The impact of caregiver health literacy on healthcare outcomes for low income minority children with asthma

Belice, Paula Jo; Mosnaim, Giselle; Galant, Stanley P.; Kim, Yoonsang; Shin, Hye‐Won; Pires-Barracosa, Naomi; Jp, Hall; Malik, Rabia; Becker, Ellen A

doi:10.1080/02770903.2019.1648507

Cited by 13 publications

(3 citation statements)

References 24 publications

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“…This study also found a positive association between caregiver health literacy and AFMM implementation effectiveness and asthma control, which is consistent with Belice's findings. 33 Caregivers with lower levels of education generally lacked knowledge of self‐protection, which, combined with the strong similarities between asthma attacks and SARS‐CoV‐2‐related symptoms, made it difficult for them to cope well with the challenges posed by the outbreak. They reported that they readily linked their children's worsening symptoms to viral infections and believed that asthmatic children were at high risk for COVID‐19 infection, and some of them even feared that steroids would suppress the child's immune system and increase the likelihood of infection and therefore tried to stop taking the medication.…”

Section: Discussionmentioning

confidence: 99%

“…22,32 This study also found a positive association between caregiver health literacy and AFMM implementation effectiveness and asthma control, which is consistent with Belice's findings. 33 Caregivers with lower levels of education generally lacked knowledge of selfprotection, which, combined with the strong similarities between asthma attacks and SARS-CoV-2-related symptoms, made it difficult for them to cope well with the challenges posed by the outbreak.…”

Section: Discussionmentioning

confidence: 99%

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What caregivers believe affected the quality of implementation of asthma‐related family management models (AFMM) during COVID‐19: A phenomenological qualitative study

Bao

Wang

et al. 2022

Pediatric Pulmonology

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Purpose The recurrent COVID‐19 epidemic in China has disrupted many aspects of daily life for children with asthma and their caregivers, while negatively impacting their asthma family management models (AFMM). This phenomenological qualitative study identifies what affects the quality of implementation of AFMM in this population and outlines potential coping strategies for the caregivers. Methods We used purposive sampling to conduct semistructured interviews with primary caregivers of school‐age children with asthma from community healthcare centers (CHCs), which focused on understanding what factors influenced caregivers' implementation of AFMM during quarantine. The Colaizzi seven‐step method was used to independently code and categorize the transcript and to generate themes and identify associated key subthemes. Results Twenty‐four caregivers were interviewed, and they provided greater insight into barriers and motivators to implement AFMM. The three themes and nine relevant subthemes generated, (a) the “individual‐family” internal‐level factors: weak health literacy and beliefs, quietly changing family relationships, the dramatic increase in the care burden, gradual adjustment of negative psychology; (b) the “hospital‐community” external‐level factors: the endless power of peer support, strict community quarantine policy; and (c) the “health system‐public” social‐level factors: the enormous potential of internet‐based telemedicine, improved public awareness of prevention, government's prompt assistance. Conclusions This qualitative study reveals that the quality of AFMM implementation during pandemic is impacted by three different levels. Therefore, a targeted and comprehensive caring model that provides caregivers with the necessary coping strategies around these three levels is needed to achieve better asthma control outcomes.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

What caregivers believe affected the quality of implementation of asthma‐related family management models (AFMM) during COVID‐19: A phenomenological qualitative study

Bao

Wang

et al. 2022

Pediatric Pulmonology

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“…La Organización Mundial de la Salud (OMS) ha impulsado durante la última década la necesidad de transformar los procesos de educación hacia la alfabetización en salud. La alfabetización en salud implica el logro de un nivel de conocimiento, habilidades personales y confianza para tomar medidas para mejorar la salud personal y comunitaria mediante el cambio de estilos y condiciones de vida personales 7 . La alfabetización en salud significa, más que leer folletos y concertar citas, mejorar el acceso de las personas a la información sanitaria y su capacidad para utilizarla de forma eficaz.…”

Section: Introductionunclassified

Educación y alfabetización en prevención y cuidado de pacientes pediátricos con enfermedades respiratorias y asma

Manotas,

Mendivelso,

Páez

2023

Andes pediatr

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Las enfermedades respiratorias en niños y adolescentes, entre ellas el asma bronquial, constituyen un problema global de salud pública. Las estrategias educativas son una herramienta importante para su control. Objetivo: Evaluar el impacto de un programa de alfabetización en salud para el cuidado y autocontrol de las enfermedades respiratorias y asma bronquial tras cinco años de implementación. Pacientes y Método: Estudio prospectivo de cohorte, muestra no probabilística y selección consecutiva de pacientes < 17 años de edad con asma, síndrome bronquial obstructivo recurrente, sibilante recurrente o bronquiolitis, remitidos al programa para alfabetización en enfermedades respiratorias en un hospital pediátrico de Colombia durante 2015-2020. Se recolectaron datos clínicos, consumo de medicamentos, antecedentes epidemiológicos, exposiciones de riesgo y bienestar individual. El impacto se evaluó con el indicador de ingreso a urgencias para resolución de crisis respiratorias, conocimiento de la enfermedad y bienestar general a los 6 meses posteriores al egreso del programa. Resultados: Se incluyeron 2841 pacientes, edad promedio 7 años, 55% varones, y un 86% con manejo previo por pediatra. Se detectó un 54% de sedentarismo, adherencia al tratamiento de 48%, prevalencia de factores de riesgo intradomiciliario 66%, y humo de tabaco 11%. Al egreso del programa, los padres referían buen conocimiento de la enfermedad (99,7%), registrándose una disminución de ingreso a urgencias para manejo de crisis de 25.4 a 6,3%. El bienestar en salud mostró un aumento en la ausencia de sentimientos negativos de tristeza, disgusto o ansiedad que generan los ataques de tos, de 53,3% a 72,5% (p = 0,006), las alteraciones del sueño disminuyeron un 20% (p = 0,059), la práctica de actividad física se incrementó un 14,6% (p = 0,030), y la sensación de que la enfermedad ya no controlaba las vidas de padres e hijos aumentó de 59 a 75,9% (p = 0,113). Conclusiones: El programa de alfabetización mejoró los desenlaces en salud, bienestar general, empoderó y promovió mejores habilidades de autogestión en niños y cuidadores.

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Health literacy and asthma: An update

Han,

Gutwein,

Apter

et al. 2024

Journal of Allergy and Clinical Immunology

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The impact of caregiver health literacy on healthcare outcomes for low income minority children with asthma

Cited by 13 publications

References 24 publications

What caregivers believe affected the quality of implementation of asthma‐related family management models (AFMM) during COVID‐19: A phenomenological qualitative study

What caregivers believe affected the quality of implementation of asthma‐related family management models (AFMM) during COVID‐19: A phenomenological qualitative study

Educación y alfabetización en prevención y cuidado de pacientes pediátricos con enfermedades respiratorias y asma

Health literacy and asthma: An update

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