The GenderCOS project: study protocol for the development of two international Core Outcome Sets for genital gender affirming surgery

Roijer, Philippine J.; Vallinga, Marleen S.; Pidgeon, Thomas E.; Ceulemans, Aline; Bakker, Alex; Carrière, Brenda; Rashid, Tina; Bellringer, James; Belinky, Javier; Buncamper, Marlon; Morrison, Shane D.; Bouman, Walter P.; Bouman, Mark-Bram; Mullender, Margriet G.

doi:10.1080/26895269.2023.2288881

Cited by 2 publications

(1 citation statement)

References 43 publications

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“…29 Similarly, the GenderCOS aims to develop two clinician-observed core outcome sets for genital gender-affirming surgery, which may improve the quality and consistency of MaPGAS data collected and reported, which can improve the information available for patient education. 30 The decisional uncertainty and conflict found in our cohort of individuals considering MaPGAS may also be addressed through a MaPGAS decision support tool. Top reasons for decisional uncertainty (Table 3) in this study mirrored the Ottawa Decision Support Framework domains for criteria needed to make a quality decision including fear of complications, concern about outcomes, cost associated with surgery, lack of knowledge and information about MaPGAS, and difficulty weighing risks and benefits.…”

Section: Wonder If My Dysphoria Is Strong Enough To Justify Going Thr...mentioning

confidence: 98%

Exploring Decisional Conflict Experienced by Individuals Considering Metoidioplasty and Phalloplasty Gender-affirming Surgery

Otto-Moudry,

Kinney,

Butcher

et al. 2024

Plastic and Reconstructive Surgery - Global Open

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Background: Metoidioplasty and phalloplasty gender-affirming surgery (MaPGAS) is increasingly performed and requires patients to make complex decisions that may lead to decisional uncertainty. This study aimed to evaluate decisional conflict in individuals considering MaPGAS. Methods: We administered a cross-sectional survey to adult participants assigned female sex at birth and considering MaPGAS, recruited via social media platforms and community health centers. We collected data on demographics, medical and surgical history, MaPGAS type considered, and the Decisional Conflict Scale (DCS). DCS scores range from 0 to 100 (>37.5 indicates greater decisional conflict). Demographic characteristics and DCS scores were compared between subgroups, using descriptive and chi-square statistics. Participants commented on MaPGAS uncertainty, and their comments were evaluated and thematically analyzed. Results: Responses from 264 participants were analyzed: mean age 29 years; 64% (n = 168) trans men, 80% (n = 210) White, 78% (n = 206) nonrural, 45% (n = 120) privately insured, 56% (n = 148) had 4 or more years of college, 23% (n = 84) considering metoidioplasty, 24% (n = 87) considering phalloplasty, and 26% (n = 93) considering metoidioplasty and phalloplasty. DCS total scores were significantly higher (39.8; P < 0.001) among those considering both MaPGAS options, as were mean ratings on the Uncertainty subscale [64.1 (SD 25.5; P < 0.001)]. Concerns surrounding complications were the top factor contributing to uncertainty and decisional conflict. Conclusions: In a cross-sectional national sample of individuals seeking MaPGAS, decisional uncertainty was the highest for those considering both MaPGAS options compared with metoidioplasty or phalloplasty alone. This suggests this cohort would benefit from focused decision support.

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Section: Wonder If My Dysphoria Is Strong Enough To Justify Going Thr...mentioning

confidence: 98%

Exploring Decisional Conflict Experienced by Individuals Considering Metoidioplasty and Phalloplasty Gender-affirming Surgery

Otto-Moudry,

Kinney,

Butcher

et al. 2024

Plastic and Reconstructive Surgery - Global Open

View full text Add to dashboard Cite

show abstract

Navigating toward standardization: a systematic review mapping outcome measures in masculinizing genital gender affirming surgery

Roijer,

Vallinga,

Jorna

et al. 2024

International Journal of Transgender Health

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The GenderCOS project: study protocol for the development of two international Core Outcome Sets for genital gender affirming surgery

Cited by 2 publications

References 43 publications

Exploring Decisional Conflict Experienced by Individuals Considering Metoidioplasty and Phalloplasty Gender-affirming Surgery

Exploring Decisional Conflict Experienced by Individuals Considering Metoidioplasty and Phalloplasty Gender-affirming Surgery

Navigating toward standardization: a systematic review mapping outcome measures in masculinizing genital gender affirming surgery

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