The impact of actual and perceived disease severity on pre-operative psychological well-being and illness behaviour in adult congenital heart disease patients

Callus, Edward; Utens, Elisabeth M. W. J.; Quadri, Emilia; Ricci, Cristian; Carminati, Mário; Giamberti, Alessandro; Chessa, Massimo

doi:10.1017/s1047951113000218

Cited by 20 publications

(11 citation statements)

References 26 publications

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“…430 Perceptions of health might be more germane to emotional well-being than objective health status. 414,448 With regard to neurodevelopmental outcomes, the causes are again multifactorial and include circulatory abnormalities that affect the heart and brain development, medical and surgical intervention, and comorbid syndromes or genetic disorders. 418 Furthermore, a subgroup of patients have genetic syndromes that place them at greatly elevated risk of mental health disorders.…”

Section: Pathogenesismentioning

confidence: 99%

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Lui¹,

Saïdi²,

Bhatt³

et al. 2017

Circulation

180

136

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ABSTRACT:Life expectancy and quality of life for those born with congenital heart disease (CHD) have greatly improved over the past 3 decades. While representing a great advance for these patients, who have been able to move from childhood to successful adult lives in increasing numbers, this development has resulted in an epidemiological shift and a generation of patients who are at risk of developing chronic multisystem disease in adulthood. Noncardiac complications significantly contribute to the morbidity and mortality of adults with CHD. Reduced survival has been documented in patients with CHD with renal dysfunction, restrictive lung disease, anemia, and cirrhosis. Furthermore, as this population ages, atherosclerotic cardiovascular disease and its risk factors are becoming increasingly prevalent. Disorders of psychosocial and cognitive development are key factors affecting the quality of life of these individuals. It is incumbent on physicians who care for patients with CHD to be mindful of the effects that disease of organs other than the heart may have on the well-being of adults with CHD. Further research is needed to understand how these noncardiac complications may affect the long-term outcome in these patients and what modifiable factors can be targeted for preventive intervention.

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Section: Pathogenesismentioning

confidence: 99%

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Lui¹,

Saïdi²,

Bhatt³

et al. 2017

Circulation

180

136

View full text Add to dashboard Cite

show abstract

“…17 Factors associated with increased psychological distress among adults with CHD include subjective ratings of poorer disease severity, lower problem-solving abilities, and poorer social functioning. 6,18,19 Negative emotional factors (e.g., depression, anxiety, and stress) have emerged as risk factors for acquired heart disease. 20 There is also preliminary evidence to suggest that depressive symptoms in adolescents and adults with CHD contribute to poorer clinical cardiac outcomes.…”

Section: Psychological Distress Among Adults With Chdmentioning

confidence: 99%

An Integrated Adult Congenital Heart Disease Psychology Service

Ferguson

Kovacs

2016

Congenital Heart Disease

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“…Recent reports [279,280] indicate the need for psychosocial support and for the inclusion of adult congenital cardiac patients in traditional cardiologic rehabilitation programs, and most studies indicate that there is no relation between diagnosis, physical function or presence of residual symptoms and worse psychological functioning [281][282][283].…”

Section: Grown-up Congenital Heart (Guch)mentioning

confidence: 99%

“…There are, however, difficulties of understanding related to: the anatomy of the heart defect, factors contributing to the onset of endocarditis, the impact of smoking and alcohol, the inheritance of a heart condition [291]. Furthermore, the perceived state of health [281,292] and the imposition of limits more than the disease condition itself are related to depressive symptoms, to the psychological well-being pre-intervention and to emotional and behavioral problems.…”

Section: Moderate Evidencementioning

confidence: 99%

Best practice in psychological activities in cardiovascular prevention and rehabilitation: Position Paper

Angelino

Porta

Abatello

et al. 2018

Monaldi Arch Chest Dis

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Recent guidelines on cardiovascular disease prevention suggest multimodal behavioral interventions for psychosocial risk factors and referral for psychotherapy in the case of clinically significant symptoms of depression and anxiety overall. Accordingly, psychologists of the Italian Association for Cardiovascular Prevention, Rehabilitation and Epidemiology (GICR-IACPR) have reviewed the key components of psychological activities in cardiovascular prevention and rehabilitation (CPR). The aim of this study was to elaborate a position paper on the best practice in routine psychological activities in CPR based on efficacy, effectiveness and sustainability. The steps followed were: i) a review of the latest international guidelines and position papers; ii) analysis of the evidence-based literature; iii) a qualitative analysis of the psychological services operating in some reference Italian cardiac rehabilitation facilities; iv) classification of the psychological activities in CPR as low or high intensity based on the NICE Guidelines on psychological interventions on anxiety and depression. We confirm the existence of an association between depression, anxiety, social factors, stress, personality and illness onset/outcome and coronary heart disease. Evidence for an association between depression, social factors and disease outcome emerges particularly for chronic heart failure. Some positive psychological variables (e.g., optimism) are associated to illness outcome. Evidence is reported on the impact of psychological activities on 'new' conditions which are now indicated for cardiac rehabilitation: pulmonary hypertension, grown-up congenital heart, end-stage heart failure, implantable cardioverter-defribrillator and mechanical ventricular assist devices, frail and oldest-old patients, and end-of-life care. We also report evidence related to caregivers. The Panel divided evidence-based psychological interventions into: i) low intensity (counseling, psycho-education, self-care, self-management, telemedicine, self-help); or ii) high intensity (individual, couples and/or family and group psychotherapy, such as stress management). The results show that psychotherapy is mainly consisting of cognitive-behavior therapy, interpersonal therapy, and short-term psycho-dynamic therapy. The current data further refine the working tools available for psychological activities in CPR, giving clear directions about the choice of interventions, which should be evidence-based and have at least a minimum standard. This document provides a comprehensive update on new knowledge and new paths for psychologists working in the CPR settings.

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The impact of actual and perceived disease severity on pre-operative psychological well-being and illness behaviour in adult congenital heart disease patients

Cited by 20 publications

References 26 publications

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

An Integrated Adult Congenital Heart Disease Psychology Service

Best practice in psychological activities in cardiovascular prevention and rehabilitation: Position Paper

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