The ICF as a framework to collect and interpret data on the extent and variety of disability in neurological conditions

Abstract

INTRODUCTION: Neurological conditions are associated with high levels of disability. OBJECTIVES: The aim of this study was to describe, using the International Classification of Functioning, Disability and Health (ICF), the most relevant aspects of disability in patients with neurological conditions. We collated data from previous studies on myasthenia gravis, migraine, Parkinson's disease, multiple sclerosis, traumatic brain injury, stroke, epilepsy, vegetative state and minimally conscious state, and identified as relevant those ICF categories reported by at least 50% of patients in each condition. CONCLUSIONS: Records from 1310 patients were available. A total of 97 ICF categories were reported, and 21 were commonly addressed in more than five conditions. Approximately half of the categories in body functions were related to mental and movement-related functions and more than 25% of the activities-related categories involved activities that require the support from a caregiver. Environmental factors were mostly reported as facilitators. Our data indicate a residual mind-body dichotomy, the relevance of disability not only for the patients but also for their caregivers, and the difficulties in addressing barriers in the environment.

Why Palliative Care Applies to Parkinson's Disease

“…These factors may have a negative impact on patients' psychosocial and spiritual dimensions and are associated with ideas of finitude of life, frequently leading to existential issues. QoL gradually decreases, whereas the burden on patients and family caregivers increases . Results following assessment with the Palliative Outcome Scale suggest that PD patients have moderate palliative care needs .…”

“…QoL gradually decreases, whereas the burden on patients and family caregivers increases. [9][10][11] Results following assessment with the Palliative Outcome Scale suggest that PD patients have moderate palliative care needs. 12 Problems that are most frequently scored as severe or overwhelming include walking problems, pain, problems using the arms and hands, difficulties in communicating, fatigue, drooling, constipation, sleeping problems, and falls.…”

Is clobazam monotherapy effective and safe in people with focal or generalized seizures? A Cochrane Review summary with commentary

“…Seizures in children and adults might encompass several disabling health conditions and have important practical implications for managing rehabilitation. It is important for rehabilitation professionals to study the effects of interventions on functioning, relevant disability, and quality of life as major areas of their focus 15 . It is suggested that epilepsy may be associated with a variety of functioning problems as defined in the International Classification of Functioning, Disability and Health, 16 such as attention, emotional, and seeing functions in the body functions component; and watching, problem‐solving, fine hand use, walking, self‐care activities, relationships, community life, and recreation and leisure in the activities and participation component 15 .…”

Common Data Elements for Concussion in Tertiary Care: Phase One in Ontario

“…The World Health Organization's International Classification of Functioning, Disability, and Health (ICF) 16 provided a comprehensive, multidisciplinary, bio-psychosocial model of functioning and disability, and has been previously used to describe neurological trauma in both acute and chronic phases. 17,18 The value of the ICF in interprofessional practice and research has gained international recognition. It has demonstrated strengths in the promotion of a comprehensive perspective on health, ease in the application of this theory to practice, and the ability to enhance communication and collaboration across HCPs.…”