The Impact of Congenital Esophageal Atresia on the Family Functioning

Rozensztrauch, Anna; Śmigiel, Robert; Błoch, Michał; Patkowski, Dariusz

doi:10.1016/j.pedn.2019.04.009

Cited by 18 publications

(26 citation statements)

References 37 publications

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“…Previous research has demonstrated that EA related eating and drinking problems can impact the quality of life of children and adolescents born with EA (Dellenmark-Blom et al, 2015), and impact the family functioning, particularly in the emotional domain (Rozensztrauch et al, 2020). The current study found that there was a statistically significant difference, even though with only a small effect size, in the levels of parental anxiety and depression between parents of children with and without feeding problems.…”

Section: Discussionsupporting

confidence: 42%

“…A literature review by van Oers et al (2014) found that child's medical characteristics, such as child's age or the severity of illness, were not related to parental anxiety or depression in parents of chronically ill children. However, studies specifically on EA have suggested that child's age (Faugli et al, 2009;Kassa et al, 2020;Witt et al, 2019), EA severity (Witt et al, 2019), associated anomalies (Rozensztrauch et al, 2020), and feeding problems (Dellenmark-Blom et al, 2015;Rozensztrauch et al, 2020) might have an impact on parental mental health or family functioning. The current study partly supported the findings by van Oers et al (2014), as statistically significant differences were not found in the levels of parental anxiety or depression between child's age, or EA complexity sub-groups.…”

Section: Discussionmentioning

confidence: 99%

“…Investigating this issue further might be particularly important for developing emotional and practical support for parents caring for their child with EA. One should also note that EA related studies have used different methods of defining EA severity or complexity (e.g., Dellenmark-Blom et al, 2015;Rozensztrauch et al, 2020). Varied findings in this area call for further research in the specific impact of illness-related factors on parental mental health.…”

Section: Limitationsmentioning

confidence: 99%

“…These findings would suggest that parental mental health might improve over time, whilst the child born with EA grows and develops through childhood into adolescence. The severity of the child's EA (Witt et al, 2019); the presence of associated anomalies (Rozensztrauch et al, 2020); lung infections (Faugli et al, 2009); and feeding problems (Dellenmark-Blom et al, 2015;Rozensztrauch et al, 2020) have been indicated as the child's illness related factors impacting parental mental health and family functioning in families affected by EA. Further, Dellenmark-Blom et al (2016) has suggested that feeding difficulties in children and adolescents with EA may lead to social and emotional strains and impact child's relationships and interaction with other people.…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Anxiety and Depression in Parents of Children Born with Esophageal Atresia: An International Online Survey Study

Wallace¹,

Honkalampi²,

Sheils³

2021

Journal of Pediatric Nursing

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Caring for a chronically ill child can be stressful and requires additional care from parents. Parental mental health and stress may impact both parental and child wellbeing, leading to maladaptive parenting practices, and interference with illness management. The aim of the study was to explore the levels of anxiety and depression in parents of children born with esophageal atresia (EA) and to investigate whether parental anxiety and depression were associated with child's medical characteristics or with parental factors. Design and methods: An international online survey was developed and disseminated to parents of children born with EA, aged 0-12 years, via EA patient charity social network sites. A one-way between subjects ANOVA and post hoc statistical analyses were used to examine differences in mean scores of parental anxiety and depression between sub-groups that described child's medical characteristics and parental characteristics. Results: A total of 240 parents completed the survey from 17 different countries. Of these, nearly 70% selfreported raised levels of anxiety, whilst 38% self-reported raised levels of depression. Statistically significant differences in mean scores of parental anxiety and depression were found between sub-groups that described the child's feeding problems, parental age, and perceived support for caring, caring stress and money matters. Conclusion: Child's feeding problems related to esophageal atresia, and parental factors, such as younger age, perceived lack of support for caring, caring stress, and money worries, may contribute to the increased levels of parental anxiety and depression in parents of children born with EA.

