The HIV-specific advance directive

Сингер, Петер; Thiel, Elaine C.; Salit, Irving E.; Flanagan, W. F.; Naylor, C. David

doi:10.1046/j.1525-1497.1997.07157.x

Cited by 37 publications

(21 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In addition, the American Academy of Neurology and the American Society of Clinical Oncology have surveyed their memberships on end-of-life issues 21,22 and have published consensus statements on the role of these specialties in palliative care 23,31 .…”

Section: Continuing Medical Educationmentioning

confidence: 99%

Professional Education in End-of-Life Care: A US Perspective

Aulino

Foley

2001

J R Soc Med

View full text Add to dashboard Cite

Section: Continuing Medical Educationmentioning

confidence: 99%

Professional Education in End-of-Life Care: A US Perspective

Aulino

Foley

2001

J R Soc Med

View full text Add to dashboard Cite

“…Some efforts have focused on strategies for increasing advance‐directive completion rates 25 using techniques such as computer‐generated reminders, dissemination of educational materials, and targeted mailings. Others have focused on the creation of more meaningful advance directive documents such as ‘values histories’, 26 detailed preference directives 27 and disease‐specific directives 28 . While some of these efforts have had modest success, only the most intense community‐wide efforts have made substantive overall improvements in advance care planning, 29 and these intensive efforts are difficult to replicate.…”

Section: Introductionmentioning

confidence: 99%

Development of an interactive computer program for advance care planning

Green

Levi

2009

Health Expectations

View full text Add to dashboard Cite

Objective To describe the development of an innovative, multimedia decision aid for advance care planning. Background Advance care planning is an important way for people to articulate their wishes for medical care when they are not able to speak for themselves. Living wills and other types of advance directives are the most commonly used tools for advance care planning, but have been criticized for being vague, difficult to interpret, and inconsistent with individuals’ core beliefs and values. Results We developed a multimedia, computer-based decision aid for advance care planning (‘Making Your Wishes Known: Planning Your Medical Future’) to overcome many of the limitations of standard advance directive forms. This computer program guides individuals through the process of advance care planning, and unlike standard advance directives, provides tailored education, values clarification exercises, and a decision-making tool that translates an individual’s values and preferences into a specific medical plan that can be implemented by a health-care team. Pilot testing with 50 adult volunteers recruited from an outpatient primary care clinic showed high levels of satisfaction with the program. Further pilot testing with 34 cancer patients indicated that the program was perceived to be highly accurate at representing patients’ wishes. Conclusions This paper describes the development of an innovative decision aid for advance care planning that was designed to overcome common problems with standard advance directives. Preliminary testing suggests that it is acceptable to users and is accurate.

show abstract

“…Nevertheless, it may be appropriate for patients with certain diseases, such as amyotrophic lateral sclerosis (ALS), that have a predictable course near the end of life. 2,9,10 The apparent lack of benefit of advance directives does not mean that a person's preferences and values ought to be discounted when he or she is no longer able to express them directly. Rather, instructive advance directives (i.e., directives that include instructions regarding what interventions should or should not be provided under certain specified circumstances) alone have proven to be ineffective tools to achieve the end of preserving some remnant of individual autonomy after the loss of decisional capacity.…”

mentioning

confidence: 99%