The Impact of Misinformation and Health Literacy on HIV Prevention and Service Usage

Garett, Renee; Young, Sean D.

doi:10.1097/jnc.0000000000000298

Cited by 9 publications

(5 citation statements)

References 17 publications

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“…Low health literacy contributed to PrEP misinformation being spread within their communities. Concerns were voiced about women being vulnerable to "charlatans" or HIV deniers that spread false information about HIV that is not evidence-based, including unsubstantiated cures for HIV (Garett & Young, 2022;Grov et al, 2021). For example, cases of non-approved treatment or unlicensed providers, such as the use of Picuristes (i.e., lay injectionists) among Haitians in Miami-Dade County, potentially increased women's vulnerability and risk (Rahill & Mallow, 2011).…”

Section: Individual Barriersmentioning

confidence: 99%

Barriers and Perceived Facilitators for PrEP Use Among Women of Color in South Florida: Findings from theEmpowering Women to Take Control of Their Sexual Health Summit

Cyrus,

Villalba,

Jean-Gilles

et al. 2023

Preprint

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This paper aims to summarize conference proceedings and testimonies from the, Empowering Women to Take Control of Their Sexual Health Summit, convened in South Florida. In the present study, the phrase, women of color, refers to 279 cisgender and transgender African American, Latina, and Haitian women. Data were collected through three 90-minute group discussions conducted at the conference. Individual-, social-, and structural-level PrEP barriers and facilitators were identified. Individual level barriers included: medical distrust, limited knowledge about PrEP, and economic dependence on sexual partners. Participants discussed cultural gender norms and roles as overarching social barriers, with religiosity reinforcing these norms. Structural barriers included: health literacy, health insurance coverage, immigration status, and structural racism. Community attributes that acted as facilitators of PrEP use were resilience and adaptability. Increasing PrEP utilization among women of color requires a multi-tiered approach to comprehensively address structural and community level barriers. Keywords: women, HIV, prevention, barriers, facilitators

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Section: Individual Barriersmentioning

confidence: 99%

Barriers and Perceived Facilitators for PrEP Use Among Women of Color in South Florida: Findings from theEmpowering Women to Take Control of Their Sexual Health Summit

Cyrus,

Villalba,

Jean-Gilles

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

“…However, similar to social media data and EHR, participants have expressed concerns with privacy and confidentiality and risk of harm (Mirzazadeh et al, 2014 ). Because of people's growing mistrust of science, the spread of misinformation, and the importance of incorporating proper ethical procedures into research (Golder et al, 2017 ; Garett and Young, 2021a , b , 2022 ), it is essential that researchers continue to assess public perceptions on and willingness to share digital data for use in public health. It is especially important to study this topic during and after the COVID-19 pandemic, as digital surveillance and outreach methods are increasingly being used.…”

Section: Introductionmentioning

confidence: 99%

Ethical Views on Sharing Digital Data for Public Health Surveillance: Analysis of Survey Data Among Patients

Garett¹,

Young

2022

Front. Big Data

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Digital data, including social media, wearable device data, electronic health records, and internet search data, are increasingly being integrated into public health research and policy. Because of the current issues around public distrust of science and other ethical issues in public health research, it is essential that researchers conduct ongoing studies assessing people's perceptions around and willingness to share digital data. This study aims to examine participants' social media use and comfort sharing their data with health researchers. One hundred and sixty-one participants with medical conditions were recruited through social media paid advertisements and referral from a website, and invited to complete surveys on social media use and ethical perspectives on data sharing. Eligibility criteria were adults 18 years old or older, living in the US, self-reported having been diagnosed by a physician with a medical condition, belonging to at least one social media platform, using social media at least twice a week, and owning a smartphone. Study participants were mostly female, White, and with a mean age of 36.31 years. More than one third of participants reported being very comfortable sharing electronic health data and social media data for personalized healthcare and to help others. Findings suggest that participants are very uncomfortable sharing their location and text message data with researchers, with primary concerns centered around loss of privacy, disclosing private information, and that friends, family, and others may find out that they shared text messages with researchers. We discuss the implications of this research before and after the COVID-19 pandemic, along with its potential implications for future collection of digital data for public health.

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“…Factual accurate information seeking when confronted with insecurity is possibly an adaptive behavior, enabling individuals to make rational decisions regarding keeping themselves safe ( Wiederhold, 2020 ). The pandemic may have a long-standing effect on the increased use of online HIV and health services, thus making it important for clinicians, researchers, and policymakers to quickly navigate and identify the large amounts of health misinformation online ( Garett & Young, 2022 ). Therefore, as Austin et al (2021) and Garett and Young (2022) conclude, the rise of misinformation during the COVID-19 pandemic necessitates including media literacy education as an important feature in forthcoming health promotion campaigns.…”

Section: Introductionmentioning

confidence: 99%

Addressing COVID-19 Misinformation and Resiliency Among Latinos Living With HIV: Formative Research Guiding the Latinos Unidos Microgame Intervention

Dunleavy

Ahn

Mayo

et al. 2022

American Behavioral Scientist

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Besides the risk of coronavirus disease 2019 (COVID-19) itself, the indirect and unprecedented effects of mitigation strategies including shelter-in-place orders and social distancing combined with the widespread COVID “infodemic” disseminated by media interacted synergistically to worsen already compromised mental health outcomes of Latino people living with HIV (PLWH). This funded project directly addresses the sources of health disparity in Miami Dade County: mental health and misinformation by developing a culturally tailored resilience and media literacy intervention for Latinos living with HIV. Extant research on resilience strategies and media literacy skills have documented their effectiveness in assisting individuals make realistic appraisals and informed decisions that could benefit their health outcomes and improve health-related challenges. We utilized a community-based approach by collaborating with two local community partners (Open Arms and Borinquen) and conducting 27 qualitative interviews with Latino PLWH, infectious disease providers, and community health workers who directly informed content of the Latino Unidos microgame intervention. This article describes the formative research process guiding the Latinos Unidos microgame intervention—a three-module gamified intervention. Study outcomes provide the foundation for media and educational strategies that increase adherence to health guidance and enhance mental health responses to adversity as a response to the COVID-19 pandemic.

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The Impact of Misinformation and Health Literacy on HIV Prevention and Service Usage

Abstract: Garett, Young Note. n.d. 5 no date; PrEP 5 pre-exposure prophylaxis. a Quotes from individuals have been modified to protect individuals from being identified by or linked to this report.

Cited by 9 publications

References 17 publications

Barriers and Perceived Facilitators for PrEP Use Among Women of Color in South Florida: Findings from theEmpowering Women to Take Control of Their Sexual Health Summit

Barriers and Perceived Facilitators for PrEP Use Among Women of Color in South Florida: Findings from theEmpowering Women to Take Control of Their Sexual Health Summit

Ethical Views on Sharing Digital Data for Public Health Surveillance: Analysis of Survey Data Among Patients

Addressing COVID-19 Misinformation and Resiliency Among Latinos Living With HIV: Formative Research Guiding the Latinos Unidos Microgame Intervention

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