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Section: Discussionsupporting

confidence: 42%

Section: Discussionmentioning

confidence: 99%

Section: Limitationsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Anxiety and Depression in Parents of Children Born with Esophageal Atresia: An International Online Survey Study

Wallace¹,

Honkalampi²,

Sheils³

2021

Journal of Pediatric Nursing

View full text Add to dashboard Cite

show abstract

“…Some centres have also included diagnostic and interventional radiologists and an intensivist 156 . Special emphasis is given to have regular evaluation and follow-up by psychologists because of growing concern about the long-term effect of EA-TEF on the quality of life of the patients and their families [157][158][159][160] .…”

Section: Health Maintenance and Preventionmentioning

confidence: 99%

Care Recommendations for the Respiratory Complications of Esophageal Atresia-Tracheoesophageal Fistula: The International Network of Esophageal Atresia, Respiratory Complications Working Group

Koumbourlis

Belessis

Cataletto

et al. 2020

Preprint

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Tracheoesophageal fistula (TEF) with esophageal atresia (EA) is a common congenital anomaly that is associated with significant respiratory morbidity throughout life. The objective of this document is to provide a framework for the diagnosis and management of the respiratory complications that are associated with the condition. As there are no randomized controlled studies on the subject, a group of experts used a modification of the Rand Appropriateness Method to describe the various aspects of the condition in terms of their relative importance, and to rate the available diagnostic methods and therapeutic interventions on the basis of their appropriateness and necessity. Specific recommendations were formulated and reported as Level A, B, C based on whether they were based on "strong", "moderate" or "weak" agreement. The tracheomalacia that exists in the site of the fistula was considered the main abnormality that predisposes to all other respiratory complications due to airway collapse and impaired clearance of secretions. Aspiration due to impaired airway protection reflexes is the main underlying contributing mechanism. Flexible bronchoscopy is the main diagnostic modality, aided by imaging modalities, especially CT scans of the chest. Non-invasive positive airway pressure support, surgical techniques such as tracheopexy and rarely tracheostomy are required for the management of severe tracheomalacia. Regular long-term follow-up by a multidisciplinary team was considered imperative. Specific templates outlining the elements of the clinical respiratory evaluation according to the patients' age were also developed.

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Care recommendations for the respiratory complications of esophageal atresia‐tracheoesophageal fistula

Koumbourlis

Belessis

Cataletto

et al. 2020

Pediatric Pulmonology

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Tracheoesophageal fistula (TEF) with esophageal atresia (EA) is a common congenital anomaly that is associated with significant respiratory morbidity throughout life. The objective of this document is to provide a framework for the diagnosis and management of the respiratory complications that are associated with the condition. As there are no randomized controlled studies on the subject, a group of experts used a modification of the Rand Appropriateness Method to describe the various aspects of the condition in terms of their relative importance, and to rate the available diagnostic methods and therapeutic interventions on the basis of their appropriateness and necessity. Specific recommendations were formulated and reported as Level A, B, and C based on whether they were based on “strong”, “moderate” or “weak” agreement. The tracheomalacia that exists in the site of the fistula was considered the main abnormality that predisposes to all other respiratory complications due to airway collapse and impaired clearance of secretions. Aspiration due to impaired airway protection reflexes is the main underlying contributing mechanism. Flexible bronchoscopy is the main diagnostic modality, aided by imaging modalities, especially CT scans of the chest. Noninvasive positive airway pressure support, surgical techniques such as tracheopexy and rarely tracheostomy are required for the management of severe tracheomalacia. Regular long‐term follow‐up by a multidisciplinary team was considered imperative. Specific templates outlining the elements of the clinical respiratory evaluation according to the patients’ age were also developed.

show abstract

The Impact of Congenital Esophageal Atresia on the Family Functioning

Cited by 18 publications

References 37 publications

Anxiety and Depression in Parents of Children Born with Esophageal Atresia: An International Online Survey Study

Anxiety and Depression in Parents of Children Born with Esophageal Atresia: An International Online Survey Study

Care Recommendations for the Respiratory Complications of Esophageal Atresia-Tracheoesophageal Fistula: The International Network of Esophageal Atresia, Respiratory Complications Working Group

Care recommendations for the respiratory complications of esophageal atresia‐tracheoesophageal fistula

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