how limited resources and competing priorities within both the PEOLC care sector and wider health care system hindered the delivery of Irish national policy.…”

Section: Discussionmentioning

confidence: 99%

Small Steps, Big Vision: using multi-stage qualitative research to develop a grab-and-go guide to support utilisation of the Ambitions for Palliative and End of Life Care framework

Borgstrom,

Jordan,

Ledger

et al. 2024

BMC Palliat Care

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Background The Ambitions for Palliative and End of Life Care is a national framework for local action in England co-produced by over 30 partners; little research has been conducted on how the Framework is received and used. This study sought to examine and support how people understand, interpret, and implement the Framework. Methods A multi-stage qualitative methodology involving four stages of data collection: (1) case study interviews, (2) focus groups, (3) interactive workshops, and (4) Evidence Cafés. From initial interviews, ongoing thematic data analysis informed the design and focus of subsequent stages as part of a process of knowledge transfer. Results A practical resource to support service provision and development was produced; a grab-and-go guide called “Small Steps, Big Visions”. It focuses on the eight foundations in the Ambitions Framework, with additional guidance on collaboration and partnership working, and sharing learning. Each foundation is presented with a ‘what’ (definition), ‘ask’ (prompt questions), and ‘examples in action’ (drawn from case studies). Conclusions Research can contribute to policy implementation to advance palliative and end of life care. The engagement and input of those responsible for implementation is key.

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Section: Discussionmentioning

confidence: 99%

Small Steps, Big Vision: using multi-stage qualitative research to develop a grab-and-go guide to support utilisation of the Ambitions for Palliative and End of Life Care framework

Borgstrom,

Jordan,

Ledger

et al. 2024

BMC Palliat Care

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Refocusing marketing effort to support net-positive social impact

Rundle-Thiele,

Mitchell,

Lee

et al. 2024

EJM

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Purpose Social impact research remains in its infancy. The purpose of the paper is to build on Keeling and Marshall’s (2022) “Call for impact” paper and develop a comprehensive social impact pathway (SIP) framework. The aim is to encourage marketing researchers, non-profits and corporations to pursue impactful work that is valued, planned, monitored and evaluated. Design/methodology/approach The conceptual paper explores the complexities of estimating social impact drawing from a range of illustrative cases. Findings The paper identifies a lack of clarity in the understanding and application of impact and presents a pathway aimed at increasing focus on social impact across future work to deliver the net-positive changes that are needed to reverse biodiversity decline, climate change and social and health inequalities that continue to be persist and be experienced by so many planet wide. Research limitations/implications This paper contributes a pathway forward to encourage and support increased utilisation of the framework in future marketing research. Practical implications Mapping and measuring SIPs are concerted efforts directing understanding towards identifying the activities that are contributing to the delivery of outputs that can achieve intended outcomes. The measurement of impact directs investment towards activities that ensure net-positive gains are achieved. Social implications Ever growing social inequities, health disparities, loss of biodiversity and environmental degradation occur when practices are left unchecked. A focus on impact avoids greenwashing practices, ensuring that an understanding of what has changed because of the work is transparently reported. Originality/value This paper aims to encourage marketing researchers to engage in social change projects, rather than solely disseminating academic findings. Emphasising the importance of an outside-in approach, this paper highlights the necessity of showcasing accumulated outcomes to demonstrate impact.

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How social workers are positioned and constructed as contributors within national palliative care policies in Sweden: a policy analysis

Ågren,

Holmberg

2024

Palliat�Care

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Background: Palliative care is expected to acknowledge physical, psychological, emotional, spiritual, and social needs, to which social workers can contribute with expertise on recognizing the importance of social relations and how social inequalities impact on individuals. The social work profession faces challenges in claiming their contributions in the hierarchies of medical professions. Polices play an important role in constructing and positioning responsibilities of professions. Objectives: To analyze how social workers are positioned as contributors to palliative care within national-level policies in Sweden. Methods and materials: A policy analysis was conducted through a constructivist lens. Data were collected from 10 Swedish national-level policy documents on palliative care. Results: Three themes emerged: “A natural presence conveying special expertise”; “Emotional conversational support before and after death”; and “Practical support.” Overall, social workers’ contribution was vaguely described and in similar ways as registered nurses. Conclusion: In Swedish policies analyzed, social workers’ contributions were difficult to differentiate from that of registered nurses, which may complicate their mutual collaborations and cause confusion for individuals at the end of life and their next of kin. Future research on how different professions are positioned within palliative care is needed to reduce risks of role blurring between professions with similar aims. Moreover, given social workers long history of psychosocial knowledge, meanings of this concept need to be further acknowledged.

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The expression of ‘policy’ in palliative care: A critical review

Cited by 5 publications

References 166 publications

Small Steps, Big Vision: using multi-stage qualitative research to develop a grab-and-go guide to support utilisation of the Ambitions for Palliative and End of Life Care framework

Small Steps, Big Vision: using multi-stage qualitative research to develop a grab-and-go guide to support utilisation of the Ambitions for Palliative and End of Life Care framework

Refocusing marketing effort to support net-positive social impact

How social workers are positioned and constructed as contributors within national palliative care policies in Sweden: a policy analysis

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