The illness experience: state of knowledge and perspectives for research

Pierret, Janine

doi:10.1111/1467-9566.t01-1-00337

Cited by 226 publications

(179 citation statements)

References 77 publications

(147 reference statements)

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“…Entende-se a experiência da enfermidade como abordagem teórica e conceitual, utilizada nas pesquisas sociantropológicas do processo saúde-doença no mundo anglo-saxão, privilegiando-se o ponto de vista dos adoecidos 11 . Analisa-se a forma como eles dão sentido às enfermidades no curso do adoecimento, como lidam com as restrições físicas e sociais, o diagnóstico e os tratamentos, e como evitam a deterioração de suas identidades diante delas 12 .…”

Section: Metodologiaunclassified

Representações religiosas na experiência com a enfermidade: um estudo de caso

Separavich

Canesqui

2016

Cad. Saúde Pública

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Este artigo, subproduto de uma pesquisa mais ampla, aborda um estudo de caso de um adoecido de hipertensão e de problemas cardíacos que professa a religião das Testemunhas de Jeová. Mediante entrevistas com roteiro semiestruturado reconstituíram-se os relatos do entrevistado sobre a experiência com o adoecimento: diagnóstico, tratamentos e cura, enfocando as representações sociais religiosas que o permeiam, fornecendo sentido à própria vida e aos sofrimentos e às perturbações físicas e morais implicadas neste processo.

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Section: Metodologiaunclassified

Representações religiosas na experiência com a enfermidade: um estudo de caso

Separavich

Canesqui

2016

Cad. Saúde Pública

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“…El interés por las narrativas de la enfermedad por parte de las ciencias sociales debe contextualizarse en el marco del giro lingüístico y se hace patente a partir de la década de 1980 (Hydén, 1997). Desde entonces, las investigaciones sobre las narrativas han sido muy prolíficas en el campo de la sociología de la salud (Pierret, 2003;Thomas, 2010). Desde la medicina se han visto con escepticismo (Hydén, 1997;Fisher y Goodley, 2007;Shapiro, 2011), aunque actualmente se está apreciando un creciente interés por la información que producen y el efecto beneficioso del hecho de narrar para la salud de la persona enferma (Gualtieri y Akhtar, 2013) en el marco del movimiento hacia una medicina más centrada en el paciente (Shapiro, 2011).…”

Section: Introductionunclassified

La cicatriz (in)visible. La representación del cuerpo en blogs de mujeres con cáncer de mama

Coll‐Planas

Barbosa

2015

Política Soc.

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ResumenEn este artículo analizamos la representación del cuerpo en blogs de mujeres con cáncer de mama. Fijándonos tanto en los textos como en las imágenes, estudiamos la representación del cuerpo a partir de las problemáticas corporales planteadas por Frank (1995): control, relación con el cuerpo, relación con los demás y deseo. En los blogs analizados aparece un cuerpo deseante y que se entiende de una forma diádica, formando parte de una red de afectos y cuidados. El diagnóstico de cáncer puede generar tanto disociación del cuerpo (que es vivido como una amenaza), como asociación, una mayor conexión. En relación al control, se observa una clara voluntad de predictibilidad aunque también aparecen indicios de asunción de la contingencia.

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“…are well-known. Nevertheless, some researchers suggest studying the effects of social processes and structural constraints such as exclusion, discrimination and the sense of powerlessness on health behaviours and the use of healthcare [17,18]. It may be that such structural conditions and forces have a greater potential impact than health behaviours when it comes to explaining the poor health status of persons living in poverty.…”

Section: Introductionmentioning

confidence: 99%

What makes primary care effective for people in poverty living with multiple chronic conditions?: study protocol

Loignon

Haggerty

Fortin

et al. 2010

BMC Health Serv Res

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BackgroundThe inverse care law persists: people living in poverty have the greatest needs and face considerable challenges in getting the care they need. Evidence reveals that GPs encounter difficulties in delivering care to poor patients, while many of those patients feel stigmatized by healthcare professionals. Patients living in poverty report negative healthcare experiences and unmet healthcare needs. Indeed, there is a growing recognition in primary care research of the importance of addressing the capabilities and social conditions of the poor when delivering care. Few studies have looked at the factors contributing to effective and "socially responsive" care for people living in poverty.Methods/DesignOur study adopts a qualitative ethnographic approach in four healthcare organizations in deprived areas of metropolitan Montreal (Québec, Canada), using patient shadowing techniques and interviews. Data will be collected through fieldwork observations and informal interviews with patients before and after consultations. We will observe medical consultations, care organization activities, and waiting areas and reception of patients. We will conduct a total of 36 individual interviews with 12 GPs and 24 patients. The interviews will be audio-recorded and transcribed for purposes of analysis. The analysis consists of debriefing sessions, coding and interpretive analysis.DiscussionThis study aims to investigate how positive healthcare interactions between physicians and patients can improve the management of chronic conditions. We hypothesize that factors related to care organization, to healthcare professionals' experience and to patients may enhance the quality of healthcare interactions, which may have positive impacts for preventing and managing chronic conditions. Our study will provide a unique set of data grounded in the perspectives of healthcare professionals and of patients living in poverty.

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The illness experience: state of knowledge and perspectives for research

Cited by 226 publications

References 77 publications

Representações religiosas na experiência com a enfermidade: um estudo de caso

Representações religiosas na experiência com a enfermidade: um estudo de caso

La cicatriz (in)visible. La representación del cuerpo en blogs de mujeres con cáncer de mama

What makes primary care effective for people in poverty living with multiple chronic conditions?: study protocol

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