The impact of hidradenitis suppurativa on quality of life is worse than inflammatory bowel disease and myocardial infarction

Mortimore, Alexandra; Bullen, Alison; McMeniman, Erin

doi:10.1111/ajd.13910

Cited by 3 publications

(2 citation statements)

References 15 publications

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“…Interestingly, patients with HS have similar results in the mental dimension of the 36-Item Short Form Questionnaire (SF-36) as patients with diagnosed depression [42]. Similarly, Mortimore et al [43] showed that HS impacts QoL more profoundly than atopic dermatitis, myocardial infarction, or inflammatory bowel disease [43]. The influence of HS on patients’ psychological health is indisputable.…”

Section: Discussionmentioning

confidence: 99%

Hidradenitis Suppurativa Is Associated with Severe Sexual Impairment

Krajewski,

Strobel,

Schultheis

et al. 2024

Dermatology

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Introduction: Hidradenitis suppurativa (HS) is a chronic inflammatory disorder of the pilosebaceous unit, often affecting and deforming intimate regions. HS is associated with severe pain, pruritus, and constant, purulent, malodorous discharge expected to impair sexual health of patients. Methods: We performed a cross-sectional, multicentric study involving 199 German patients from the health services research project “Epidemiology and Care in Acne inversa (EpiCAi)”. The sexual health, HS severity, and quality of life of the studied group were evaluated using a specially designed questionnaire. Results: Regardless of gender, HS has an enormous impact on patients’ sexual health. The patients scored, on average, 28.8 ± 5.3 points on the Relation and Sexuality Scale (RSS). Multiple linear regression revealed that females and patients with Hurley III stage had higher sexual dysfunction (p=0.012). Sexual dysfunction is associated with pain (β=0.25), the number of active lesions, the affected areas (β=0.14), and psychosocial aspects, including low quality of life (β=0.404), stigmatization (β=0.411), depression (β=0.413), and anxiety (β=0.300). Patients already see a substantial decrease in sexual frequency in the early stages of HS, while functional impairment and fear increase with the severity of the disease. Conclusion: Sexual health and management of its dysfunctions should be a part of a holistic approach to HS patients.

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Section: Discussionmentioning

confidence: 99%

Hidradenitis Suppurativa Is Associated with Severe Sexual Impairment

Krajewski,

Strobel,

Schultheis

et al. 2024

Dermatology

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“…Patients with HS are more likely to experience psychiatric comorbidities and other medical conditions such as inflammatory bowel disease [33,34]. HS has been shown to have a greater impact on quality of life scores than major adverse cardiac events, lower limb amputation, hepatitis C, inflammatory bowel disease, eczema, acne, and psoriasis [35,36]. Increasing disease burden, unemployment, lower educational attainment, female sex, and increasing age are associated with decreased quality of life in HS [37,38].…”

Section: Discussionmentioning

confidence: 99%

High Unemployment Rate in Patients with Hidradenitis Suppurativa despite High Educational Attainment

Kearney,

McCourt,

Hughes

et al. 2023

Dermatology

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Background: Hidradenitis suppurativa (HS) is associated with lower socioeconomic status (SES). The adverse influence of HS on education and employment may explain this. It remains unknown whether HS causes downward social trajectories, i.e., social drift, or whether those affected are born into a lower SES. We aimed to assess the influence of HS on education and employment and compare the highest educational attainment of participants with their parents. Methods: An anonymous online survey was distributed by patient-led organisations. Frequencies were compared with χ2 and disease interactions with one-way ANOVA. Results: Among 335 respondents from 10 countries, 94.9% completed secondary/high school, 71.3% completed further education, 41.8% completed an undergraduate degree, 20% completed postgraduate education, 10.7% completed a masters, and 2.1% completed a doctorate. Participant education was greater than parental education (p < 0.001). Despite this, 24.2% were unemployed and 15.2% were receiving illness benefit. Compared to national statistics, HS participants from Ireland (p = 0.003), the USA (p < 0.001), and the UK (p < 0.001) were more likely to be unemployed/receiving illness benefit despite higher educational attainment in Ireland (p = 0.006) and the USA (p = 0.003) with similar education in the UK (p = 0.153). Conclusions: Social drift describes downward social trajectories due to the development of a disease. Participants in this study report greater education than their parents and the background population, but despite this, they are experiencing downward social trajectories with higher unemployment and receipt of illness benefit. Disease onset in HS tends to be at peak educational age. Education does not appear to be impaired by early disease with disease accumulation during employment years limiting opportunities.

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Quoi de neuf en dermatologie clinique ?

Machet

2022

Annales de Dermatologie et de Vénéréologie - FMC

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The impact of hidradenitis suppurativa on quality of life is worse than inflammatory bowel disease and myocardial infarction

Cited by 3 publications

References 15 publications

Hidradenitis Suppurativa Is Associated with Severe Sexual Impairment

Hidradenitis Suppurativa Is Associated with Severe Sexual Impairment

High Unemployment Rate in Patients with Hidradenitis Suppurativa despite High Educational Attainment

Quoi de neuf en dermatologie clinique ?

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