The guideline of the personal health data structure to secure safety healthcare

Ishikawa, Kiyomu; Ohmichi, Hisashi; Umesato, Yoshimasa; Terasaki, Hitoshi; Tsukuma, Hidehiko; Iwata, Norikazu; Tanaka, Takeshi; Kawamura, Akie; Sakata, Kayo; Sainohara, Teruko; Sugimura, Miyuki; Konishi, Naomi; Umemoto, Reiko; Mase, Shinji; Takesue, Shinichi; Tooya, Masashi

doi:10.1016/j.ijmedinf.2006.09.005

Cited by 13 publications

(3 citation statements)

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“…It has been noted [9] that the preservation of data relating to electronic health records (EHR) is a critical issue, even if at times the staff may adopt an attitude of mistrust with regard to computerized systems for patient management [21]. The security of data is consequently a fundamental aspect of the programme, bearing in mind that frequently data pertaining to DREAM patients on treatment is the only clinical data which exists about them.…”

Section: Methodsmentioning

confidence: 99%

A global approach to the management of EMR (Electronic Medical Records) of patients with HIV/AIDS in Sub-Saharan Africa: the experience of DREAM Software

Nucita

Bernava

Bartolo

et al. 2009

BMC Med Inform Decis Mak

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BackgroundThe DREAM Project operates within the framework of the national health systems of several sub-Saharan African countries and aims to introduce the essential components of an integrated strategy for the prevention and treatment of HIV/AIDS. The project is intended to serve as a model for a wide-ranging scale-up in the response to the epidemic. This paper aims to show DREAM's challenges and the solutions adopted. One of the solutions is the efficient management of the clinical data regarding the treatment of the patients and epidemiological analyses.MethodsSpecific software for the management of the patients' EMR has been created within the DREAM programme in order to deal with the challenges deriving from the context in which DREAM operates. Setting up a computer infrastructure in health centres, providing a power supply, as well as managing the data and the project resources efficiently and reliably, are some of the questions that have been analysed in this study.ResultsOver the years this software has proved that it is able to respond to the need for efficient management of the clinical data and organization of the health centres. Today it is used in 10 countries in sub-Saharan Africa by thousands of professionals and by now it has reached its fourth version. The medical files of over 73,000 assisted patients are managed by this software and the data collected with it have become essential for the epidemiological research that is carried out to improve the effectiveness of the therapy.ConclusionSub-Saharan Africa is the region hardest hit by HIV and AIDS in the world. However, the resources and responses adopted so far, to confront the epidemic, have at times been rather minimalist. The DREAM project has faced the battle against the epidemic by equipping itself with qualitative standards comparable to Western ones. The experience of DREAM has revealed that it is indeed possible to guarantee levels of excellence in developing countries, also in the sphere of ICT (Information and Communication Technology), thus making the intervention even more effective and contributing to bridging the digital divide.

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Section: Methodsmentioning

confidence: 99%

A global approach to the management of EMR (Electronic Medical Records) of patients with HIV/AIDS in Sub-Saharan Africa: the experience of DREAM Software

Nucita

Bernava

Bartolo

et al. 2009

BMC Med Inform Decis Mak

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“…For instance, the value of visualization modalities [28], mobile-based solutions for integration of PHD to healthcare systems [31] and strategies for development of infrastructures for management of PHD [32]. Many researchers have carried out studies focusing on security and privacy issues of PHD proposing solutions for minimizing data breaches [33], or legal frameworks, policies and ethical considerations for protection of PHD [34,35,36]. PHD management leveraging meta-data and cloud-computing for seamless access and sharing of data among medical professionals [37], as well as access control and security of PHD in cloud-computing have also been the subject of discussions [38].…”

Section: Background and Significancementioning

confidence: 99%

Personal health data: A systematic mapping study

Karampela

Ouhbi

Isomursu

2018

International Journal of Medical Informatics

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“…Public health surveillance uses and analyses personal health data from a variety of sources. The primary use of information needed for the medical care of a patient has to be distinguished from its secondary use (Ishikawa, 2007) -Prevent unauthorized use of personal data.…”

Section: Major Privacy Challengesmentioning

confidence: 99%

Privacy Challenges in the Use of eHealth Systems for Public Health Management

Raychaudhuri

Ray

2010

International Journal of E-Health and Medical Communications

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Privacy is a major issue in information management for public health needs. For example, the surveillance of infectious diseases, such as HIV, is an important function of public health and it presents major privacy concerns for affected people. While their privacy must be protected, privacy concerns should not come in the way of effective data collection and surveillance. In this paper, the authors present a survey of published work covering privacy challenges in the use of eHealth systems, especially in the context of public health management. The authors identify and present the major privacy challenges, their effects on personal patient privacy and public health management based on the review of research in electronic data privacy and eHealth privacy. The authors also present a survey of privacy-preserving technologies and solutions that address these challenges.

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The guideline of the personal health data structure to secure safety healthcare

Cited by 13 publications

References 1 publication

A global approach to the management of EMR (Electronic Medical Records) of patients with HIV/AIDS in Sub-Saharan Africa: the experience of DREAM Software

A global approach to the management of EMR (Electronic Medical Records) of patients with HIV/AIDS in Sub-Saharan Africa: the experience of DREAM Software

Personal health data: A systematic mapping study

Privacy Challenges in the Use of eHealth Systems for Public Health Management

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