The “humane in the loop”: Inclusive research design and policy approaches to foster capacity building assistive technologies in the COVID-19 era

Bricout, John C.; Greer, Julienne; Fields, Noelle; Xu, Ling; Tamplain, Priscila; Doelling, Kris; Sharma, Bonita B.

doi:10.1080/10400435.2021.1930282

Cited by 10 publications

(5 citation statements)

References 72 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…An additional example may include visual aids to help create familiar environments and enhance an individual's ability to recall past events. These approaches demonstrate the inclusive nature of participatory design when experimenting with assistive technologies [14]. This research approach leads to a strengthened network between PwADRD, researchers, and technology developers.…”

Section: The Voice Of the Users -Participatory Action Design Methodologymentioning

confidence: 85%

“…By employing the participatory action methodology introduced in the previous section, AT design pays attention to the relations between people and technologies, individuals' dual roles as recipients and contributors to AT and systemic bias. Participatory action methodology sheds light on the transient nature of interdependence and the fluid nature of disability [14]. By understanding that accessibility depends on factors specific to a situation, AT design can account for individual experiences and uncover a broader range of influential factors.…”

Section: Independence and Interdependence In Active Assistive Livingmentioning

confidence: 99%

See 1 more Smart Citation

Perspective Chapter: Assistive Technology Ecosystem for Effective Self-Care – Application to Alzheimer’s and Related Dementia

Chen¹,

Sikand²,

Zhu³

et al. 2023

Biomedical Engineering

View full text Add to dashboard Cite

People living with Alzheimer’s disease and related dementias (PwADRD)experience declined memory, language, problem-solving and other cognitive functions caused by the disease. They face major challenges in self-care and assistive living, including equitable access to assistive technology and care, the right to choose where to live, protection of privacy and security, and the preserving their personhood and social connections. Fast advances in telecommunication, Internet of Things (IoT) technology, and artificial intelligence make it possible to devise an assistive technology ecosystem to address these challenges. This chapter presents an assistive technology ecosystem that enables autonomy, independence and interdependence among PwADRD, their circle of care and society. Participatory action research and design methodology underpin this ecosystem’s design and implementation. We also discuss funding policy and health system changes needed to facilitate the affordability and sustainability of such an ecosystem and, ultimately, to empower PwADRD and their caregivers to have a meaningful quality of life.

show abstract

Section: The Voice Of the Users -Participatory Action Design Methodologymentioning

confidence: 85%

Section: Independence and Interdependence In Active Assistive Livingmentioning

confidence: 99%

Perspective Chapter: Assistive Technology Ecosystem for Effective Self-Care – Application to Alzheimer’s and Related Dementia

Chen¹,

Sikand²,

Zhu³

et al. 2023

Biomedical Engineering

View full text Add to dashboard Cite

show abstract

“…In line with other researchers such as Gustafsson and colleagues [21], we argue that presenting robotic animals as live animals is deceptive, particularly for persons with dementia. As in other studies of social robotics, end-user (e.g., patient) participation is critical for the ethical integration of these new technologies [56]. Trustworthiness, compassion, and humanity are integral to any interventions designed for successful human-social robot interaction [57].…”

Section: Discussionmentioning

confidence: 99%

Robotic Animal Use among Older Adults Enrolled in Palliative or Hospice Care: A Scoping Review and Framework for Future Research

Miles,

Fields,

Bennett

et al. 2024

Robotics

Self Cite

View full text Add to dashboard Cite

As the population of older adults increases, there is an anticipated rise in the utilization of hospice and palliative care. Many significant advancements in technology have been used to address the unique needs of this demographic; however, an unexplored area of research is the use of robotic animals as part of end-of-life care. The purpose of this scoping review was to examine the state of the literature on robotic animal use among older adults enrolled in palliative or hospice care and to offer a framework for future research. Following a guide for scoping reviews, we identified relevant studies and then charted, collated, summarized, and reported the data. Two articles were selected for final review. The results found that decreased medication use, behavior change, and emotional benefits were potential outcomes of robotic animal use in hospice and palliative care. Perceptions of the robot and ethical considerations were also discussed. Overall, the study findings point toward the potential uses of robotic animals as part of end-of-life care, however, more empirical research is critically needed.

show abstract

“…As a result, there was an increase in economic difficulties concerning a reduction in revenues (39%) and greater costs incurred (61%). In the face of these critical issues testified by data presented, it appears that some psychological resources, namely resilience and future orientation (Santilli et al, 2021;Bricout et al, 2022) played a protective role from the disrupting effects of the COVID-19 pandemic. Although the health emergency aggravated and amplified these problems and their consequences, there is a lack of research and scientific studies investigating the incidence of psychological discomfort and overall suffering in people with disabilities, in their families, and the social networks associated with them following the pandemic.…”

Section: The Impact Of Covid-19 On People With Disabilitiesmentioning

confidence: 97%

COVID-19, people with disabilities, and the Italian government recovery: investigating the impact and promoting psychological resources to prevent future emergencies

Camussi,

Meneghetti,

Sbarra

et al. 2023

Front. Psychol.

View full text Add to dashboard Cite

IntroductionGiven its profound and transversal impact, the COVID-19 pandemic in 2020 marked a deep point of division in how people make sense of the world and their lives. The consequences of this event were remarkable, especially for populations already facing vulnerability, exclusion, and discrimination. In Italy, over 3 million people (5.2% of the entire population) have a disability due to health issues or severe limitations that prevent them from performing daily activities. Although the COVID-19 health emergency aggravated and amplified these problems, research and studies investigating the incidence of psychological distress and the role of psychological resources for people with disabilities in the aftermath of the pandemic are still to be implemented. For these reasons, the Department of Psychology conducted a study on behalf of the Italian Government to assess the impacts of the COVID-19 pandemic on the social, psychological, and economic wellbeing of Italians with disabilities.MethodsThe aim was to assess the consequences of the pandemic on this population, especially the impacts related to the lockdowns and preventive measures, and to evaluate the protective role that could be played by psychological resources such as resilience, future orientation, and career adaptability in a Life Design perspective. With the collaboration of local, regional, and national associations for people with disability, an anonymous, online self-report questionnaire was distributed to 403 persons with disabilities in Italy.ResultsResults showed a strong relationship between the levels of psychological resources and life satisfaction during the COVID-19 pandemic.DiscussionIn line with studies in international literature regarding the effects of the COVID-19 pandemic on people with disabilities, this research highlights the extension of this period’s impacts on this population’s psychological wellbeing. Moreover, this study amplifies the urgent call for action and research in promoting Life Design psychological resources, given their positive and protective role in preserving and increasing people’s wellbeing.

show abstract

The “humane in the loop”: Inclusive research design and policy approaches to foster capacity building assistive technologies in the COVID-19 era

Cited by 10 publications

References 72 publications

Perspective Chapter: Assistive Technology Ecosystem for Effective Self-Care – Application to Alzheimer’s and Related Dementia

Perspective Chapter: Assistive Technology Ecosystem for Effective Self-Care – Application to Alzheimer’s and Related Dementia

Robotic Animal Use among Older Adults Enrolled in Palliative or Hospice Care: A Scoping Review and Framework for Future Research

COVID-19, people with disabilities, and the Italian government recovery: investigating the impact and promoting psychological resources to prevent future emergencies

Contact Info

Product

Resources

About