The impact of migration experiences and migration identities on the experiences of services and caring for a family member with dementia for Sikhs living in Wolverhampton, UK

Jutlla, Karan

doi:10.1017/s0144686x14000658

Cited by 24 publications

(33 citation statements)

References 12 publications

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“… No indication of type or severity Sikh Focus groups Dates not reported Constant comparative methodology 28 Casado et al, 2015 [ 46 ] USA (Urban) Caregivers 23 Care-givers of people with dementia symptoms. No indication of type or severity Korean American Focus groups Dates not reported Thematic analysis 29 Jutlla, 2015 [ 47 ] UK (Urban) Carers (12) Carers of a family member with dementia. No indication of type or severity Sikh Interviews Dates not reported Constructivist grounded theory 30 Mukadam et al, 2015 [ 48 ] UK (Urban) General public (53) People without a known diagnosis of dementia, with or without experience of caring for people with dementia South Asian Focus groups & interviews Dates not reported Interpretative phenomenological analysis …”

Section: Resultsmentioning

confidence: 99%

Barriers and facilitators in accessing dementia care by ethnic minority groups: a meta-synthesis of qualitative studies

et al. 2017

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BackgroundIt is estimated that there are about 25,000 people from UK ethnic minority groups with dementia. It is clear that there is an increasing need to improve access to dementia services for all ethnic groups to ensure that everyone has access to the same potential health benefits. The aim was to systematically review qualitative studies and to perform a meta-synthesis around barriers and facilitators to accessing care for dementia in ethnic minorities.MethodsDatabases were searched to capture studies on barriers and facilitators to accessing care for dementia in ethnic minorities. Analysis followed the guidelines for meta-ethnography. All interpretations of data as presented by the authors of the included papers were extracted and grouped into new themes.ResultsSix hundred and eighty four papers were identified and screened. Twenty eight studies were included in the meta-synthesis. The analysis developed a number of themes and these were incorporated into two overarching themes: ‘inadequacies’ and ‘cultural habitus’.ConclusionsThe two overarching themes lend themselves to interventions at a service level and a community level which need to happen in synergy.Trial registrationThe review was registered with PROSPERO: CRD42016049326.Electronic supplementary materialThe online version of this article (10.1186/s12888-017-1474-0) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Barriers and facilitators in accessing dementia care by ethnic minority groups: a meta-synthesis of qualitative studies

et al. 2017

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“…Furthermore, the article by Jutlla looked at the experiences of 12 Sikh carers, caring for a family member with dementia, in Wolverhampton. 23 In particular, they looked at the influences of migration experiences and migration identities. They found that knowledge of a person’s background and experiences is important for understanding how they then experience health services and caring roles.…”

Section: Resultsmentioning

confidence: 99%

Dementia in UK South Asians: a scoping review of the literature

et al. 2018

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ObjectiveOver 850 000 people live with dementia in the UK. A proportion of these people are South Asians, who make up over 5% of the total UK population. Little is known about the prevalence, experience and treatment of dementia in the UK South Asian population. The aim of this scoping review is to identify dementia studies conducted in the UK South Asian population to highlight gaps in the literature which need to be addressed in future research.MethodDatabases were systematically searched using a comprehensive search strategy to identify studies. A methodological framework for conducting scoping reviews was followed. An extraction form was developed to chart data and collate study characteristics and findings. Studies were then grouped into six categories: prevalence and characteristics; diagnosis validation and screening; knowledge, understanding and attitudes; help-seeking; experience of dementia; service organisation and delivery.ResultsA total of 6483 studies were identified, 27 studies were eligible for inclusion in the scoping review. We found that studies of prevalence, diagnosis and service organisation and delivery in UK South Asians are limited. We did not find any clinical trials of culturally appropriate interventions for South Asians with dementia in the UK. The existing evidence comes from small-scale service evaluations and case studies.ConclusionsThis is the first scoping review of the literature to identify priority areas for research to improve care for UK South Asians with dementia. Future research should first focus on developing and validating culturally appropriate diagnostic tools for the UK South Asians and then conducting high-quality epidemiological studies in order to accurately identify the prevalence of dementia in this group. The cultural adaptation of interventions for dementia and testing in randomised controlled trials is also vital to ensure that there are appropriate treatments available for the UK South Asians to access.

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“…Eleven papers brought up the issue of there being a limited catchment area in terms of population numbers to recruit Afro-Caribbean, Chinese, and South Asian participants from (Beattie et al, 2005;Bhatkal & Shah, 2004;Haider & Shah, 2004;Jutlla, 2015;La Fontaine et al, 2007;McCracken et al, 1997;Morgan & Crowder, 2003;Mukadam et al, 2011;Odutoye & Shah, 1999;Uppal et al, 2014;Wilkinson et al, 2003). Three papers noted that when an Afro-Caribbean or South Asian sample was identified, potential participants often did not have a formal diagnosis.…”

Section: Diagnostic Label Of Dementiamentioning

confidence: 99%

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

Waheed

Mirza

Waheed

et al. 2019

Int J Methods Psych Res

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Objective Identifying existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities. Methods We searched for and included any publication detailing dementia research in the UK that included any ethnic minority. The search results and all titles and abstracts were screened according to the inclusion criteria followed by screening of the full texts. We extracted data regarding the recruitment and methodological issues faced by the researchers. This data was combined and listed, and related issues were grouped into overarching themes and subthemes. Results Of 52 publications suitable for analysis, 33 provided data collated into six themes: attitudes and beliefs about dementia in ethnic minority communities, recruitment process, data collection issues, practical issues, researcher characteristics, and lack of published research and normative data. These themes allowed us to identify three areas responsible for addressing these recruitment and methodological issues: community and patient education, health services, and researchers' training. Conclusions This is the first review identifying recruitment and methodological issues within UK dementia research that included ethnic minorities. We now have a compilation of reported existing issues and a framework of areas responsible for addressing them and devising solutions.

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The impact of migration experiences and migration identities on the experiences of services and caring for a family member with dementia for Sikhs living in Wolverhampton, UK

Cited by 24 publications

References 12 publications

Barriers and facilitators in accessing dementia care by ethnic minority groups: a meta-synthesis of qualitative studies

Barriers and facilitators in accessing dementia care by ethnic minority groups: a meta-synthesis of qualitative studies

Dementia in UK South Asians: a scoping review of the literature

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

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