The health needs of people with intellectual disability

Abstract

Medicine is failing people with an intellectual disability‐ a national response is required

Beating the barriers: recruitment of people with intellectual disability to participate in research

“…There are few large epidemiological studies about the health of adults with intellectual disability (ID), despite the evidence of poor health status in this group (Beange et al. 1995; Lennox et al. 2000) .…”

Testing the Feasibility of a DVD-Based Intervention to Promote Preparedness for Mammography in Women with Intellectual Disabilities

“…Women with ID also have lower rates of regular mammography screening as compared to women without disabilities (6), and screening utilization further varies across residential settings (7). Barriers to mammography documented in the literature include lack of mammography-related knowledge (8), limited understanding of general health-related content and lack of health education (9), fear and anxiety-related challenging behaviors that prevent receipt of the exam (10), transportation and other community-level barriers (11), lack of education/comfort with working with patients with ID on the part of health care providers that may prevent referral for mammography (11, 12, 13) and health systems factors (14, 15). There is a clear need for effective interventions to increase mammography rates among women with intellectual disabilities (2,12).…”

An investigation into the public health roles of community learning disability nurses

“…Lennox et al . () have noted the need for effective health advocacy from relevant health professionals. A limited number of studies that scrutinised access to health promotion activities by people with learning disabilities, exist (Messent et al …”

“…Lennox et al . () have argued that the opportunistic approach to preventative health for people with learning disabilities was not adequate to meet the healthcare needs of this population. Although in the UK the introduction of the Quality Outcomes Framework (QOF) in 2004 (NHS Employers ) and the later introduction of Directed Enhanced Services (DES) in England [ Scottish enhanced services programme (SESP) in Scotland], which placed the responsibility of preventative health service provision for people with learning disabilities on GPs, there has been a longstanding debate as to whether this role belongs to primary care or to the community team for people with learning disabilities (Curtice & Long ; Matthews & Hegarty ).…”