The hospice as a learning environment: A follow-up, qualitative study with palliative care professionals and school teachers involved in a previous death education intervention

Testoni, Ines; Sblano, Fabio Vito; Palazzo, Lorenza; Pompele, Sara; Wieser, Michael

doi:10.21203/rs.2.16203/v4

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“…Experiences of DeEd as primary prevention have shown that it does not produce negative effects but allows better management of related anxiety, decreases alexithymia, increases empathic understanding of others and approaches them by learning to understand their viewpoints and emotional experiences and to re-evaluate aspects of one’s life [ 13 , 19 , 20 , 21 ]. Starting from different multidisciplinary contexts, DeEd can be carried out through moments of “formal” theoretical lessons, combined with “informal” lessons that may include imaginative techniques and art therapy experiences such as photovoice, phototherapy, and psychodrama [ 13 , 18 , 19 , 22 , 23 ].…”

Section: Introductionmentioning

confidence: 99%

“Imagine You Have ALS”: Death Education to Prepare for Advance Treatment Directives

Testoni

Palazzo

Calamarà

et al. 2021

Behavioral Sciences

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The study presents the results of qualitative research carried out within a death education project dedicated to advance treatment directives (ATDs) in which it was proposed to participants to empathize with people who had received a diagnosis of Amyotrophic Lateral Sclerosis (ALS). The study involved 104 people who discussed and reflected on issues related to the knowledge of having to die, palliative care and ATDs, investigating what choices they would have made if they had received such a diagnosis. Finally, they were asked to write a paper describing their impressions and hypothetical choices. Qualitative analysis has elucidated among fundamental themes. Four thematic areas emerged from the data analysis: (1) ATDs and the family; (2) the importance of reducing pain and suffering; (3) emotions and considerations regarding death, illness and spirituality; and (4) opinions on the DeEd course. It has emerged that some people are unfamiliar with palliative care or the right to self-determination and that addressing these issues helps manage the thought of the future with less terror. The experience of death education has therefore proven to be very positive in dealing with complex and often censored issues, allowing thinking about death in a less distressing way.

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