The growing burden of long COVID in the United Kingdom: Insights from the UK Coronavirus Infection Survey

Gokani, Shyam; Ta, Ngan; Espehana, Andreas; Garden, Elizabeth Mairenn; Klyvyte, Gabija; Luke, Louis; Myuran, Tharsika; Uththerakunaseelan, Vinushy; Boak, Duncan; Philpott, Carl

doi:10.1002/alr.23103

Cited by 5 publications

(3 citation statements)

References 10 publications

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“…We identified a complex interplay of factors that impacted on referral from GP to community rehabilitation, including in some health boards a reluctance to promote services due to existing or anticipated capacity issues. Indeed, the dedicated Long COVID service in our study was quickly overwhelmed, demonstrating the real need for Long COVID rehabilitation, which the current epidemiology literature supports,2 29 and highlighting a capacity issue that needs to be urgently addressed.…”

Section: Discussionmentioning

confidence: 75%

Investigating Scottish Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals: a qualitative descriptive study

Duncan,

Alexander,

Cowie

et al. 2023

BMJ Open

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ObjectivesThis study aimed to explore the perceptions and experiences of barriers and facilitators to accessing Long COVID community rehabilitation.DesignWe used a qualitative descriptive design over two rounds of data collection with three participant groups: (1) people with experience of rehabilitation for Long COVID (PwLC); (2) National Health Service (NHS) staff delivering and/or managing community rehabilitation services (allied health professionals (AHPs)) and (3) NHS staff involved in strategic planning around Long COVID in their health board (Long COVID leads).SettingFour NHS Scotland territorial health boards.Participants51 interviews: eight Long COVID leads (11 interviews); 15 AHPs (25 interviews) and 15 PwLC (15 interviews).ResultsThree key themes were identified: (1) accessing care for PwLC, (2) understanding Long COVID and its management and (3) strengths and limitations of existing Long COVID rehabilitation services.ConclusionsOrganisational delivery of Long COVID community rehabilitation is complex and presents multiple challenges. In addition, access to Long COVID community rehabilitation can be challenging. When accessed, these services are valued by PwLC but require adequate planning, publicity and resource. The findings presented here can be used by those developing and delivering services for people with Long COVID.

show abstract

Section: Discussionmentioning

confidence: 75%

Investigating Scottish Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals: a qualitative descriptive study

Duncan,

Alexander,

Cowie

et al. 2023

BMJ Open

View full text Add to dashboard Cite

show abstract

“…We identified a complex interplay of factors that impacted on referral from GP to community rehabilitation, including in some health boards a reluctance to promote services due to existing or anticipated capacity issues. Indeed, the dedicated Long COVID service in our study was quickly overwhelmed, demonstrating the real need for Long COVID rehabilitation, which the current epidemiology literature supports [3 27], and highlighting a capacity issue that needs to be urgently addressed.…”

Section: Discussionmentioning

confidence: 86%

Perceptions and experiences of different Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals

Duncan,

Alexander,

Cowie

et al. 2023

Preprint

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Objectives: To explore the perceptions and experiences of barriers and facilitators to accessing Long COVID community rehabilitation. Design: We used a qualitative descriptive design over two rounds of data collection with three participant groups: i) people with experience of rehabilitation for Long COVID (PwLC), ii) NHS staff delivering and/or managing community rehabilitation services (allied health professionals (AHPs)), and iii) NHS staff involved in strategic planning around Long COVID in their health board (Long COVID leads). Setting: Four NHS Scotland territorial health boards. Participants: 51 interviews: eight Long COVID leads (11 interviews), 15 AHPs (25 interviews), and 15 PwLC (15 interviews). Results: Three key themes were identified: i) Accessing care for PwLC, ii) Understanding Long COVID and its management, and iii) Strengths and limitations of existing Long COVID rehabilitation services. Conclusions: Organisational delivery of Long COVID community rehabilitation is complex and presents multiple challenges. In addition, access to Long COVID community rehabilitation can be challenging. When accessed, these services are valued by PwLC but require adequate planning, publicity, and resource. The findings presented here can be used by those developing and delivering services for people with Long COVID.

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“…However, recent clinical modeling projected that smell and taste dysfunction post COVID-19 may affect between 12 and 15 million people worldwide (Tan et al, 2022). Parosmia can be long term; Tognetti et al (2021) reported that, up to 18 months after recovery from COVID-19, almost half of their sample of 100 people still complained of parosmia (UK data: Gokani et al, 2023;Lechner, Liu, Counsell, Gillespie, et al, 2023. US data: Lechner, Liu, Counsell, Yan, et al, 2023.…”

mentioning

confidence: 99%

Everything smells like poo, landfill, and rotten food”: A retrospective case report using Clinical Emotional Freedom Techniques (EFT) for parosmia following COVID-19

Boath,

Philpott

2023

EPJ

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Parosmia is a disorder of scent that has affected millions of people worldwide following their recovery from COVID-19. Parosmia post COVID-19 can be long-term and has a negative impact on quality of life. Despite this there is limited evidence for effective treatment strategies. This retrospective case report details the use of Clinical Emotional Freedom Techniques (EFT) to address parosmia following COVID-19 with a single client over three sessions. The sessions addressed specific food, drink, and odors that were having a major negative impact on the client’s quality of life, psychological well-being, physical health, weight, and relationships. By the end of the three sessions, the client was able to tolerate certain scents and eat foods that the client selected to tap on. The client’s quality of life improved to the point where she was able to eat, go out to restaurants, socialize, and ultimately return to work. Whether EFT can be successfully applied to other people experiencing parosmia following COVID-19 or parosmia caused by other conditions is not clear and requires further research. Keywords: parosmia, sense of smell, COVID-19, Clinical Emotional Freedom Techniques, EFT

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The growing burden of long COVID in the United Kingdom: Insights from the UK Coronavirus Infection Survey

Cited by 5 publications

References 10 publications

Investigating Scottish Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals: a qualitative descriptive study

Investigating Scottish Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals: a qualitative descriptive study

Perceptions and experiences of different Long COVID community rehabilitation service models from the perspectives of people living with Long COVID and healthcare professionals

Everything smells like poo, landfill, and rotten food”: A retrospective case report using Clinical Emotional Freedom Techniques (EFT) for parosmia following COVID-19

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