The Financial Cost Incurred by Families of Children on Long-Term Dialysis

Bello, Abdulafeez Oyesola; Sangweni, Beauty; Mudi, Abdullahi; Khumalo, Thandokuhle; Moonsamy, Glenda; Levy, Cecil

doi:10.3747/pdi.2017.00092

Cited by 20 publications

(18 citation statements)

References 15 publications

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“…Furthermore, most caregivers in our study were illiterate and of lower educational levels, which make their chances of finding jobs low. Two previous studies show that caregivers of children with ESRD were unemployed and financially supported by another member of the family [24,25].…”

Section: Discussionmentioning

confidence: 99%

Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt

Darwish

Hassan

Taha

et al. 2020

J. Egypt. Public. Health. Assoc.

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Background Chronic disease greatly increases children’s dependency on parents/caregivers (usually mothers) as they face new problems associated with caring for a child with chronic disease. Thus, chronic kidney disease (CKD) presents a burden for children and their families that last throughout life in different aspects. This study aimed to assess family impact and economic burden of chronic kidney disease (CKD) in children on their families. Methods A cross-sectional study was carried out on 250 caregivers of children with CKD attending tertiary care hospital/health insurance clinics in Assiut, Egypt using PedsQL™ family impact module (FIM) for assessing family impact and economic burden between January and May 2018. Results Seventy six percent of caregivers shared paying for treatment with health insurance while 14% paid the total expenses out of their pockets. Although the majority (87.2%) of caregivers suffered different degrees of financial hardship, more than 60% of them had no coping strategy. The regression module showed that responding caregiver, degree of financial hardship, treatment modality, and socioeconomic class were significant predictors of total FIM (β = 0.38, P < 0.001; β = 0.28, P < 0.001; β = 0.22, P < 0.001; β = 0.13, P = 0.006 respectively). Conclusion Most caregivers were involved in paying for treatment of their children either totally or sharing with health insurance and suffered different degrees of financial hardship. Mothers, caregivers with great financial hardship, and caregivers of children on dialysis had the lowest scores of PedsQL™ FIM. There is a high need for expansion of health insurance umbrella to reduce financial hardship together with continued multidimensional support to families.

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Section: Discussionmentioning

confidence: 99%

Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt

Darwish

Hassan

Taha

et al. 2020

J. Egypt. Public. Health. Assoc.

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“…25 This finding mirrors those of Medway et al 25 and others and reveals that the impact of the dramatic financial costs of dialysis treatment may be universal regardless of health care system. 18,24,36 Caregiver description of a perverse incentive to remain destitute to qualify for state-provided Medicaid insurance reflects a peculiarity of the American health care system. These expenses reinforce the importance of continued advocacy by the nephrology community for the provision of resources to our patients and their families but also raise questions over how much expense is reasonable for a family to take on.…”

Section: Thirty Years Ago the Ethicist Cynthiamentioning

confidence: 99%

Caregiver Experience in Pediatric Dialysis

et al. 2019

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“…In this regard, nutritional management is in keeping with the “R” of “Reduction” of the ecologic impact linked to dialysis need, with all the implications previously described [ 107 , 108 ]. Retarding dialysis has a comprehensive impact on other issues, such as transportation and use of hospital structures, usually lower in pre-dialysis patients than in those on dialysis [ 109 – 111 ].…”

Section: Clinical Themesmentioning

confidence: 99%

Green nephrology and eco-dialysis: a position statement by the Italian Society of Nephrology

et al. 2020

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High-technology medicine saves lives and produces waste; this is the case of dialysis. The increasing amounts of waste products can be biologically dangerous in different ways: some represent a direct infectious or toxic danger for other living creatures (potentially contaminated or hazardous waste), while others are harmful for the planet (plastic and non-recycled waste). With the aim of increasing awareness, proposing joint actions and coordinating industrial and social interactions, the Italian Society of Nephrology is presenting this position statement on ways in which the environmental impact of caring for patients with kidney diseases can be reduced. Due to the particular relevance in waste management of dialysis, which produces up to 2 kg of potentially contaminated waste per session and about the same weight of potentially recyclable materials, together with technological waste (dialysis machines), and involves high water and electricity consumption, the position statement mainly focuses on dialysis management, identifying ten first affordable actions: (1) reducing the burden of dialysis (whenever possible adopting an intent to delay strategy, with wide use of incremental schedules); (2) limiting drugs and favouring "natural" medicine focussing on lifestyle and diet; (3) encouraging the reuse of "household" hospital material; (4) recycling paper and glass; (5) recycling non-contaminated plastic; (6) reducing water consumption; (7) reducing energy consumption; (8) introducing environmental-impact criteria in checklists for evaluating dialysis machines and supplies; (9) encouraging well-planned triage of contaminated and non-contaminated materials; (10) demanding planet-friendly approaches in the building of new facilities.

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The Financial Cost Incurred by Families of Children on Long-Term Dialysis

Abstract: Transport cost for our patients on dialysis significantly impacts on the overall family income, especially for patients on HD, and, without government aid, the families of our patients would have far less money available for their daily needs.

Cited by 20 publications

References 15 publications

Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt

Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt

Caregiver Experience in Pediatric Dialysis

Green nephrology and eco-dialysis: a position statement by the Italian Society of Nephrology

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