The family caregiver experience – examining the positive and negative aspects of compassion satisfaction and compassion fatigue as caregiving outcomes

Lynch, Susan; Shuster, Geoff; Lobo, Marie L.

doi:10.1080/13607863.2017.1364344

Cited by 76 publications

(95 citation statements)

References 28 publications

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“…A study on caregivers from North Carolina, US, showed those giving care to individuals with chronic illness reported high levels of fatigue concepts of burnout (59%) [27]. In our study population, a staggering 66.8% of all caregivers and 79.1% of high-burden caregivers reported experiencing general fatigue during the past three months ( Table 2).…”

Section: Discussionmentioning

confidence: 63%

High Burden among Older Family Caregivers is Associated with High Prevalence of Symptoms: Data from the Swedish Study “Good Aging in Skåne (GÅS)”

Ekström

Auoja

Elmståhl

et al. 2020

Journal of Aging Research

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Background/Aim. Certain groups of informal caregivers have been shown to have worse health compared to noncaregivers. The aim of this cross-sectional study was to explore the health and gender aspects of caregiving in an older Swedish population. Methods. Our study included 5457 participants from the longitudinal, general population study “Good Aging in Skåne.” A total of 33 self-reported symptoms were obtained from questionnaires and were then divided into seven domains: depressive, musculoskeletal, gastrourinary, symptoms related to head, cardiopulmonary, symptoms related to tension, and metabolic symptoms. Multivariate logistic regression analysis was performed to assess the risk of developing symptoms in each of the seven domains, regarding caregiving burden and caregiving in relation to gender. Results. We found that caregivers, compared to noncaregivers, had a higher prevalence for depressive and tension-related symptoms. High-burden caregivers exhibited significantly more individual symptoms and a higher prevalence of symptoms in the depressive, tension, and gastrourinary domains of symptoms compared to both low-burden caregivers and noncaregivers. More than 79% of high-burden caregivers reported general fatigue, and over half of the high-burden caregivers experience depressive mood. Female caregivers showed a significantly higher risk of reporting depressive symptoms (OR = 1.54, 95% CI 1.19–1.98) and tension-related symptoms compared to male caregivers. Conclusion. Depressive and tension-related symptoms were more common in caregivers, especially in high-burden caregivers. High-burden caregivers might be at a risk of adverse mental health, and this highlights the need to offer proper support to these groups.

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Section: Discussionmentioning

confidence: 63%

High Burden among Older Family Caregivers is Associated with High Prevalence of Symptoms: Data from the Swedish Study “Good Aging in Skåne (GÅS)”

Ekström

Auoja

Elmståhl

et al. 2020

Journal of Aging Research

View full text Add to dashboard Cite

show abstract

“…Caregiving responsibilities are associated with a variety of stress-related outcomes [77] that include burnout, chronic health problems, deteriorating self concept, and decline in emotional well-being [78][79][80]. A recent review shows caregiving for a person with dementia is significantly associated with psychological stress and physical ill-health [29] and that specific features of Alzheimer's disease such as aggression, sleep disturbance, and depression negatively impact the physical and mental wellbeing of FCs [81].…”

Section: Discussionmentioning

confidence: 99%

The care capacity goals of family carers and the role of technology in achieving them

et al. 2020

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Background: As global populations age, governments have come to rely heavily on family carers (FCs) to care for older adults and reduce the demands made of formal health and social care systems. Under increasing pressure, sustainability of FC's unpaid care work has become a pressing issue. Using qualitative data, this paper explores FCs' care-related work goals, and describes how those goals do, or do not, link to technology. Methods: We employed a sequential mixed-method approach using focus groups followed by an online survey about FCs' goals. We held 10 focus groups and recruited 25 FCs through a mix of convenience and snowball sampling strategies. Carer organizations helped us recruit 599 FCs from across Canada to complete an online survey. Participants' responses to an open-ended question in the survey were included in our qualitative analysis. An inductive approach was employed using qualitative thematic content analysis methods to examine and interpret the resulting data. We used NVIVO 12 software for data analysis. Results: We identified two care quality improvement goals of FCs providing care to older adults: enhancing and safeguarding their caregiving capacity. To enhance their capacity to care, FCs sought: 1) foreknowledge about their care recipients' changing condition, and 2) improved navigation of existing support systems. To safeguard their own wellbeing, and so to preserve their capacity to care, FCs sought to develop coping strategies as well as opportunities for mentorship and socialization. Conclusions: We conclude that a paradigm shift is needed to reframe caregiving from a current deficit frame focused on failures and limitations (burden of care) towards a more empowering frame (sustainability and resiliency). The fact that FCs are seeking strategies to enhance and safeguard their capacities to provide care means they are approaching their unpaid care work from the perspective of resilience. Their goals and technology suggestions imply a shift from understanding care as a source of 'burden' towards a more 'resilient' and 'sustainable' model of caregiving. Our case study findings show that technology can assist in fostering this resiliency but that it may well be limited to the role of an intermediary that connects FCs to information, supports and peers.

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Section: Discussionmentioning

confidence: 99%

Seeking Resilience: The Care Capacity Goals of Family Carers and the Role of Technology in Achieving Them

Leslie

Gray

Eales

et al. 2019

Preprint

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Background As global populations age, governments have come to rely heavily on family carers (FCs) to care for older adults and reduce the demands made of formal health and social care systems. Under increasing pressure, sustainability of FC’s unpaid care work has become a pressing issue. This paper explores FCs’ care-related work goals, and describes how those goals do, or do not, link to technology. Methods We employed a sequential mixed-method approach using focus groups followed by an online survey about FCs’ goals. We held 10 focus groups and recruited 25 FCs through a mix of convenience and snowball sampling strategies. Carer organizations helped us recruit 599 FCs from across Canada to complete an online survey. Participants’ responses to an open-ended question in the survey were included in our qualitative analysis. An inductive approach was employed using qualitative thematic content analysis methods to examine and interpret the resulting data. We used NVIVO 12 software for data analysis. Results We identified two care quality improvement goals of FCs providing care to older adults: enhancing and safeguarding their caregiving capacity. To enhance their capacity to care, FCs sought: 1) foreknowledge about their care recipients’ changing condition, and 2) improved navigation of existing support systems. To safeguard their own wellbeing, and so to preserve their capacity to care, FCs sought to develop coping strategies as well as opportunities for mentorship and socialization. Conclusions We conclude that a paradigm shift is needed to reframe caregiving from a current deficit frame focused on failures and limitations (burden of care) towards a more empowering frame (sustainability and resiliency). The fact that FCs are seeking strategies to enhance and safeguard their capacities to provide care means they are approaching their unpaid care work from the perspective of resilience. Their goals and technology suggestions imply a shift from understanding care as a source of ‘burden’ towards a more ‘resilient’ and ‘sustainable’ model of caregiving. Our case study findings show that technology can assist in fostering this resiliency but that it may well be limited to the role of an intermediary that connects FCs to information, supports and peers.

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The family caregiver experience – examining the positive and negative aspects of compassion satisfaction and compassion fatigue as caregiving outcomes

Cited by 76 publications

References 28 publications

High Burden among Older Family Caregivers is Associated with High Prevalence of Symptoms: Data from the Swedish Study “Good Aging in Skåne (GÅS)”

High Burden among Older Family Caregivers is Associated with High Prevalence of Symptoms: Data from the Swedish Study “Good Aging in Skåne (GÅS)”

The care capacity goals of family carers and the role of technology in achieving them

Seeking Resilience: The Care Capacity Goals of Family Carers and the Role of Technology in Achieving Them

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