The impact of different researchers to capture quality of life measures in a dementia randomised controlled trial

Evans, Rachel; Brocklehurst, Paul; Ryan, Jean; Hoare, Zoë

doi:10.1186/s13063-022-07064-4

Cited by 3 publications

(1 citation statement)

References 23 publications

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“…MetS encompasses risk factors such as hypertension, elevated blood sugar, and high cholesterol levels, which significantly increase the likelihood of cardiovascular diseases, stroke, and dementia ( Fraade-Blanar et al, 2018 ; Kumar, 2022 ; Evans et al, 2023 ; Junger et al, 2023 ). There is growing evidence linking MetS with structural brain changes and cognitive decline ( Martinelli et al, 2017 ).…”

Section: Discussionmentioning

confidence: 99%

Dementia and metabolic syndrome: a bibliometric analysis

Peng,

Yang,

et al. 2024

Front. Aging Neurosci.

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BackgroundDementia is a progressive neurodegenerative condition, while metabolic syndrome (MetS) is characterized by a combination of metabolic abnormalities such as hypertension, high blood sugar, and obesity. There exists a connection and overlap between the two conditions in certain aspects, and both are influenced to varying degrees by the process of aging. This study presents an overview of the current research landscape regarding dementia and MetS through bibliometric analysis.MethodsA systematic search was conducted to retrieve relevant literature on dementia and MetS published between 1 January 2000, and 30 November 2023, from the Web of Science Core Collection database. Various bibliometric tools, including VOSviewer, CiteSpace, and the R software package “bibliometrix,” were utilized for analysis.ResultsA total of 717 articles were identified, showing an upward trend in annual publications. Leading contributors included the United States, Italy, and China, with institutions such as the University of California System at the forefront. The Journal of Alzheimer’s Disease emerged as the top publisher, while research published in Neurology garnered significant citations. Noteworthy authors encompassed Panza, Francesco; Frisardi, Vincenza; and Feldman, Eva L, with Kristine Yaffe being the most cited author (280 citations). Recent studies have focused on themes like “gut microbiota,” “neuroinflammation,” “fatty acids,” and “microglia.”ConclusionThis bibliometric analysis summarizes the foundational knowledge structure in the realm of dementia and MetS from 2000 to 2023. By highlighting current research frontiers and trending topics, this analysis serves as a valuable reference for researchers in the field.

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Section: Discussionmentioning

confidence: 99%

Dementia and metabolic syndrome: a bibliometric analysis

Peng,

Yang,

et al. 2024

Front. Aging Neurosci.

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How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies

Gridley,

Baxter,

Birks

2024

BMC Med Res Methodol

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Background People with dementia are routinely included as research participants in trials and other quantitative studies in which they are invited to respond to standardised measures. This paper reviews the reporting of standardised data collection from people with dementia in reports published in the National Institute for Health and Care Research (NIHR) Journals Library. The aim was to understand how the administration of standardised, self-report measures with people with dementia is reported in NIHR monographs and what could be learnt from this about the feasibility and acceptability of data collection approaches for future studies. Methods This was a systematic review with narrative synthesis. Broad search terms (Dementia OR Alzheimer*) were used to search the NIHR Journals Library website in December 2021. All studies that used (or intended to use) standardised measures to collect research data directly from people with dementia were eligible for inclusion. Information was extracted (where reported) on the process of data collection, dementia severity, levels of missing data and the experiences and reflections of those involved. Results Searches returned 42 records, from which 17 reports were assessed as eligible for inclusion, containing 22 studies. Response rates from participants with dementia in these studies varied considerably and appeared to be related to dementia severity and place of residence. Little information was reported on the process of data collection or the reasons for missing data, and most studies did not report the experiences of participants or those administering the measures. However, there was an indication from two studies that standardised data collection could provoke emotional distress in some participants with dementia. Conclusions Through this review we identified both variation in levels of missing data and gaps in reporting which make it difficult to ascertain the reasons for this variation. We also identified potential risks to the well-being of participants with dementia which may be associated with the content of standardised measures and the context of data collection. Open reporting of and reflection upon data collection processes and the experiences of people involved is essential to ensure both the success of future data collection and the wellbeing of study participants. Trial registration Registered with Research on Research https://ror-hub.org/study/2905/.

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Impact of Family Function on the Quality of Life and Health Perception of Non-Institutionalized Dementia Patients

Cubero-Plazas

Sancho-Cantus

Ortí

et al. 2023

JAD

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Background: Dementia is one of the pathologies that has increased the most among the older population (mainly Alzheimer’s disease), and it has a direct impact on the quality of life (QoL), cognitive performance, and health of these patients. Family functionality can play a role in this QoL if these patients are not institutionalized. Objective: To analyze the role of family function in the QoL and health perception of non-institutionalized dementia patients, as well as related variables such as anxiety, depression, optimism, or pessimism. Methods: Cross-sectional study with a sample of 54 patients diagnosed with some type of dementia, non-institutionalized, or in outpatient care, from different centers in the province of Valencia (Spain). The EQ-5D, MMSE, Apgar Family or general health, and Goldberg anxiety and depression questionnaires were utilized. Results: The correlation of the Apgar Family with the General Health Questionnaire-new onset problems variable (GHQ) and Chronicity and General Health Questionnaire-chronic problems (CGHQ) of the Goldberg Quality of Life questionnaire was statistically significant and negative (GHQ r = –0.310; p = 0.034. CGHQ r = –0.363; p = 0.012); as well as between Apgar Family and Anxiety-Depression (r = –0.341; p = 0.020). The correlation of the Apgar Family with the Life Orientation Test-Pessimism variable (LOT) was statistically significant and negative (r = –0.270; p = 0.061). Finally, severe dysfunction of Apgar Family has a negative correlation with self-perception of health (p = 0.036 B = –16.589) determined by the Visual Analogue Scale (VAS). Conclusion: Family functionality directly influences anxiety, depression, optimism, and pessimism. This could explain why family function is related to the QoL of patients and their self-perception of health.

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The impact of different researchers to capture quality of life measures in a dementia randomised controlled trial

Cited by 3 publications

References 23 publications

Dementia and metabolic syndrome: a bibliometric analysis

Dementia and metabolic syndrome: a bibliometric analysis

How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies

Impact of Family Function on the Quality of Life and Health Perception of Non-Institutionalized Dementia Patients

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