The Impact of Educational Counseling Program on Quality of Life of Thalassemia Patients

Abstract

Background: Thalassemia is the most common hereditary disease. The presence of many physical and psychological problems can affect the quality of life of patients with thalassemia. The present study aimed at evaluating the effect of educational counseling program on the quality of life of thalassemia patients in city of Neyshabur in 2016. Methods: This semi-experimental study, which was conducted using pretest and posttest method, was done on 20 thalassemia patients, who referred to thalassemia clinic and were treated with educational counseling intervention. The participants were assigned into 5-member groups and received 5 sessions of training. After the sessions, 2 phone consultations were provided to the participants with a one-week gap, and the participants' questions were answered. Sf-36 Quality of Life Questionnaire was completed before and 1 month after the intervention, and data were analyzed by independent t test, Pearson correlation coefficient, Spearman, Mann-Whitney, ANOVA, Kruskal-Wallis, and Wilcoxon tests using SPSS software Version 16.

Effect of Family-Centered Empowerment Model Using Mobile Learning on the Quality of Life in Children with Thalassemia: A Quasi-Experimental Study

“…It is worth noting that in Borhani et al's study, the implementation of this model had a significant positive effect on the quality of life of thalassemia patients in both the intervention and control groups (20). However, in Dehnoalian et al's study, the implementation of this model had no effect on the physical dimension and general health of children with thalassemia, which is not consistent with the present study's results (21). According to the researchers, this inconsistency with the results of the present study might be attributed to the number of training sessions, the economic situation, the method of training, and the different tools used to measure the quality of life in the studies.…”

Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

“… (madmoli et al 2018) [ 45 ] Quality of life Iran Quasi-experiment 80 children 15 years to 25 years (mean= 24.35 ± 5.50) Orem Self-care Model SF-36 questionnaire This intervention has been shown to significantly improve the participants’ quality of life and be a cheap and simple non-pharmacological treatment to improve the quality of life of children with thalassemia Mean Pre-test= 75.40 Mean Post-test= 80.07 P value<0.001 9. (Dehnoalian et al 2017) [ 46 ] Quality of life Iran Quasi-experiment 20 children age 15 to 30 years (mean= 23.06 ± 10.87) Educational Counseling Program Sf-36 Quality of Life Questionnaire Educational counseling programs are proven to improve the quality of life of children with thalassemia Mean ± SD Pre-test= 54.43 ± 5.60 Mean ± SD Post-test= 78.11 ± 17.64 P value= 0.002 10. (El-Said Zaghamir et al 2019) [ 47 ] Quality of life Iran Quasi-experiment 50 children aged 8–18 years (mean= 12.6±3.0) Educational Program about Iron Chelation Therapy Pediatric Quality of Life Inventory Tool The quality of life of children with thalassemia has significantly improved after being given the Educational Program about Iron Chelation intervention Mean Pre-test= 61 Mean Post-test= 76 P value<0.001 …”

“…Counseling is given to solve problems with the active participation of participants. 46 Participants were given a booklet related to disease, symptoms, complications, and treatment for quality of life in thalassemia and given one month to study it. After that, participants were invited to counseling by telephone for 15–20 minutes regarding the patient’s difficulties, especially regarding his illness.…”